New member

[Guest guest]

Hi , your son definitely sounds higher functioning with behavior issues.

My son is only 5 and presents with some behavior issues and rigid rituals to

sameness and after reading your first post, I am hopeful that he will

outgrow some of his quirkiness since some of his earlier odd behaviors and bad

habits have fallen by the way side with maturity. Anyway, my son is going to

begin a behavior training program through MHMR Texana Behavior Training and

Treatment Center down in Rosenberg soon, we are in the very preliminary stages

of

program development so we haven't begun working on any particular problem

behavior yet, although some have been identified. You might see if your current

school district will do a functional assessment and analyses to see what

precipitates your son's noncompliance in school. Your son sounds like he has

savant skills and strengths which could be sharpened, might point towards what

he

would like to do when he grows up. Just a thought.

[Guest guest]

Welcome

I'm new too, and I start today on the BFL way of life. I am pretty scared about

not being able to complete this. I dont like what that makes me feel about

myself.

If you want to email me, we could be newbie buddies Im at vanessae@...

Good luck!

New Member

Hello All-

I am starting the Body for Life Challange in the morning.. I am in the

process of trying to plan all my meals. I have followed the book and

wrote down all the homework that I am going to read to myself 2x daily.

I took my before pictures and I am ready...I am almost 27yrs old with a

son age 6. I am a single parent and lets just say that I've let myself

go. I weighed 180lbs in late 2003. I am 69inches and currently weigh

253lbs. I am ready to do this but I am scared about making it through.

I will though!!! Does anyone have any meal plans and exercise

routines that helped them???

[Guest guest]

Just remember that we are self-fulfulling prophacies! You MUST tell

yourself you WILL complete the 12 week challenge. Even if you dont

believe it, tell yourself! Positive self talk!

>

> Welcome

> I'm new too, and I start today on the BFL way of life. I am pretty

scared about not being able to complete this. I dont like what that

makes me feel about myself.

> If you want to email me, we could be newbie buddies Im at

vanessae@...

> Good luck!

>

> New Member

>

>

> Hello All-

>

> I am starting the Body for Life Challange in the morning.. I am

in the

> process of trying to plan all my meals. I have followed the book

and

> wrote down all the homework that I am going to read to myself 2x

daily.

> I took my before pictures and I am ready...I am almost 27yrs old

with a

> son age 6. I am a single parent and lets just say that I've let

myself

> go. I weighed 180lbs in late 2003. I am 69inches and currently

weigh

> 253lbs. I am ready to do this but I am scared about making it

through.

> I will though!!! Does anyone have any meal plans and exercise

> routines that helped them???

>

>

>

>

>

>

[Guest guest]

Hey,

I am right there with you two. I just started this week and am unable to

finish anything related to weight loss.

Shana

Check out my site at:

http://www.juiceplus.com/+sp23884

-- Re: New Member

Welcome

I'm new too, and I start today on the BFL way of life. I am pretty scared

about not being able to complete this. I dont like what that makes me feel

about myself.

If you want to email me, we could be newbie buddies Im at vanessae@shaw

ca

Good luck!

New Member

Hello All-

I am starting the Body for Life Challange in the morning.. I am in the

process of trying to plan all my meals. I have followed the book and

wrote down all the homework that I am going to read to myself 2x daily.

I took my before pictures and I am ready...I am almost 27yrs old with a

son age 6. I am a single parent and lets just say that I've let myself

go. I weighed 180lbs in late 2003. I am 69inches and currently weigh

253lbs. I am ready to do this but I am scared about making it through.

I will though!!! Does anyone have any meal plans and exercise

routines that helped them???

[Guest guest]

Hi ! Good to talk to you again. Not sure if you remember talking to me or

not-- I also have a & we emailed several years ago now (maybe less than

SEVERAL years....) I am sorry you are having so many issues at once. I wish I

could help! I wanted to welcome you to the list!

