Re: Risser cast and spit up? Issues with doctors? HELP!

[Guest guest]

Hi,

1. Are you referring to Children's Hospital in Aurora(Denver)? We

started our son's scoli journey there with Risser casts but did not

have a good experience. Our doctor/staff were totally inaccessible!

Through , the founder of this list, we now have a wonderful

orthopedic surgeon who is trained to do proper EDF/Mehta casts.

Making the switch wasn't difficult. Please feel free to email me

privately if you would be interested in details. : )

2. Our son's reflux became severe with the addition of a cast - just

too much pressure on his tummy. He is now on daily reflux meds.

Because of other medical complications he was out of cast for 7

months and we saw no reflux at all. Now back in the cast, we can

hear it happening throughout the day. Try smaller amounts at a time

and see if that helps, or get your pediatrician's input.

-Patrice

On 05/30/2012 4:09 PM, abbeymuniz wrote:

Hi guys! My daughter is currently on her first Risser

cast for a treatment of a 31 degree curvature and I am

having difficulties with our doctor and his office. I have

called and emailed them numerous times and do not ever get

a call back. So, I have two questions.

1. She is currently being seen at Childrens hospital of

Colorado, Does anyone know if it would be difficult to

switch to a different spine doc for her, and if so, how

would I go about making the change. I am just so unhappy

with the care that has been provided from my doctors

assistant in particular because she never returns my calls

or answers my questions (as if this is an easy process

anyhow, right!?)

2. My daughter is 13 months old and hasnt spit up since

she was 3 months old. Now, all the sudden, after every

meal or bottle (NO MATTER WHAT) she spits up whole food or

milk. And its alot more than typical baby spit up. Anyone

ever had this happen? If so, what did you do to take care

of it?

[Guest guest]

I forgot to add that the Shriner's hospitals apply the proper

EDF/Mehta casts also - I've heard many positive/wonderful things

about the experiences parents here have had with Shriner's. I'm

sure you'll hear from them! : )

On 05/30/2012 4:38 PM, Patrice Scheck wrote:

Hi,

1. Are you referring to Children's Hospital in Aurora(Denver)? We

started our son's scoli journey there with Risser casts but did

not have a good experience. Our doctor/staff were totally

inaccessible! Through , the founder of this list, we now

have a wonderful orthopedic surgeon who is trained to do proper

EDF/Mehta casts. Making the switch wasn't difficult. Please feel

free to email me privately if you would be interested in details.

: )

2. Our son's reflux became severe with the addition of a cast -

just too much pressure on his tummy. He is now on daily reflux

meds. Because of other medical complications he was out of cast

for 7 months and we saw no reflux at all. Now back in the cast, we

can hear it happening throughout the day. Try smaller amounts at a

time and see if that helps, or get your pediatrician's input.

-Patrice

On 05/30/2012 4:09 PM, abbeymuniz wrote:

Hi guys! My daughter is currently on her first Risser

cast for a treatment of a 31 degree curvature and I am

having difficulties with our doctor and his office. I

have called and emailed them numerous times and do not

ever get a call back. So, I have two questions.

1. She is currently being seen at Childrens hospital of

Colorado, Does anyone know if it would be difficult to

switch to a different spine doc for her, and if so, how

would I go about making the change. I am just so unhappy

with the care that has been provided from my doctors

assistant in particular because she never returns my

calls or answers my questions (as if this is an easy

process anyhow, right!?)

2. My daughter is 13 months old and hasnt spit up since

she was 3 months old. Now, all the sudden, after every

meal or bottle (NO MATTER WHAT) she spits up whole food

or milk. And its alot more than typical baby spit up.

Anyone ever had this happen? If so, what did you do to

take care of it?

