Re: I am a parent of a child with special needs

[Guest guest]

,

As a parent to two with special needs and speech difficulties...I received

information about ProEfa through this web site and mailing address!!!! I

would have loved to have had someone talk to me matter of factly about the

possibilities!!!!! Try to ask them if they are open to it....explain that

the ProEfa- or omega 3 is just a supplement like a vitamin and their doctors

should have no trouble with that.......Then if they are interested feel free

to explain all and offer them information in any way that you can....I know

it would have saved me endless hours of searching and looking online.......

Hope this helps....

Please feel free to give my email add to any parent who is interested and

would like to talk to another parent...

Hugs,

, MOM to Aidan & Devlin former 30 weeker preemies, now 2 years,

global delays, NO speech!!

MOMMY desperate to hear the word.

,

Mom to Aidan & Devlin, 30 weekers, now 2 years, IUGR, TTTS, Apnea

(resolved), Bradycardia (resolved), ROP (resolved), pulmonary Stenosis,

intrahepatic portal shunt (liver now resolved), delayed in every area (

global delays), speech delays...now looking into apraxia......

But HAPPY, BEAUTIFUL baby boys.....a constant inspiration and source of joy

to their parents.

[Guest guest]

Why not leave the book some articles or books in the waiting room.

There are some good articles in the bookmark section of this list

serve.

These kids are lucky to have an SLP open to alternative type therapy.

My son's SLP in school thinks I am imaging the progress and is not

open to it.

> Hi all,

>

> I am a parent of a child with special needs and a

> speech/language pathologist in a private practice

> working with infants, toddlers and preschoolers. I work

> very closely with all my families and am extemely

> sensitive to how I comment, make suggestions and

> recommendations based on each family's coping skills at

> the current time.........so with that said:

>

> I have been using Omega 3 with my son for a while (he is

> older-11 and has sensory integration difficulties) and

> had some good success. When the ProEFA began getting

> the attention of SLP's and developmental pediatricians I

> began feeling it was something I should share with some

> of the parents of children that I work with. Some of

> the parents are still in denial or grieving their

> child's disability and resistant or on overload to hear

> about alternatives. I am trying to figure out how to

> present, in a very layperson way, some information about

> the ProEFA and how it might be beneficial in their

> child's treatment. Would putting catalogs of Nordic

> Natural on the magazine table do it? Do I discuss the

> anectodal stories that I know about? Is their a simple

> description that I should present verbally or written?

> Some parents wouldn't even consider this without their

> pediatrician's approval and many pediatricians just do

> not have this research.

> I'm sorry to go on for so long but I feel conflicted

> making " medical " recommendations (even though it is a

> food supplement)with specific families. Many of the

> families that I do work with are easily approached...but

> as I said I can empathize with the feeling of too many

> recommendations!!!

> Thanks-

> I'd love to hear your input.

>

[Guest guest]

Yes Tammy it was me...Thanks, glad to know that I am not the only one with

this problem.....I am willing to try anything....LOL

Hugs,

, MOM to Aidan & Devlin former 30 weeker preemies, now 2 years,

global delays, NO speech!!

MOMMY desperate to hear the word.

,

Mom to Aidan & Devlin, 30 weekers, now 2 years, IUGR, TTTS, Apnea

(resolved), Bradycardia (resolved), ROP (resolved), pulmonary Stenosis,

intrahepatic portal shunt (liver now resolved), delayed in every area (

global delays), speech delays...now looking into apraxia......

But HAPPY, BEAUTIFUL baby boys.....a constant inspiration and source of joy

to their parents.

[Guest guest]

I would recommend to parents that they do the research themselves. Even

suggesting them reading " The LCP Solution " might actually encourage some

parents to be interested in the benefits of the EFA's.

I am the type of parent that would gladly try anything safe to help my child.

Many parents will always live in denial. Good luck and keep up the good

work.

Janet

[Guest guest]

Hi

I printed out a BBC news report and left about 20 of them in a pile

at my last parents group. They were all gone in 10 minutes....

If you're interested the article is at

http://news.bbc.co.uk/hi/english/health/newsid_1816000/1816938.stm

Sorry this isn't clickable, use cut & paste. I put on a couple of

websites addresses too: the equazen one and the lcpsolutions one

London UK

>

> I have been using Omega 3 with my son for a while (he is

> older-11 and has sensory integration difficulties) and

> had some good success. When the ProEFA began getting

> the attention of SLP's and developmental pediatricians I

> began feeling it was something I should share with some

> of the parents of children that I work with. Some of

> the parents are still in denial or grieving their

> child's disability and resistant or on overload to hear

> about alternatives. I am trying to figure out how to

> present, in a very layperson way, some information about

> the ProEFA and how it might be beneficial in their

> child's treatment. Would putting catalogs of Nordic

> Natural on the magazine table do it? Do I discuss the

> anectodal stories that I know about? Is their a simple

> description that I should present verbally or written?

> Some parents wouldn't even consider this without their

> pediatrician's approval and many pediatricians just do

> not have this research.

> I'm sorry to go on for so long but I feel conflicted

> making " medical " recommendations (even though it is a

> food supplement)with specific families. Many of the

> families that I do work with are easily approached...but

> as I said I can empathize with the feeling of too many

> recommendations!!!

> Thanks-

> I'd love to hear your input.