Peace Be With You,

Pattie

" Success is not final, failure is not fatal: it is the courage to continue that

counts. " ~Winston Churchill

[Guest guest]

Hi .... Welcome to the Club. I'm a HEP C 2b w/ ESLD waiting for a TP. I'm asking this cause I want to understand your position... is bo like boy, missing the' y' or bo like beau, your dear companion? It kinda' makes a difference when (for me anyway!!haha) if your worried about your son or ...well...I think you see what I mean..... Don't allow me to cause you to be nervous or anything, regarding me asking that question...I truly ask it so I'll know, and not checking to see if your available... I'm too tired to do anything about it even if I was...heh...heh...Man.. I sure can paint myself into a corner quick!! eh???? I've been a member of the group for almost a year I guess, have been helped alot in the past, and hope I've been able to make someone smile every once in a while. I have absolutely no idea what your talking about when you

mention that drug and testing..... Someone here probably does or you may try The American Liver Foundation and see if they know of any test's being done with it. Just type American Liver Foundation in the search bar and you'll get there! Again, welcome aboard!!! PS... Is Earthlink a company that offers phone High Speed Internet and Cable/satellite all in one package? Deliman sabrina mckenney <sabrina1234@...> wrote: Hello To All, Just joined your group and wanted to introduce myself. I am so looking forward to sharing info and friendship with you. My bo, Stan, has recently been diagnosed with hcv, geno type 1. Just had his liver biopsy last month. His doctor offered the standard treatment, PegInterferon with Ribavirin. I lost my husband, O'Dean, 17 months ago to a monster brain tumor. A six year illness, after being given a 3-6 month life expectancy, most of which was relatively good quality time. I attribute the extended time to the Grace of God, O'Deans unwaivering will to stay with me and several clinical trials. I've been

researching hcv trials and am very surprised to find only a handful of interest: 1. bavituximab 2. AVI-4065 Does anyone have first hand experience with either one of these trials or any info on anything that might be coming up in the near future? Thank you so much for your time and, I know, comfort.

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

[Guest guest]

Hi .My name is Gail and I have had HCV for 30yrs or more.Genotype 1.I had treatment of interferon at 3 shots a wk and 5 riboveron tablets a day for a year.I started treatment March of 98 and finished March 99.I have been undetectable since.I am not familiar with the new treatments but someone will have the information for you.Welcome to our group.

Gail

new member

Hello To All,

Just joined your group and wanted to introduce myself. I am so looking forward to sharing info and friendship with you.

My bo, Stan, has recently been diagnosed with hcv, geno type 1. Just had his liver biopsy last month. His doctor offered the standard treatment, PegInterferon with Ribavirin.

I lost my husband, O'Dean, 17 months ago to a monster brain tumor. A six year illness, after being given a 3-6 month life expectancy, most of which was relatively good quality time. I attribute the extended time to the Grace of God, O'Deans unwaivering will to stay with me and several clinical trials.

I've been researching hcv trials and am very surprised to find only a handful of interest:

1. bavituximab

2. AVI-4065

Does anyone have first hand experience with either one of these trials or any info on anything that might be coming up in the near future?

Thank you so much for your time and, I know, comfort.

[Guest guest]

Hi

. I’m really sorry to hear about your husband, but I’m glad

you have someone else now. I’m a/k/a De, genotype 1, diagnosed 10/03,

did treatment (tx) thru 04 and am clear or undetectable 18 months post-tx. It

can be very overwhelming & scary when you are first diagnosed and trying to

understand what the heck it’s all about. I highly recommend this book

(this is from Amazon.com):

Living with

Hepatitis C: A Survivor's Guide, Fourth Edition (Living with)

by T. Everson and Hedy Weinberg (Paperback - Aug 21, 2006)

Buy new: $15.95 $10.37 In Stock

Used & new from $10.00

Here

is my personal opinion about treatment – I think anyone whose doctor will

allow them to do it, can afford it, and can handle the sides (which are often minimal

or manageable although there are horror stories) should absolutely try it. The

best case is you clear and go back to your “normal” life for the

most part, and the worst case is you give your liver a rest and slow down the

disease progression. There are not enough livers to go around now, and the

list isn’t getting any shorter as more and more people are getting

diagnosed. Many don’t find out until transplant is the only option. So

that’s my soapbox.

I’m

not up on the current trials, but most everything is still interferon-based, so

may as well go on and try it now rather than waiting for something new. We are

here for one another, we love each other fiercely, and we are all open to

questions from you or Stan either on here or privately if you prefer.

