Re: 3yr old, and mom exasperated

[Guest guest]

hello...i would be frustrated and angry too ...there

are definitely tests that can determine what your son

needs...contact your school district and insist that

they have him evaluated by professionals, be it speech

therapists, learning disablities consultant, special

education teachers, neurodevelopmental

pediatricians...there are definitely people who can

help your son...perhaps a local hospital with a

children's department can refer you (i don't know

what state you live in) if he has apraxia, the modes

of speech therapy are different from " traditional "

therapy and perhaps that's why your son hasn't made

progress esp. after a year of therapy...you shoud have

seen some improvement by now...

be relentless and don't give up...we've all been there

at one point, i know i have...good luck....hope this

bit helps...joann (NJ)

--- soccerbaseballmom <psoccermom104@...> wrote:

> Hey all, I am a SAHM of 2 wonderful boys. My

> youngest is 3 1/2 and

> has a vocabulary of 15-20 words, some signs. He has

> been in speech

> therapy for well over a year now, and only after I

> insisted after

> being told he was just a " little " delayed. His

> frustration level is

> so high now, as well as mine. He is starting to

> cling to me, crying

> more than not. When I tell him to tell me what is

> wrong with words or

> signs he just freaks out more. He has started

> wetting the bed at

> night again, as well as odd sleeping patterns, and

> weight loss. I

> feel as though this is comsuming my every thought of

> every day! My

> other child is beginning to suffer too, because of

> the stress this is

> causing. I feel as though I do not know where to

> turn. My

> pediatrician just says " lets wait and see " and the

> Child Development

> Services, in our state says that there are no tests

> that can be done

> for his age level, that I have to again, " wait " till

> he is closer to

> school age. What good is waiting? I am beyond the

> crying stage now, I

> am at the ANGRY stage and I NEED HELP! Does anyone

> have any

> suggestions for me? Thank you

[Guest guest]

I can relate to what you are feeling. I had a really hard time with

my apraxic daughter from about age 3 to about 4 1/2. I even went on

anti-depressants for awhile just so that I could handle it.

This is a couple of thoughts. Does he still take naps? He may be

changing his sleep patterns and not need naps anymore.

My " normal " 7 year old was dry at night for about 6 months when he

was 3, and then he started having accidents. I think it was because

he started getting constipated at the same time. Constipation can

make it easier to have an accident. He doesn't have as many as he

use to, but he still has an accident about once or twice a month.

His pediatrician says not to worry about the accidents. We've

checked him for bladder infections, and some other tests but I can't

remember.

You might want to talk to your speech therapist about alternate

forms of communication. He might be better able to communicate with

a picture book. When my daughter gets frustrated, I always keep

communication down to just yes or no. She doesn't even have to talk.

I think it is very hard for apraxic children because they know what

they want to say, and they cannot express it. I think a lot of

apraxic children are very bright, and it must be very difficult for

them.

Good luck!

Suzi

> Hey all, I am a SAHM of 2 wonderful boys. My youngest is 3 1/2 and

> has a vocabulary of 15-20 words, some signs. He has been in speech

> therapy for well over a year now, and only after I insisted after

> being told he was just a " little " delayed. His frustration level

is

> so high now, as well as mine. He is starting to cling to me,

crying

> more than not. When I tell him to tell me what is wrong with words

or

> signs he just freaks out more. He has started wetting the bed at

> night again, as well as odd sleeping patterns, and weight loss. I

> feel as though this is comsuming my every thought of every day! My

> other child is beginning to suffer too, because of the stress this

is

> causing. I feel as though I do not know where to turn. My

> pediatrician just says " lets wait and see " and the Child

Development

> Services, in our state says that there are no tests that can be

done

> for his age level, that I have to again, " wait " till he is closer

to

> school age. What good is waiting? I am beyond the crying stage

now, I

> am at the ANGRY stage and I NEED HELP! Does anyone have any

> suggestions for me? Thank you

[Guest guest]

I guess they mean the school system won't test?? I'm in Massachusetts and

at Children's Hospital in Boston they tend to wait til 3 to run neurological

testing etc on a child with mild delays - same goes with apraxia - that's my

sense of things, anyway, although if I threw a major fit, I'm sure I could

get my 2 1/2 year old in to see a neurologist at this point. I don't get

it. I'm pretty sure you can have his pediatrician refer you out to a

pediatric/child neurologist, though. Just stage a big fit in his office

first thing some morning and demand that a full work up be done on your

child to pinpoint what's going on with his expressive language delay and to

gather recommendations of how much and what type of direct therapy he needs.

I remember my son's doctor telling me to feed my son french fries when he

was totally off the weight charts (all while he was unbeknownst to us

aspirating on food and refluxing like mad and suffering from a class A

feeding disorder) and I just lost it with the guy, saying " How DARE you tell

me to feed him a french fry. You try. You say it like I have a CHOICE - HE

CAN'T EAT A FRENCH FRY!!! " As a result, he was scheduled at the local

hospital for a swallow study within a month. So good! Be mad! If it feels

unacceptable, it probably is!

Betsy

>From: " soccerbaseballmom " <psoccermom104@...>

>Reply-

>

>Subject: [ ] 3yr old, and mom exasperated

>Date: Tue, 23 Apr 2002 19:30:51 -0000

>

>Hey all, I am a SAHM of 2 wonderful boys. My youngest is 3 1/2 and

>has a vocabulary of 15-20 words, some signs. He has been in speech

>therapy for well over a year now, and only after I insisted after

>being told he was just a " little " delayed. His frustration level is

>so high now, as well as mine. He is starting to cling to me, crying

>more than not. When I tell him to tell me what is wrong with words or

>signs he just freaks out more. He has started wetting the bed at

>night again, as well as odd sleeping patterns, and weight loss. I

>feel as though this is comsuming my every thought of every day! My

>other child is beginning to suffer too, because of the stress this is

>causing. I feel as though I do not know where to turn. My

>pediatrician just says " lets wait and see " and the Child Development

>Services, in our state says that there are no tests that can be done

>for his age level, that I have to again, " wait " till he is closer to

>school age. What good is waiting? I am beyond the crying stage now, I

>am at the ANGRY stage and I NEED HELP! Does anyone have any

>suggestions for me? Thank you

>

>

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[Guest guest]

first of all, i would say, if youre not happy with your childs pediatrician,

its time for a change.

with our sara, (22 months severe speech and physical developmental delays

and alot of other problems) our original pediatrician was taking the " wait

and see " approach.

we switched her to another pediatrician, and i cannot begin to express how

happy i am we made this change. in the 3 months we have been seeing her,

more testing, referrals and therapies have been initiated than in the

previous 18 months.

i do definitely understand your frustration. but there are some doctors out

there that will take your concerns seriously. i hope you can find one!!

and if you can get your insurance to pay for it...a neurological evaluation

isnt a bad idea. sometimes they can notice something and point you in the

riht direction for treatment/therapy.

good luck

tami.