pro efa

[Guest guest]

I am intrigued by this info on pro efa my son Randy 4 Slp is very

interested i need to know if this is somethign i can just buy and

start giving him or do i need to check with his physician first

how much do i give etc please any info asap is greatly apprciated

Amy mother of Randy 4

I would also be interested in talking to anyone who is in ohio and

their child has apraxia

thanks again

[Guest guest]

Hi Amy!

Essential Fatty Acids (EFAs) have throughout history (up till

Mcs) been part of the Homo sapiens natural diet. (well I guess

even still if you count the Filet O' Fish sandwich)

" Diet of Homo sapiens includes fish and seafood's as last Ice Age

impacts Northern Hemisphere. Some scientists theorize that fish oil

was key to the growth of the brain of Homo sapiens. Evidence suggests

that no other hominids eat fish. "

http://www.ngdc.noaa.gov/paleo/ctl/100k.html

Your grandmother and her grandmother's grandmother probably were

given cod liver oil as a very young child without asking any doctor...our

generation on the other hand grew up in such a processed jiffy pop

world that some of the same people that are nervous about giving

their children drops of fish oil don't think twice about feeding

their kids canned meat called Spam. If you blot off the oil from a

slice a pizza you buy your child at a school fair, you'll blot off

more oil than the amount of oil you would squeeze out of one fish oil

capsule. Anyway -check with your doctor of course -more and more are

learning about how the EFAs are helping us in many ways -and not just

for speech.

Here is an archived message on dosage. Unfortunately until there is

more research done there are many unanswered questions -this is just

another one.

" ...As far as dose. Here is a repost that sums up the dosing question

in

a nut shell. Unfortunately right now unless you are looking for the

EFA dose for a kitten or a horse -there are not many guidelines yet

for humans other than we know about one capsule of ProEFA will be

added to formula (and is the dose per bottle or per day? Big

difference there!) ... I've had a chance to ask this question to a

few scientists. I found

that basically, the answer is really " I don't know " or " I don't want

to say because I could be liable " when you dig a bit beneath the

surface. The reason that Efalex recommends a higher dosage is

because that is what they found successful in clinical research-and

until clinical research is done with each type of EFA formula (DHA,

EPA, GLA, etc.) there won't be a clear cut answer to our questions

for every EFA formula out there. Since Efalex did have research done

by Dr. Stordy- I'll be posting another message soon from Dr. Stordy

about this. (co-author of The LCP Solution book with Malcolm Nicholl

http://www.drstordy.com )

Dosing questions need to be answered because what we are seeing is

like a miracle for so many of the children, and their families-and

not just with apraxia. For example-I just received two private

emails from a parent from this list who has three sons with CP -each

one has other issues as well (one with apraxia) -and each child is

remarkably responding to EFAs -as well as her husband. Maybe she

will share here as well. I received private an email from Lori D

(NJ) a forwarded post sent out to the list for Hearing Impaired

about our study and how EFAs can help children who are deaf with

communication (If you go to the archives of speech diet there are a

few posts there too about it) And then with the recent posts here

about the babies responding within a week-and posts like 's,

's or Pam's, etc. where in a few months the apraxic child

progressed from essentially nonverbal to sentences- way faster than

any apraxia therapy alone could have brought an apraxic child in that

amount of time -it just gives you chills to hear these things! And

at the same time it shows the huge range in ages-weights, etc.

It leaves all of us as parents in the void of knowing " what dosage is

best for each individual? " I'm not curious as to what they

recommend on the bottle-or even what the FDA recommends -I'm saying

that right now I'm curious about what is the best dosage-and it's a

question that really doesn't have an answer. We don't know and won't

know until research is done to questions like: is there a maximum

amount you can give a day?, etc.

This is what we can know from the bottles: If you have a child who

is one years old or 7 years old or an adult you can give one (or two)

capsule(s) a day of ProEFA- Efalex says: " Taking this product for the

first time - Adults and Children over five: 4 capsules each morning

and evening with food or drink for the first 12 weeks. Children under

five: 2 to 3 Efamol Efalex capsules each morning and evening with

food or drink for the first 12 weeks. These levels are based on

research studies which indicate it could take up to 12 weeks to fill

the body's stores. After that a reduced is sufficient to maintain

the levels. "

If you know the science and the math you can figure it out-so here

are the two for example that my son Tanner has responded to amazingly

well.

Efalex has:

per 2 capsules (at least times two-and up to times four for each

number here)

DHA (from fish oil-Omega 3) 120 mg.

GLA (primrose oil Omega 6) 24 mg.

AA 10.5

ProEFA has:

per one capsule (as is or times two)

DHA (from fish oil-Omega 3) 99 mg.

EPA (from fish oil Omega 3) 148 mg.

GLA (from borage seed oil Omega 6) 40 mg.

The question still is however-how come a much lower dosage of ProEFA

is working better for most of our apraxic children than the higher

dosage of Efalex. (maybe the higher EPA?!) And...can we increase the

dosage of ProEFA from

one or two a day? And what happens then? I want the factual answer-

just like all of you, but we just don't have it yet!...

Here is part of a post from Michele-the owner of Nordic Naturals

about my newest questions: About dosage-and about EFA products:

" Hi ,

....Same with the doses—we are actually not allowed by law to

recommend a dose, so we have just said 1 per day. Efamol states 8

because that's what they used in their original study with Dr

Stordy. Sure, larger kids can take two with no problem at all. In

fact, if the child has a lot of hydrogenated fats or saturated fats

in their diet, it's best to take more to off set the lack of

absorption caused by these other fats.

Maybe you can help us with this, since you speak to more people than

I do. Start getting weights and doses. If it's a child over, lets

say, 60 pounds, maybe they can take 2 per day and then we'll get

their results.

.... I have concerns about some omega-3's. We just did an independent

study with competing products, and they all showed lead and very high

peroxides (rancidity), whereas ours did not. People have to make

sure they are getting a pure product, and at least I know ours is

VERY pure.

Lets keep in touch on these issues.

Michele "

Now keep in mind that some parents of young children way under 60

pounds are already using 2 capsules a day. I do get quite a few

private emails about dosage and we all see them here too- I

just wanted to send this out to let you guys know that no matter how

professionally it's said-the bottom line is nobody really knows yet

what is best-which is why research needs to be done in this area for

EFAs. In the meantime, look at the dosages on Efalex since research

was done with Efalex -and compare - then use common sense and

parental instincts together with speaking with medical or other

professionals you trust!

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