Hugs,

De

new member

Hello To All,

Just joined your

group and wanted to introduce myself. I am so looking forward to sharing info

and friendship with you.

My bo, Stan, has

recently been diagnosed with hcv, geno type 1. Just had his liver biopsy last

month. His doctor offered the standard treatment, PegInterferon with Ribavirin.

I lost my

husband, O'Dean, 17 months ago to a monster brain tumor. A six year

illness, after being given a 3-6 month life expectancy, most of which was

relatively good quality time. I attribute the extended time to the Grace of

God, O'Deans unwaivering will to stay with me and several clinical

trials.

I've been

researching hcv trials and am very surprised to find only a handful of

interest:

1. bavituximab

2. AVI-4065

Does anyone have first hand

experience with either one of these trials or any info on anything that might

be coming up in the near future?

Thank you so much

for your time and, I know, comfort.

[Guest guest]

Hi ... I wish no one had this. I don't wish it on anyone!! I'm glad for you that a child you gave birth to doesn't have it..... You learn fast... It will always be with us. maybe un detectable, but it will probably hiding under your toenail like that gross commercial on TV, with all those other guys...... My body does not react well at all to the the current TX's. I tried it twice and after both times in five weeks my immune system basically leaves it's post and hauled ass with all the doors open!! heh..heh.. I get Staph (it seems) even if I'm upwind from it!! My only, and I've had internal debates about a tp, (being a Gemini

makes it easy to have these "debates).... concern now is taking the anti-rejection drugs post TP.... from what I understand, they REALLY lower your immune system, because they are trying to let selected bacteria/germs/stuff in, and there is always somethin' bad it seems hitching a free ride with the chosen ones. St. must have hell up there........ Anyone please correct me if I'm wrong about any of this... Also, a new , uninfected liver, will become infected when installed and "fired up" in your system. Then, however, (1), you will feel better because the poison (ammonia) is getting out of your body, PLUS the over 500 other jobs it has to do will be done much better.. OK (2) you can continue, in most cases, to try whatever tx's there are available to erradicate Hep C I guess it's kind of like a flashlight that has been in your toolbox forever,and has problems with a cracked lens, a not always dependable switch,etc..... it still works OK ..... doing what is was mean't to do...all it needed was new batteries to freshen it up and shine like it used too! Later we can fix the other stuff!! Del sabrina mckenney <sabrina1234@...> wrote: Pat, SuZie Star & Del, Thank you so much for your responses. Sorry it's taken me so long to respond, but I've been spending my free time trying to contact what few clinical trials there are out there. I guess I'm a little slow, but it's just now sinking in that the percentages are pretty high that this is a desease to be managed, not cured. "Undetectable" sounds an awfully lot like "no new growth", a term I used to pray to hear. Altho premature, I know, I do have another question for those of you waiting for tp. This isn't a cure either, correct? As the desease is blood born. But it does buy you many years? Anyway, I can see that you all are a truely caring group, and my thoughts

and prayers are with you all. And Del, you are too too funny. You did bring a smile to my gloomy day. I meant beau (not very good at typing or abbreviations). I enjoyed your music. I too play and sing. Well, off I go to work, have a wonderful day,

How low will we go? Check out Messenger’s low PC-to-Phone call rates.

[Guest guest]

Hi ,

I don't post much.But,I do read the posts in my e-mail most of the

time.But,I do wish to welcome you to the group here.We are all here

to support one another,as we are all probably in various stages of

hcv.I am probably one of the blessed ones here in this group.So

far,no tx needed.But,I still live this thing every day knowing my

next bloodwork,or the one after that could turn things around.Sorry

to hear about your first husband,and ur 'bo " .our prayers will be

going out for him..

Mike

>

> Hello To All,

> Just joined your group and wanted to introduce myself. I am so

looking forward to sharing info and friendship with you.

> My bo, Stan, has recently been diagnosed with hcv, geno type

1. Just had his liver biopsy last month. His doctor offered the

standard treatment, PegInterferon with Ribavirin.

