Re: Down Syndrome and Apraxia

[Guest guest]

> Does anyone else out there have a child with Apraxia and Downs? My

> son is 3 1/2, and I would love to talk to someone in the same boat.

> Thanks~ ~

Hello -

Welcome to the group! It's wonderful to have you here with us. As for

parent connections, aside from our supportive group, you can find other

families at the Down Syndrome Listserv, whose children also have Downs

and Apraxia. Below I have also provided some links to comprehensive

sites which include Downs and Apraxia/Delayed Speech. I also added

some inspiring success stories of outstanding individuals that have

Down Syndrome. Best wishes to you.

Mustafa

Mom to Khalid, Jadd, Danya

(both son's have Apraxia)

Accessing The Down Syndrome Listserv

http://www.nas.com/downsyn/dslistserv.html

Riverbend Down Syndrome Parent Support Group

Developmental apraxia of speech and intelligibility in children with

Down syndrome

http://www.altonweb.com/cs/downsyndrome/index.htm?page=home.html

The Association for Children with Down Syndrome, Inc.

serving children with Down syndrome and other developmental

disabilities

http://www.acds.org/

National Down Syndrome Society Web site

The Internet's most comprehensive information source on Down syndrome.

http://www.ndss.org/main.html

Down Syndrome: Local Support Groups

http://www.ndss.org/weblinks/weblinks.html#locals

Uno Mas! Down Syndrome Online

http://www.unomas21.com/

Sign Language in Down Syndrome

http://www.tbinet.org/einstein-syndrome/development/sign_language.htm

National Down Syndrome Congress

http://www.ndsccenter.org/default.asp

Comprehensive Speech and Language Intervention

for School-Aged Children with Down Syndrome1

http://www.denison.edu/dsq/kumin.shtml

DOWN'S SYNDROME AND STUTTERING

http://www.stuttersfa.org/br_downs.htm

Dysfluency, Stammering and Down's Syndrome

http://www.stammering.org/downs.html

Language Development in Adolescents with Down Syndrome

http://www.waisman.wisc.edu/adollang/index.html

Love And Learning Teaching Reading and Language

http://www.loveandlearning.com/

ACN- Augmentative Communication News

People with Down Syndrome: Characteristics Affecting the

Development of Communication Skills.

http://www.augcominc.com/articles/5_2_1.html

Down Syndrome: For New Parents

http://www.downsyn.com/

Formative Fun - Special Needs

Enhancing the social skills of a child with Down Syndrome.

http://www.formative-fun.com/special_downs.htm

DownsCity

Online Down Syndrome community

http://www.downscity.com/

Down Syndrome Magazine

http://www.pirchei.co.il/specl_ed/down/archives/

DOWN'S HEART GROUP

http://www.downs-heart.downsnet.org/

" The Down's Heart Group is a UK charity which offers support and

information to families who have a member with Down's Syndrome and

congenital heart defects. "

Down Syndrome: Health Issues

http://www.ds-health.com/

Down Syndrome WWW Page

http://www.nas.com/downsyn/index.html

Utah Down Syndrome Foundation

http://www.udsf.org/

UK resources for Down's Syndrome

http://www.43green.freeserve.co.uk/uk_downs_syndrome/ukdsinfo.html

Down Syndrome on the Internet

http://www.downsyndrome.com/

Down's Syndrome, Computers and the Curriculum

http://www.inclusive.co.uk/infosite/bblack.shtml

KENNEDY KRIEGER INSTITUTE DOWN SYNDROME GUIDE ARTICLES

SPEECH AND LANGUAGE DEVELOPMENT IN CHILDREN

http://www.kennedykrieger.org/familyreso/downsyndrome/dsspeech.html

Success Stories-

Teenager with Down Syndrome (Dan's Page)

http://hometown.aol.com/karenl2888/dan.html

Behnke: An Alaskan Artist

http://www.maserith.com/brownbear/

Hu's Web site: his story and paintings

http://www-atdp.berkeley.edu/1623/students/jason/.html

Jurogue 's Web site

http://users.psln.com/sharing//

Improving the Communication of People with Down Syndrome

Edited by Jon F. , Ph.D., Mark Leddy,

Ph.D., CCC-SLP, & A. Leavitt, M.D.

http://www.pbrookes.com/store/books/miller-3505/

[Guest guest]

Hello I was just wanting to post as I think I already have but havent really

gotten in solid info. My dd is 3, she happens to have Ds. She is verbal and

signs. Her ST told us Friday that she wasnt sure but she thought we might be

looking at Apraxia. She said she kept teetering back and forth. She gave me a

website to look at Im just not sure. I came here and another group and most

everyone else has " typical " kid with Apraxia....anybody have any thoughts on

this?

~Angie

May God Bless You As He Has Us

www.babiesonline.com/babies/s/sydniebrooke

mom to Sydnie (3, Ds), 3 angels in Heaven

http://www.earningforce.com/go.cgi?sydniesmom5

[Guest guest]

Hi Angie, I have never posted here before, but I also have a 3 year

old dd with DS. I am just beginning to learn about speech disorders

so I am no expert here! Have you read the article on DS and Apraxia

by Libby Kumin at disabilitysolutions.org? It is volume 5, issue 2.

There are some other articles about speech there too. I am just now

reading it(it's kind of long so you may want to print it). There are

some resources listed at the end of the article that sound good. If I

run across any other info., I will pass it along. Feel free to write

to me privately if you wish. We seem to have a lot in common!

