Re: Digest Number 657

February 2, 2001

In a message dated 2/2/01 12:17:38 AM Pacific Standard Time,

writes:

> So if the district requires them to do their OWN testing, this would be why

> they want to do it.

>

> Joan,

I just think you hit the nail on the head.....I did ask, in a ass backwards

sorta way, and they said it is a state requirement thing.........boy, they

love paperwork!

Since the diagnostician said it wouldn't change a thing as far as services

go, I am not too worried about it.....what bothers me, is that the school

gave me the impression that theirs is the final say! I told them " even

though the doctor gave you a written statement, you still have to do your own

testing? " and she said " yes " .......

February 2, 2001

At 04:10 PM 2/2/01 EST, you wrote:

>go, I am not too worried about it.....what bothers me, is that the school

>gave me the impression that theirs is the final say! I told them " even

>though the doctor gave you a written statement, you still have to do your

own

>testing? " and she said " yes " .......

Nah, they don't get the final say. It just depends on how hard you want to

go after them. If you disagree with their testing, you can request an

independent eval at their expense. Then, if that eval agrees with your

doctor eval, you have two against one. heh heh. But really, you could

probably request mediation based on your private evaluations if they are

different from the school's evaluations.

They only have as much power as you let 'em. An we won't let you get steam

rollered.

Hang in there. It's not fun, I know.

j

February 3, 2001

In a message dated 2/2/01 4:37:20 PM Eastern Standard Time, Ltb3105@...

writes:

<< Since the diagnostician said it wouldn't change a thing as far as services

go, I am not too worried about it.....what bothers me, is that the school

gave me the impression that theirs is the final say! I told them " even

though the doctor gave you a written statement, you still have to do your

own

testing? " and she said " yes " .......

>>

The SD here used KKI's eval; they didn't do their own. The psych did show

much apprehension and said that he's NEVER seen a child with DS and autism.

THEN he met Maddie; sure changed his tune. He wrote up a report based on

his observations, but did not do an eval.

Donna

May 20, 2001

I find it interesting that the FDA is closing clinics offering chelation

therapy in Mexico as it is available here in Tampa, FL and not only are they

not trying to close it..an article about the therapy was written up in the

Tampa Tribune (the local conservative rag) publicizing it in a good way

recently. They also do aloe vera IVs as well and tell me it's completely

legitimate.

May 21, 2001

Chelation is a very legitimate therapy in the US, but only because there are

many ACAM docs who do it and they have many outspoken supporters who have

benefitted from it. Most conventional docs sneer at chelation as unproven

though. Of course no " unproven " therapy will ever be " proven " unless it can

first show that it will not usurp a a lucrative standard-of-care therapy.

Under US law, if a treatment is approved for one ailment, then a physician

may use it to treat any ailment. EDTA can be used to chelate certain toxic

heavy metals. Therefore it is difficult to stop the physicians from using

it for anything they desire.

As to the aloe vera IVs, the US feds are going full bore against Alan

Hoffman for his cesium and aloe vera IV therapies. They accuse Hoffman of

misrepresentation of his credentials and of causing the deaths of a number

of patients.

RE: [ ] Digest Number 657

>

> I find it interesting that the FDA is closing clinics offering chelation

> therapy in Mexico as it is available here in Tampa, FL and not only are

they

> not trying to close it..an article about the therapy was written up in the

> Tampa Tribune (the local conservative rag) publicizing it in a good way

> recently. They also do aloe vera IVs as well and tell me it's completely

> legitimate.

>

September 3, 2001

In a message dated 9/3/01 3:06:56 AM, writes:

<< I have had plenty of parents tell my that their non-ds kids had some of

the

same problems my daughter experienced and we believe it is the middle school

environment and the age of the kids ( read LACK of maturity and trying new

attitudes out) that was behind it. >>

Cheryl,

This was exactly what I was expecting when by daughter entered middle

school, and I was scared to death (In fact I was ready to pull her out and

homeschool her) that is why I was so surprised that she has had such a

positive experience. The staff at this school has really worked hard at

making a positive atmosphere for ALL children, and they just don't put up

with a lot of garbage. It's not perfect, by far, but

the entire experience has been a good thing for Holly. She is growing and

learning. When I go and visit the school, so many of the kids stop and greet

her, (including boys, which really floored me!) and they stop and greet her

if we run into them in public. She has a small circle of friends that she

hangs out with and gets calls from.

Maybe I'm just extremely fortunate, but I just wanted to be an encouragement,

that middle school doesn't HAVE to be horrible.

Blessings,

M.

Mom to 16, IDDM, Holly, DS and , 10, extremely typical.

September 3, 2001

In a message dated 9/3/01 3:06:56 AM, writes:

<< I have had plenty of parents tell my that their non-ds kids had some of

the

same problems my daughter experienced and we believe it is the middle school

environment and the age of the kids ( read LACK of maturity and trying new

attitudes out) that was behind it. >>

Cheryl,

This was exactly what I was expecting when by daughter entered middle

school, and I was scared to death (In fact I was ready to pull her out and

homeschool her) that is why I was so surprised that she has had such a

positive experience. The staff at this school has really worked hard at

making a positive atmosphere for ALL children, and they just don't put up

with a lot of garbage. It's not perfect, by far, but

the entire experience has been a good thing for Holly. She is growing and

learning. When I go and visit the school, so many of the kids stop and greet

her, (including boys, which really floored me!) and they stop and greet her

if we run into them in public. She has a small circle of friends that she

hangs out with and gets calls from.

Maybe I'm just extremely fortunate, but I just wanted to be an encouragement,

that middle school doesn't HAVE to be horrible.

Blessings,

M.

Mom to 16, IDDM, Holly, DS and , 10, extremely typical.

September 3, 2001

In a message dated 9/3/2001 10:31:12 AM Eastern Daylight Time,

muracat@... writes:

> It's not perfect, by far, but

> the entire experience has been a good thing for Holly. She is growing and

> learning. When I go and visit the school, so many of the kids stop and

> greet

> her, (including boys, which really floored me!) and they stop and greet

> her

> if we run into them in public. She has a small circle of friends that she

> hangs out with and gets calls from.

>

My daughter has experienced exactly the same thing, and so did my son when he

is in middle school. I think most kids mature during middle school, probably

why they are kinder and nicer to each other in high school. I am not saying

that none of that takes place ... but unless you have staff willing to go the

extra mile, as parents you must be very diligent in monitoring, there are

many problems that can crop up and middle school just seems to be the place

where more of this happens.

My daughter's inclusion in middle school was great, she was very well

received by her peers. She still has friends from middle school in her high

school classes. In middle school she even had a social club that met for tea

with the guidance counselor once a week. Her seventh grade core of teachers

still write her and send her birthday and Christmas gifts! She participated

in more than I had imagined but .... there were administrators who thought

she should be in self contained, there were teachers unwilling to follow her

IEP, and there were kids who did not like her. We learned together how to

deal with all of them. That is what my warning for other parents is, be

prepared and be diligent, be a watchdog!

Cheryl in VA

September 3, 2001