> I lost my husband, O'Dean, 17 months ago to a monster brain

tumor. A six year illness, after being given a 3-6 month life

expectancy, most of which was relatively good quality time. I

attribute the extended time to the Grace of God, O'Deans unwaivering

will to stay with me and several clinical trials.

> I've been researching hcv trials and am very surprised to find

only a handful of interest:

>

> 1. bavituximab

> 2. AVI-4065

>

> Does anyone have first hand experience with either one of these

trials or any info on anything that might be coming up in the near

future?

>

> Thank you so much for your time and, I know, comfort.

>

[Guest guest]

Hi and welcome. It is also exciting to hear from a few of you out there that don't post to much. you guys are very important and it is so wonderful for us to hear from you, even if it is once in a while.

, Undetectable means the lab just can't measure or find any Hep C virus in the blood. It can always come back, thats why they call it the dragon, always hiding ready to jump out again. I did 52 weeks recently of Pegasys, undetectable all the way but relapsed at 6 months. I did drop a stage in fibrosis though and I gave my liver a break to heal.

New Member

Pat, SuZie Star & Del,

Thank you so much for your responses. Sorry it's taken me so long to respond, but I've been spending my free time trying to contact what few clinical trials there are out there. I guess I'm a little slow, but it's just now sinking in that the percentages are pretty high that this is a desease to be managed, not cured. "Undetectable" sounds an awfully lot like "no new growth", a term I used to pray to hear.

Altho premature, I know, I do have another question for those of you waiting for tp. This isn't a cure either, correct? As the desease is blood born. But it does buy you many years?

Anyway, I can see that you all are a truely caring group, and my thoughts and prayers are with you all.

And Del, you are too too funny. You did bring a smile to my gloomy day. I meant beau (not very good at typing or abbreviations). I enjoyed your music. I too play and sing.

Well, off I go to work, have a wonderful day,

[Guest guest]

Susie wrote: " Hello All, I'm a newbie here. I am 26, but will be 27

next tuesday. I am a student studying computing level 2. My hobbies

are reading, sending emails, movies, chatting online and music. I

have 2 brothers and 4 sisters and one rabbit. I suffer from

aspergers syndrome and I feel like my mother never takes time to

listen to me, she always thinks my other sisters prioty and I think

thats called favourtism. She never treats me the same and no point

talking to none of my family, I feel just like invisible and also

its the same at college as well. Anyway thats all 4 now and i hope

to make new friends can relate to how I feel. "

First off, WELCOME TO THE GROUP! :-D I'm Raven, an AS mom raising

a totally awesome AS son.

Secondly, Happy Birthday before the event!

Thirdly, I can relate to feeling invisible in the NT world. It

sometimes happens for me in the AS world as well. It's not easy

feeling invisible but sometimes you can find ways to be more

visible. I feel that Secret Society is one of the ways Aspies can

feel more visible.

Raven

[Guest guest]

Hi Susie.

Your wrote:

" I'm a newbie here. "

Welcome to the group.

" I suffer from aspergers syndrome and I feel like my mother never

takes time to listen to me, she always thinks my other sisters

prioty and I think thats called favourtism. "

1) Nearly all of us here have AS, and I think if you hang around

with us long enough, you will come to see AS as something special.

Even though it causes problems for us socially, it can also be a

gift.

2) You are probably right in your perception regarding your mom and

sisters. In the same way that non-Aspies seem to ferret out AS

people and label them rejects, sometimes it happens wihin our own

families. In my family, my sister and I are BOTH Aspies, so my mom

has always compared us to our cousins. She even favors some of them

more than she does us.

" She never treats me the same and no point talking to none of my

family, I feel just like invisible and also its the same at college

as well. "

I tended to hole myself up in college to get away from the folks who

would not accept me. There WERE more people who DID accept me in

college, but even so, their numbers were few. It is good to hear

that smeone else experiences the same sorts of social dilemmas that

many of the members here do. Maybe by talking about this together in

this fourm, we can support one another and know that, even if we do

not have other people in the " real " world to understand us,

understanding (and support) can be found here.

" Anyway thats all 4 now and I hope to make new friends can relate to

how I feel. Susie "

You are welcome here. I and the co-admins will work hard to try to

make this forum a place that you fill comfortable frequenting.