[Guest guest]

First off if you are not happy with your current doc or treatment center I

would get another opinion! It is a long process & you don't want to

" waste " that precious growth window she is in now with treatment you do

not believe is working. My son started with a 31* curve & 15-20* rotation

with an RVAD of 10 & we casted at exactly 20 months of age at Shriner's in

Salt Lake City Utah. (We live in Eastern NE) We usually fly (there are

direct flights from Denver) but this next time we are going to try the

drive. We LOVE it there! The care coordinator calls back every time no

more then one day later & we have had great results. Our son is now in

what they say will be his last cast (as long as he holds steady in a

brace). This is #4 & when it is removed he will be exactly 29 months old.

He has thrown up a minimal amount. The most being the last 2 weeks in

his 3rd cast, other then that maybe 1-2 times in the first two casts.

Best of luck & if you want any more info on SLC just email me

Amber

> Hi guys! My daughter is currently on her first Risser cast for a treatment

> of a 31 degree curvature and I am having difficulties with our doctor and

> his office. I have called and emailed them numerous times and do not ever

> get a call back. So, I have two questions.

>

> 1. She is currently being seen at Childrens hospital of Colorado, Does

> anyone know if it would be difficult to switch to a different spine doc

> for her, and if so, how would I go about making the change. I am just so

> unhappy with the care that has been provided from my doctors assistant in

> particular because she never returns my calls or answers my questions (as

> if this is an easy process anyhow, right!?)

>

> 2. My daughter is 13 months old and hasnt spit up since she was 3 months

> old. Now, all the sudden, after every meal or bottle (NO MATTER WHAT) she

> spits up whole food or milk. And its alot more than typical baby spit up.

> Anyone ever had this happen? If so, what did you do to take care of it?

>

>

[Guest guest]

Sorry, to hear she is not comfortable in her cast. Im sure you've tried

smaller meals....Is she doing any better today? If not, I would

definitely demand a visit. It could be remedied with a simple trimming?

Please contact me direct if things have not yet improved and/or you havent

had luck reaching them.

Im in Denver.

HRH

(303) 507 2485

> Hi guys! My daughter is currently on her first Risser cast for a treatment

> of a 31 degree curvature and I am having difficulties with our doctor and

> his office. I have called and emailed them numerous times and do not ever

> get a call back. So, I have two questions.

>

> 1. She is currently being seen at Childrens hospital of Colorado, Does

> anyone know if it would be difficult to switch to a different spine doc

> for her, and if so, how would I go about making the change. I am just so

> unhappy with the care that has been provided from my doctors assistant in

> particular because she never returns my calls or answers my questions (as

> if this is an easy process anyhow, right!?)

>

> 2. My daughter is 13 months old and hasnt spit up since she was 3 months

> old. Now, all the sudden, after every meal or bottle (NO MATTER WHAT) she

> spits up whole food or milk. And its alot more than typical baby spit up.

> Anyone ever had this happen? If so, what did you do to take care of it?

>

>

[Guest guest]

You guys have been so great to have! I dont know what we would do without you

all! Thanks! I am thinking that I am going to look into a different doctor,

including Shriner's! Thanks for all your help! Oh, and they loosened her cast at

the bottom on Friday (with much reluctance) but she hasn't spit up since. It was

pretty tight. Thanks!

>

> Hi guys! My daughter is currently on her first Risser cast for a treatment of

a 31 degree curvature and I am having difficulties with our doctor and his

office. I have called and emailed them numerous times and do not ever get a call

back. So, I have two questions.

>

> 1. She is currently being seen at Childrens hospital of Colorado, Does anyone

know if it would be difficult to switch to a different spine doc for her, and if

so, how would I go about making the change. I am just so unhappy with the care

that has been provided from my doctors assistant in particular because she never

returns my calls or answers my questions (as if this is an easy process anyhow,

right!?)

>

> 2. My daughter is 13 months old and hasnt spit up since she was 3 months old.

Now, all the sudden, after every meal or bottle (NO MATTER WHAT) she spits up

whole food or milk. And its alot more than typical baby spit up. Anyone ever had

this happen? If so, what did you do to take care of it?

>