Guest guest Posted October 14, 2003 Report Share Posted October 14, 2003 Hey , My name is Sue and I have MCTD, Fibro and Reynaulds. I have two girls ages 8 & 10. I was on plaquenil when I ended up preggers. My first was not planned and I was taken off all my meds except prednisone. I went on 20 mg a day for the entire pregnancy. I was sick with mono, strp, sinucitis, larengytis, barr epstein and was in the hospital with severe dehydration for a week. Then I had to deal with being bed ridden for two months due to the mono. I also had a problem with pre-term labor starting a six months and continuing until I delivered at 38 wks. She had no problems due to the meds I was on the first 7 weeks I was pregnant and is health now. But it was a worry. My second was planned and again I was taken off everything except prednisone but I did have to deal with gestational diabetes and she was delivered at 8 months. After that she had a problem with projectial vomiting if she was fed anything more then 4 ounces of formula at one feeding. That continued until she was six months old. The drs. denied it but I am convienced that her problems with keeping formula down was due to her early delivery. You also will not be able to breast feed if your Rheumy decides that you need to go back on all your meds at the time of your delivery. And he/she may need to to keep you from going into a major flare. You might want to concider adopting due to your health problems. You also need to be aware that the meds you are on can cause temporary sterility, so you may not be able to get pregnant while your husband is home on leave. Think long and hard on it. I don't regret my girls, but either one of my pregnancies could have killed me or my girls. That's my advice to you anyway. I hope this helps. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 Hi - wanted to let you know I have Dermatomyositis and its onset was following the birth of my second child, I used AP and did achieve remission (minocycline), I had a relapse in 2001 after the birth of my 3rd child and then used erythromycin because it was safe to use while breastfeeding (and also safe during pregnancy). You might check out taking erythromycin for your RA. I was on 250mg 2x daily. Also - if you post on www.rheumaticsupport.net there is a gal who has RA and pregnant with her 11th child! Her name is Ibby... I'm sure she can provide you with more info. Liesl Message: 6 Date: Wed, 11 Jan 2006 14:41:18 -0000 From: " daisy1972 " <daisy1972@...> Subject: Pregnany and RA Can anyone share info on pregnancy and SEVERE RA. Weaning off of traditional meds such as meth. and Embrel? Is it possible without the dibilitating pain and disabilility of not being able to do anything? I know breastfeeding may not be an option due to the need of most likely getting back on meds after delivery. Please shar eany information...Thank you in advance! Quote Link to comment Share on other sites More sharing options...
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