Tom

Administrator

[Guest guest]

thanks for the welcome , Susie

>

>

> Hi Susie.

>

> Your wrote:

>

> " I'm a newbie here. "

>

> Welcome to the group.

>

> " I suffer from aspergers syndrome and I feel like my mother never

> takes time to listen to me, she always thinks my other sisters

> prioty and I think thats called favourtism. "

>

> 1) Nearly all of us here have AS, and I think if you hang around

> with us long enough, you will come to see AS as something special.

> Even though it causes problems for us socially, it can also be a

> gift.

>

> 2) You are probably right in your perception regarding your mom

and

> sisters. In the same way that non-Aspies seem to ferret out AS

> people and label them rejects, sometimes it happens wihin our own

> families. In my family, my sister and I are BOTH Aspies, so my mom

> has always compared us to our cousins. She even favors some of

them

> more than she does us.

>

> " She never treats me the same and no point talking to none of my

> family, I feel just like invisible and also its the same at

college

> as well. "

>

> I tended to hole myself up in college to get away from the folks

who

> would not accept me. There WERE more people who DID accept me in

> college, but even so, their numbers were few. It is good to hear

> that smeone else experiences the same sorts of social dilemmas

that

> many of the members here do. Maybe by talking about this together

in

> this fourm, we can support one another and know that, even if we

do

> not have other people in the " real " world to understand us,

> understanding (and support) can be found here.

>

> " Anyway thats all 4 now and I hope to make new friends can relate

to

> how I feel. Susie "

>

> You are welcome here. I and the co-admins will work hard to try to

> make this forum a place that you fill comfortable frequenting.

>

> Tom

> Administrator

>

[Guest guest]

thanks for the welcome Raven, nice to meet you, thanks for

understanding about the invisible bit. I hope i have a nice birhtday

as well. Susie

>

> Susie wrote: " Hello All, I'm a newbie here. I am 26, but will be

27

> next tuesday. I am a student studying computing level 2. My

hobbies

> are reading, sending emails, movies, chatting online and music. I

> have 2 brothers and 4 sisters and one rabbit. I suffer from

> aspergers syndrome and I feel like my mother never takes time to

> listen to me, she always thinks my other sisters prioty and I

think

> thats called favourtism. She never treats me the same and no point

> talking to none of my family, I feel just like invisible and also

> its the same at college as well. Anyway thats all 4 now and i

hope

> to make new friends can relate to how I feel. "

>

> First off, WELCOME TO THE GROUP! :-D I'm Raven, an AS mom

raising

> a totally awesome AS son.

>

> Secondly, Happy Birthday before the event!

>

> Thirdly, I can relate to feeling invisible in the NT world. It

> sometimes happens for me in the AS world as well. It's not easy

> feeling invisible but sometimes you can find ways to be more

> visible. I feel that Secret Society is one of the ways Aspies can

> feel more visible.

>

> Raven

>

[Guest guest]

Hi Susie,

welcome to the forum.

I find that my mother does not understand, no matter how I try to get

things across - and I have tried various forms, from explaining

verbally to printing things out for her to read.

To be honest I have now got to the point, where I don't think she

really wants to know. They say those on the spectrum live in their own

worlds, well I think my mum is guilty of this (as are many other non

aspies) they would rather believe in what they want to believe and

anything that does not fit that pattern is basically ignored :-( or

that is how it often feels.

>

> Hello All,

>

> I'm a newbie here. I am 26, but will be 27 next tuesday. I am a

> student studying computing level 2. My hobbies are reading, sending

> emails, movies, chatting online and music. I have 2 brothers and 4

> sisters and one rabbit. I suffer from aspergers syndrome and I feel

> like my mother never takes time to listen to me, she always thinks my

> other sisters prioty and I think thats called favourtism. She never

> treats me the same and no point talking to none of my family, I feel

> just like invisible and also its the same at college as well.

>

> Anyway thats all 4 now and i hope to make new friends can relate to

> how I feel. Susie

>

[Guest guest]

thanks for the welcome , Susie

Hi Susie,welcome to the forum.I find that my mother does not understand, no matter how I try to get things across - and I have tried various forms, from explaining verbally to printing things out for her to read.

