Guest guest Posted March 20, 2012 Report Share Posted March 20, 2012 I was kicking myself for not listening to all of you when the doc said " wait and see. " We waited until was 12 months old and there was no curve change, but the doc offered a prescription for a brace at that time. Today we finally got an opinion from a Mehta doc at Shriner's. And again, we were told " wait and see. " That's unusual, right? is 13 months old but is showing signs that he may get better or may get worse. I would jump right into casting if I weren't so afraid of skin sores on my fair-skinned baby! Any advice on how we would know if things were going to resolve without intervention? Thanks, Delinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2012 Report Share Posted March 20, 2012 Which shriners? Did you use the brace? What was his RVAD & degree of curve? Sorry if you said these things already but I don't remember...If you got this advice from an experienced Mehta trained doc then it is probably sound advice. We cast at SLC & the doc there casted my son even though his RVAD was only 10 because his experience told him the rotation of 15-20 indicated a progressive curve & he was already 19 months old. Its so hard to decide what to do. Do you go back again in 2-3 months? amber mommy to Levi 31* down to 15* in cast #3 from SLC > I was kicking myself for not listening to all of you when the doc said > " wait and see. " We waited until was 12 months old and there was no > curve change, but the doc offered a prescription for a brace at that time. > > Today we finally got an opinion from a Mehta doc at Shriner's. And again, > we were told " wait and see. " That's unusual, right? is 13 months old > but is showing signs that he may get better or may get worse. > > I would jump right into casting if I weren't so afraid of skin sores on my > fair-skinned baby! > > Any advice on how we would know if things were going to resolve without > intervention? > > Thanks, > > Delinda > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 I agree as well when it comes to the concern over being fair skinned. My 6 month old was casted last month at 5 1/2 months for the first time. Unlike myself, husband and my other children she is very fair skinned. Reddish hair and blue eyes as well. Ask yourself this- what does your gut tell you? For my Ella my gut said to find the best doc I could and push for a cast. Her RVAD was only a 10, but she's casted. If you're concerned by what you're told, absolutely get a second opinion. You'll never kick yourself for double checking. You'll kick yourself by not. Sorry I'm not more help. Good luck! > > I was kicking myself for not listening to all of you when the doc said " wait and see. " We waited until was 12 months old and there was no curve change, but the doc offered a prescription for a brace at that time. > > Today we finally got an opinion from a Mehta doc at Shriner's. And again, we were told " wait and see. " That's unusual, right? is 13 months old but is showing signs that he may get better or may get worse. > > I would jump right into casting if I weren't so afraid of skin sores on my fair-skinned baby! > > Any advice on how we would know if things were going to resolve without intervention? > > Thanks, > > Delinda > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2012 Report Share Posted March 22, 2012 Philadelphia Shriners. He is at 34*. We booked an appointment for his first cast and he'll be x-rayed again that morning. We'll have to make the final decision then about what to do. If the curve is worse, we'll probably cast. If it is the same or better... Ah, I just don't know! I'm glad to hear that skin sores are not an issue for some of you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2012 Report Share Posted March 22, 2012 I would totally recommend casting!My 5 year old jaylin got his first cast dec.23,2011 and he was 34 out of cast, 13 in cast. We had to take him back yesterday because he out grew his cast so they cut it off of him and took another X-ray and he is down 21 degrees :) he will get his second cast next tuesday march 27, 2012 I'm excited to see where he will be in cast this time around! Live, laugh, and loveJoyOn Mar 21, 2012, at 8:05 PM, Our Family <steelersfamily08@...> wrote: Philadelphia Shriners. He is at 34*. We booked an appointment for his first cast and he'll be x-rayed again that morning. We'll have to make the final decision then about what to do. If the curve is worse, we'll probably cast. If it is the same or better... Ah, I just don't know! I'm glad to hear that skin sores are not an issue for some of you! = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2012 Report Share Posted March 22, 2012 My sons curve was 32* with 15/20* rotation an RVAD of 10. @19mos. We choose to cast if your son has rotation or an RVAD over 20 my advice would be to cast... just my 2 cents Amber > Philadelphia Shriners. He is at 34*. We booked an appointment for his > first cast and he'll be x-rayed again that morning. We'll have to make the > final decision then about what to do. If the curve is worse, we'll > probably cast. If it is the same or better... Ah, I just don't know! > > I'm glad to hear that skin sores are not an issue for some of you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2012 Report Share Posted March 22, 2012 I'm w Amber. 34 degrees is high enough. Your child is the perfect age. Don't miss a chance to permanently correct his curve! I'm very surprised they want to wait and see.... Probably bc it's stable. Read the online info on the site to help you decide. Don't be to scared to try casting.... You might regret it later and trust me living w regret is a hard thing to do. T Sent from my iPhone On Mar 21, 2012, at 7:05 PM, Our Family <steelersfamily08@...> wrote: Philadelphia Shriners. He is at 34*. We booked an appointment for his first cast and he'll be x-rayed again that morning. We'll have to make the final decision then about what to do. If the curve is worse, we'll probably cast. If it is the same or better... Ah, I just don't know! I'm glad to hear that skin sores are not an issue for some of you! ------------------------------------ Quote Link to comment Share on other sites More sharing options...
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