>

[Guest guest]

I think it was you that posted about your boys not drinking from sippy cups. My

son would not take sippy cups at first. We went through many different types.

I had used the spill proof ones with my daughter & thought that was so great, I

have older boys & this was new to me. could not suck the liquid from those

spill proof ones at first. We used a pop top type that Playtex makes. Then

later he used the old fashioned Tupperware ones that a lid just pops on that has

a small spout. Evenually he got where he could use the no spill ones, but it

took a long time!

Tammy I. in FL mom to 3.10 apraxic, 6, 17 & 21

,

As a parent to two with special needs and speech difficulties...I received

information about ProEfa through this web site and mailing address!!!! I

would have loved to have had someone talk to me matter of factly about the

possibilities!!!!! Try to ask them if they are open to it....explain that

the ProEfa- or omega 3 is just a supplement like a vitamin and their doctors

should have no trouble with that.......Then if they are interested feel free

to explain all and offer them information in any way that you can....I know

it would have saved me endless hours of searching and looking online.......

Hope this helps....

Please feel free to give my email add to any parent who is interested and

would like to talk to another parent...

Hugs,

, MOM to Aidan & Devlin former 30 weeker preemies, now 2 years,

global delays, NO speech!!

MOMMY desperate to hear the word.

[Guest guest]

Thanks Suzi,

We have been trying sippy cups for about a year and have mentioned the

problem to everybody in the med feild....needless to say we are brushed

off....they just simply prefer a bottle like amny other their age.....Oh

brother

Will try drinking boxes and sports drink!!!

Thanks,

[Guest guest]

My daughter wouldn't take a sippy cup either. I tried all different

kinds of cups. The no-spill ones were really hard because you have

to work at getting the liquid out.

I finally got a sports bottle, and she could do that. After she got

comfortable with the sports bottle, we switched to a sippy cup (that

could be spilled. After that, we went to a no-spill sippy cup.

Somewhere in there, I also introduced the little juice boxes with a

straw. I had to squeeze the box and make the juice come up at

first, then she got the idea that she had to suck on it.

I also want to point out that my pediatrician did nothing when I

mentioned our problems with sippy cups. He blew me off. Of course,

now we know the problem, apraxia, motor planning problems,

dysarthria. The drinking problems are a clue that something is

happening and should be evaluated by and occupational therapist or a

speech therapist.

Good luck.

>

> I think it was you that posted about your boys not drinking from

sippy cups. My son would not take sippy cups at first. We went

through many different types. I had used the spill proof ones with

my daughter & thought that was so great, I have older boys & this

was new to me. could not suck the liquid from those spill

proof ones at first. We used a pop top type that Playtex makes.

Then later he used the old fashioned Tupperware ones that a lid just

pops on that has a small spout. Evenually he got where he could use

the no spill ones, but it took a long time!

>

> Tammy I. in FL mom to 3.10 apraxic, 6, 17 &

21

[Guest guest]

I would make a handout to give to parents. It could list websites

that are helpful, like this one. It could mention different books

to read. It could mention different agencies that might help.

That way if a parent is interested in the information they'll look

into it.

> Hi all,

d many pediatricians just do

> not have this research.

> I'm sorry to go on for so long but I feel conflicted

> making " medical " recommendations (even though it is a

> food supplement)with specific families. Many of the

> families that I do work with are easily approached...but

> as I said I can empathize with the feeling of too many

> recommendations!!!

> Thanks-

> I'd love to hear your input.

[Guest guest]

This is the other thing that I did. I never gave them a bottle

before I fed them solid food. I would give them their solid food,

and I offered the drink with their meal. I usually offered them

apple juice. After they ate their food and tried to drink, then I

would give them a bottle if they were still hungry. I never ever

gave anything but formula/milk in a bottle. I made sure they were

highly motivated for those cups.

> Thanks Suzi,

> We have been trying sippy cups for about a year and have mentioned

the

> problem to everybody in the med feild....needless to say we are

brushed

> off....they just simply prefer a bottle like amny other their

age.....Oh

> brother

> Will try drinking boxes and sports drink!!!

> Thanks,

>

[Guest guest]

Hi again Suzi,

Thanks you for thinking of it sooo much....

I have never tried to withhold the bottle until after meals....My guys eat

alot of food......they are always hungry!!!! They will not take juice or

drink anything other than milk at all........They refuse and have refused

since they were about 11 months or so....before that they would occasionally

drink juice especially when they had colds etc..

Then one day t they just stopped!!!!

We have tried offering them water, juice and milk in cups......nothing works

so far...I have started to water down their milk after breakfast.....they do

not seem to care if it is watered down as long as it is milk.....and room

temp at that!!!!!! LOL

I will try to offer them breakfast right away in the morning instead of a

drink and continue from their...

Again thanks,

, MOM to Aidan & Devlin former 30 weeker preemies, now 2 years,

global delays, NO speech!!

MOMMY desperate to hear the word.

,

Mom to Aidan & Devlin, 30 weekers, now 2 years, IUGR, TTTS, Apnea

(resolved), Bradycardia (resolved), ROP (resolved), pulmonary Stenosis,

intrahepatic portal shunt (liver now resolved), delayed in every area (

global delays), speech delays...now looking into apraxia......

But HAPPY, BEAUTIFUL baby boys.....a constant inspiration and source of joy

to their parents.