To be honest I have now got to the point, where I don't think she really wants to know. They say those on the spectrum live in their own worlds, well I think my mum is guilty of this (as are many other non aspies) they would rather believe in what they want to believe and anything that does not fit that pattern is basically ignored :-( or that is how it often feels.>> Hello All,> > I'm a newbie here. I am 26, but will be 27 next tuesday. I am a > student studying computing level 2. My hobbies are reading, sending > emails, movies, chatting online and music. I have 2 brothers and 4 > sisters and one rabbit. I suffer from aspergers syndrome and I feel > like my mother never takes time to listen to me, she always thinks my > other sisters prioty and I think thats called favourtism. She never > treats me the same and no point talking to none of my family, I feel > just like invisible and also its the same at college as well.

> > Anyway thats all 4 now and i hope to make new friends can relate to > how I feel. Susie> -- My private email address: susie4uk2006@...My group email: susannah2005uk@...My Website at:

http://susie4uk2005.tripod.com/

[Guest guest]

omg!! I responded to a post made to another " Terry " . my name

is musiclover, but my name is Terry also.

Soooo.. Terry, sorry I posted on your welcome!

My other cyber name is terr-bo. If there are several Terrys in this

group, besides musiclover.. if y'all wanna call me a name, I'll be

terr-bo as I am in a few other forums around the net.

later

terr-bo

aka musiclover

[Guest guest]

Ummmm....i think i would be the " other Terry " :-)

And thank you all for the welcomes and the answers

to my questions.

>

> I don't think we have any other Terries and I use my real name too.

> Gail

>

[Guest guest]

Hi ! I'm just another parent but it sounds like OCD to me.

I have a son, just turned 18, with OCD. His (our) ordeal began back

in 6th grade. He had OC tendencies/behaviors before that but

suddenly in 6th grade it became 24/7 OCD with compulsions, etc.

I used to think my mom had OCD. But after reading about OCPD last

year, I realized she fits that (OCPD).

I have my own OC tendencies but nothing troublesome. Same with my

other 2 sons. just got the full brunt of the disorder, poor

guy!

You might want to look at some books for kids about OCD. Find one to

read with your daughter. This way you can talk about it before you

take her to see anyone. You'd have to speak with her about it even

if a doctor did see you first alone and then want to see her. Also

she might actually feel relieved to find a name and reason for why

she does some things, has such anxiety and gets upset. You're NOT

overreacting! She could definitely benefit from therapy for OCD (CBT

and ERP). Have you visited the OCD Foundation website yet? Good

info there. Also good info in the FILES section of our group here.

We live in a sort of rural area but larger cities near. Anyway,

never could find a therapist for my son so had to just read & read,

join this great group, and slowly worked on things on our own.

Things would definitely have moved/improved faster with an

experienced therapist.

Welcome to the group!

single mom, 3 sons

, 18, with OCD, dysgraphia and Aspergers

, 18 (twin, not identical)

Randall, 21.5

>

> Hi everyone,

> Thanks to someone from another group, I found this group.

> I am a mom of a just-turned 9 year old girl. I am beginning to

> wonder if she has OCD or perhaps obsessive-compulsive personality

> disorder. I wanted to make an appointment with her physician to

talk

> about her behavior for an initial evaluation and possible referral,

[Guest guest]

Hi ! I'm just another parent but it sounds like OCD to me.

I have a son, just turned 18, with OCD. His (our) ordeal began back

in 6th grade. He had OC tendencies/behaviors before that but

suddenly in 6th grade it became 24/7 OCD with compulsions, etc.

I used to think my mom had OCD. But after reading about OCPD last

year, I realized she fits that (OCPD).

I have my own OC tendencies but nothing troublesome. Same with my

other 2 sons. just got the full brunt of the disorder, poor

guy!

You might want to look at some books for kids about OCD. Find one to

read with your daughter. This way you can talk about it before you

take her to see anyone. You'd have to speak with her about it even

if a doctor did see you first alone and then want to see her. Also

she might actually feel relieved to find a name and reason for why

she does some things, has such anxiety and gets upset. You're NOT

overreacting! She could definitely benefit from therapy for OCD (CBT

and ERP). Have you visited the OCD Foundation website yet? Good

info there. Also good info in the FILES section of our group here.

