Directors for a major network documentary (2nd) request for CHERAB

[Guest guest]

Happy Holidays to all!

I just got an urgent request from the producer from the documentary

mentioned below (that will be aired all over!!) that they want to add

one more child to be filmed right now -or right away - in the NY

area. Below is the original message from a few months ago and I know

many people contacted me back then -but other than Marci from NYC who

is the support contact for NYC and one of the mom's the producers

interviewed already, I didn't keep a list of names of the rest. I

know some people didn't want to wait to supplement with the ProEFA -

and it was a wait. Well if you did happen to wait, or you are new to

the list, this is an incredible opportunity to document your child

before and after EFA supplementation in an educational documentary

which is being reviewed and overseen by leading doctors. Talk about

an incredible opportunity to get the word out about what we as a

small group are seeing...and hearing!

If I can -I just want to take a moment to say something. New parents

ask us if we really see results with EFA and it's typically the newer

to our group parents that answer -did you ever notice that? After

all once you answer once -and the question pops up again a few days

later -and then again. In addition to that - there is another reason

its the newer parents.

It used to be that if a child was diagnosed with apraxia, PDD or

autism, it was a hard future ahead for all. The EFAs have literally

changed that in many cases overnight. The road is still hard work,

but the light, it's there now, you know? The progression sometimes

is so rapid that it subsides the worry. I can't tell you how many

parents post to this list all scared and upset about the diagnosis -

who write to us amazed when they first started the EFAs -typically

ProEFA, and then you don't hear from them much because their child is

talking, interacting -and they can move on!!

I appreciate that feeling. Face it -we are all busy people -I'm

still here with all of you because my goal is to get the word out so

that other's can know this information that we as a group now take

for granted...so we can help all the children. Everytime I hear

about a child that talks for the first time on EFAs I get chills.

Just today I spoke to Mauri Blefeld's husband (Mauri runs the

Children's Apraxia Network of PA) Her son, when I met him a bit over

a year ago when he was seven -was using an augmentative device to speak for him,

and

some of his vocalizations sounded like grunts. Mauri's husband told

me how his son -who is just a few years shy of ten years old, started to

progress rapidly on the ProEFA -and now just months later he's

speaking in two word sentences and doesn't want to even use the

augmentative device anymore. Because...He's talking!! Just think

how many parents just like Mauri don't know to try just giving their

child fish oil -I mean it sounds lame doesn't it?

This again is that opportunity to give our children, and the

communication impairments that blocked them, a voice - to the

children like ours out there who have mom's and dad's that don't own

computers, or who can't afford private evaluations -what happens to

those kids? What could happen if more knew about this? It's not the

name brand like it would be in a drug -it's the formula of DHA, EPA

and GLA -and anyone anywhere could make that. (And no I don't want

to say here what I'm doing yet with my own children that I've

confidentially shared with a few others -but when there is enough

anecdotal results from others of what we are now giving to our

children along with the ProEFA I will share it.)

This documentary and all the events coming up are all chances for all

of you to be involved and show you do care about communication

impairments in children -a condition that is the " so what? "

impairment of all time. So what?! We can all tell the story

of " what " and why we need awareness - please don't lose that passion

when we together can use it to help all of the children -which will

ultimately help your own child and mine much more than anything we

could ever do alone.

Everything (I know -I know, " will be posted to the

http://www.apraxia.cc website soon " ) Please call me at the CHERAB

number 908-626-KIDS (5437) or email me at lisa@... (lisa

@kiddietalk.org) if you are interested in the following -you would

have to be in the NYC triState area. Read on...

--- In @y..., "

[Guest guest]

Hello,

I'm rather new to this list and just now have gotten a chance to read

some of the e-mails. This one is my first and since I have a 13 almost 14

year old son with Autism, who is non verbal, I am very interested in what

you are talking about. What are you all giving your kids that has gotten

them to talk? I have gotten to a point that I feel no one cares about my

son. They have poked, and prodded, and gotten no where, well I guess the

docs and hospitals have gotten somewhere... RICH!!! My son has seizures,

which we have gotten under control with seizure meds finally, but I hate the

fact that he has to be on meds. I would give my right arm to have something

that would help him to be able to talk to me.

Sure hope I haven't made myself look real dumb, LOL.

Carmella in Indiana

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PASS IT ON!!! (8

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WE MUST NEVER FORGET THOSE

WHO LOST THEIR LIVES ON SEPT 11 2001

MAY GOD BLESS US ALL

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