We live in a sort of rural area but larger cities near. Anyway,

never could find a therapist for my son so had to just read & read,

join this great group, and slowly worked on things on our own.

Things would definitely have moved/improved faster with an

experienced therapist.

Welcome to the group!

single mom, 3 sons

, 18, with OCD, dysgraphia and Aspergers

, 18 (twin, not identical)

Randall, 21.5

>

> Hi everyone,

> Thanks to someone from another group, I found this group.

> I am a mom of a just-turned 9 year old girl. I am beginning to

> wonder if she has OCD or perhaps obsessive-compulsive personality

> disorder. I wanted to make an appointment with her physician to

talk

> about her behavior for an initial evaluation and possible referral,

[Guest guest]

,

My daughter was diagnosed last year right after her 9th birthday. After

reading your post I think you are right on the mark. My daughter has a lot

of night time rituals as well, and evenness is so very important to her. We

went through the kissing thing when she was younger and the I Love You's in

2's and 4's. Also, your daughter seeking constant reassurance from her

teacher is another indicator. I think seeking out a therapist is the next

step.

I wish you and your daughter the best,

_____

From:

[mailto: ] On Behalf Of maryhohman

Sent: Friday, January 26, 2007 1:36 PM

Subject: New Member

Hi everyone,

Thanks to someone from another group, I found this group.

I am a mom of a just-turned 9 year old girl. I am beginning to

wonder if she has OCD or perhaps obsessive-compulsive personality

disorder. I wanted to make an appointment with her physician to talk

about her behavior for an initial evaluation and possible referral,

but I wanted to do it without her at first. He won't see me unless

she is there too, and I don't want to alarm her with my concerns

just yet. I have been doing some research because I don't know if

I'm being overly sensitive to her personality or if she does have

the beginnings of OCD or OCPD. Since this group seems to have a lot

of early childhood onset experience, I thought I would pose my

question here.

My daughter is a delightful and loving girl but in the last year or

so, I have noticed that she is becoming more rigid in her behavior.

She is very much a perfectionist. She likes things to be

done evenly (like a night-time ritual that involves goodnight kisses

has turned into a perfunctory number of kisses and hugs on each side

and if it's not done that way she gets upset.) She feels she has to

say that she loves me 4 times in a row and if she doesn't she says

it doesn't feel right. If our bedtime ritual together is

interrupted or doesn't start right on time she gets very, very

upset. I am the only one she wants to be involved with her night-

time ritual. She is very smart and does very well in school but her

teacher did mention that after the teacher has explained how to do a

problem, my daughter will almost always go up to her and ask for

confirmation of the explanation. (Her teacher says that my daughter

always has the explanation right, but apparently needs the

confirmation.) When she was younger she was really obsessed about me

dying and she was always afraid of that. These are some of the

behaviors that I'm concerned about but there are more.

So, I'm sorry for this long post but I was wondering what you all

might think about this. Sometimes I think I'm overreacting and

should cancel her doctor appointment and other times I feel that if

it is something like OCD or OCDP then she would benefit from

therapy. What do you think?

Thanks so much!

[Guest guest]

welcome

I don't think you're over-reacting - I would say based on this- yes

therapy would be helpful but I don't know the difference with the

personality disorder as opposed to just ocd - it does sounds like ocd

to me - good luck - we're here and I'm sure someone with more

knowledge will jump in soon - sorry I'm pretty useless with this one

eileen

Quoting maryhohman <maryhohman@...>:

> Hi everyone,

> Thanks to someone from another group, I found this group.

> I am a mom of a just-turned 9 year old girl. I am beginning to

> wonder if she has OCD or perhaps obsessive-compulsive personality

> disorder. I wanted to make an appointment with her physician to talk

> about her behavior for an initial evaluation and possible referral,

> but I wanted to do it without her at first. He won't see me unless

> she is there too, and I don't want to alarm her with my concerns

> just yet. I have been doing some research because I don't know if

> I'm being overly sensitive to her personality or if she does have

> the beginnings of OCD or OCPD. Since this group seems to have a lot

> of early childhood onset experience, I thought I would pose my

> question here.

>

> My daughter is a delightful and loving girl but in the last year or

> so, I have noticed that she is becoming more rigid in her behavior.

> She is very much a perfectionist. She likes things to be

> done evenly (like a night-time ritual that involves goodnight kisses

> has turned into a perfunctory number of kisses and hugs on each side

> and if it's not done that way she gets upset.) She feels she has to

> say that she loves me 4 times in a row and if she doesn't she says

> it doesn't feel right. If our bedtime ritual together is

> interrupted or doesn't start right on time she gets very, very

> upset. I am the only one she wants to be involved with her night-

> time ritual. She is very smart and does very well in school but her

> teacher did mention that after the teacher has explained how to do a

> problem, my daughter will almost always go up to her and ask for

> confirmation of the explanation. (Her teacher says that my daughter

> always has the explanation right, but apparently needs the

> confirmation.) When she was younger she was really obsessed about me

> dying and she was always afraid of that. These are some of the

> behaviors that I'm concerned about but there are more.

> So, I'm sorry for this long post but I was wondering what you all

> might think about this. Sometimes I think I'm overreacting and

> should cancel her doctor appointment and other times I feel that if

> it is something like OCD or OCDP then she would benefit from

> therapy. What do you think?

> Thanks so much!

>

>

>

>

[Guest guest]

Hi , and Welcome,

This sounds like cut-and-dry OCD to me, I am curious why you think it

could be OCPD? If she were 2 or 3, I could pass off some of the

rigidity to the age, but at 9 (mine is 9 as well) these things should

not bother her so much. The key is that she gets " very very upset " .

That is classic behavior when an OCD ritual is interrupted.

I think you have a problem with your physician - why does he insist on

seeing her with you? Have you told him in general what the issues

are? I agree you should talk with him privately.

nna.

NY

PS) Always trust your motherly instinct - if you think something's

" not right " , it probably is the case

>

> Hi everyone,

> Thanks to someone from another group, I found this group.

> I am a mom of a just-turned 9 year old girl. I am beginning to

> wonder if she has OCD or perhaps obsessive-compulsive personality

> disorder. I wanted to make an appointment with her physician to talk

> about her behavior for an initial evaluation and possible referral,

> but I wanted to do it without her at first. He won't see me unless

> she is there too, and I don't want to alarm her with my concerns

> just yet. I have been doing some research because I don't know if

> I'm being overly sensitive to her personality or if she does have

> the beginnings of OCD or OCPD. Since this group seems to have a lot

> of early childhood onset experience, I thought I would pose my

> question here.

>

> My daughter is a delightful and loving girl but in the last year or

> so, I have noticed that she is becoming more rigid in her behavior.

> She is very much a perfectionist. She likes things to be

> done evenly (like a night-time ritual that involves goodnight kisses

> has turned into a perfunctory number of kisses and hugs on each side

> and if it's not done that way she gets upset.) She feels she has to

> say that she loves me 4 times in a row and if she doesn't she says

> it doesn't feel right. If our bedtime ritual together is

> interrupted or doesn't start right on time she gets very, very

> upset. I am the only one she wants to be involved with her night-

> time ritual. She is very smart and does very well in school but her

> teacher did mention that after the teacher has explained how to do a

> problem, my daughter will almost always go up to her and ask for

> confirmation of the explanation. (Her teacher says that my daughter

> always has the explanation right, but apparently needs the

> confirmation.) When she was younger she was really obsessed about me

> dying and she was always afraid of that. These are some of the

> behaviors that I'm concerned about but there are more.

> So, I'm sorry for this long post but I was wondering what you all

> might think about this. Sometimes I think I'm overreacting and

> should cancel her doctor appointment and other times I feel that if

> it is something like OCD or OCDP then she would benefit from

> therapy. What do you think?

> Thanks so much!

>

>

[Guest guest]

Hi ,

If you want your daughter's doc to have a heads up on what you suspect, I

would suggest sending a letter prior to your daughter's appointment. That

way the doc can read it and be prepared to respond to your concerns. I have

done this with my daughter's ped and he appreciated it. Also, that way I was

able to just get it out without having to worry about saying something that

might upset my daughter. Hope this is helpful for you.

P.