Becky, mom to Allie (3 1/2, DS)

> Hello I was just wanting to post as I think I already have but

havent really gotten in solid info. My dd is 3, she happens to have

Ds. She is verbal and signs. Her ST told us Friday that she wasnt

sure but she thought we might be looking at Apraxia. She said she

kept teetering back and forth. She gave me a website to look at Im

just not sure. I came here and another group and most everyone else

has " typical " kid with Apraxia....anybody have any thoughts on this?

> ~Angie

> May God Bless You As He Has Us

> www.babiesonline.com/babies/s/sydniebrooke

> mom to Sydnie (3, Ds), 3 angels in Heaven

> http://www.earningforce.com/go.cgi?sydniesmom5

[Guest guest]

7/15/03

Hi Angie:

what's typical about apraxia. Many children have multiple issues going on at

the same time-DS, Autistic spectrum, PPD, SID, etc, etc. The websites that

helped me the most about being sure about what this " apraxia " was the

neurologist diagnosed. The websites are www.apraxia.org and

http://www.apraxia.cc

There are also various links to other great information about various other

developmental delays.

good luck

Selena

Re: [ ]down syndrome and apraxia

Hello I was just wanting to post as I think I already have but havent really

gotten in solid info. My dd is 3, she happens to have Ds. She is verbal and

signs. Her ST told us Friday that she wasnt sure but she thought we might be

looking at Apraxia. She said she kept teetering back and forth. She gave me a

website to look at Im just not sure. I came here and another group and most

everyone else has " typical " kid with Apraxia....anybody have any thoughts on

this?

~Angie

May God Bless You As He Has Us

www.babiesonline.com/babies/s/sydniebrooke

mom to Sydnie (3, Ds), 3 angels in Heaven

http://www.earningforce.com/go.cgi?sydniesmom5

[Guest guest]

Selena thank you so much. I appreciate all that you can give me .......I think

Im actually getting stressed about this.

~Angie

May God Bless You As He Has Us

www.babiesonline.com/babies/s/sydniebrooke

mom to Sydnie (3, Ds), 3 angels in Heaven

http://www.earningforce.com/go.cgi?sydniesmom5

Re: [ ]down syndrome and apraxia

Hello I was just wanting to post as I think I already have but havent

really gotten in solid info. My dd is 3, she happens to have Ds. She is verbal

and signs. Her ST told us Friday that she wasnt sure but she thought we might

be looking at Apraxia. She said she kept teetering back and forth. She gave me

a website to look at Im just not sure. I came here and another group and most

everyone else has " typical " kid with Apraxia....anybody have any thoughts on

this?

~Angie

May God Bless You As He Has Us

www.babiesonline.com/babies/s/sydniebrooke

mom to Sydnie (3, Ds), 3 angels in Heaven

http://www.earningforce.com/go.cgi?sydniesmom5

[Guest guest]

http://www.disabilitysolutions.org

volume 5 issue 3

Lessons by Abigail:

Educating a Seasoned Speech-Language Pathologist

Named " Mom "

Olson, M.A., CCC-SLP

this is an excellent article !!! coming from a mothers heart.

She has

given many home suggestions (very pratical) as well as a slp

perspective.

Our daughter has dyspraxia of speech.

This article was very helpful.

[Guest guest]

7/16/03

Dear Angie:

Please don't get stressed about this. Believe it or not, there is a lot of

information to digest. There are so many " issues " out there. If it's hard for

the professionals to diagnosis and treat properly, imagine what us lay people go

through. It feels overwhelming right now, but in time, as you keep reading and

understanding the information, you'll actually feel empowered and stronger to do

what has to be done. This is a long haul, it will never end, but what we gain

for our children is the best for their futures.

keep on trying and just love your child and yourself. It will help you both

Selena

[Guest guest]

What is the difference between dyspraxia and apraxia?

~Angie

May God Bless You As He Has Us

www.babiesonline.com/babies/s/sydniebrooke

mom to Sydnie (3, Ds), 3 angels in Heaven

http://www.earningforce.com/go.cgi?sydniesmom5

Re: [ ]down syndrome and apraxia

http://www.disabilitysolutions.org

volume 5 issue 3

Lessons by Abigail:

Educating a Seasoned Speech-Language Pathologist

Named " Mom "

Olson, M.A., CCC-SLP

this is an excellent article !!! coming from a mothers heart.

She has

given many home suggestions (very pratical) as well as a slp

perspective.

Our daughter has dyspraxia of speech.

This article was very helpful.

[Guest guest]

Selena I know it will make us both very strong. Right now I just dont know what

to do......even though it has only been since Fri since the ST mentioned it I

feel like Im wasting time on helping her!

~Angie

May God Bless You As He Has Us

www.babiesonline.com/babies/s/sydniebrooke

mom to Sydnie (3, Ds), 3 angels in Heaven

http://www.earningforce.com/go.cgi?sydniesmom5

RE: [ ]down syndrome and apraxia

7/16/03

Dear Angie:

Please don't get stressed about this. Believe it or not, there is a lot of

information to digest. There are so many " issues " out there. If it's hard for

the professionals to diagnosis and treat properly, imagine what us lay people go

through. It feels overwhelming right now, but in time, as you keep reading and

understanding the information, you'll actually feel empowered and stronger to do

what has to be done. This is a long haul, it will never end, but what we gain

for our children is the best for their futures.

keep on trying and just love your child and yourself. It will help you both

Selena

[Guest guest]

Angie,

What do you mean " wasting time on helping her? " She's the ST, she should know

how to change gears and see if different tactics/therapy works. What you should

do is find out more about this and make suggestions to either your childs EI

coordinator or have the IEP reevaluated to maybe get an ST that knows and treats

apraxic children.

Selena

Re: [ ]down syndrome and apraxia

Selena I know it will make us both very strong. Right now I just dont know

what to do......even though it has only been since Fri since the ST mentioned it

I feel like Im wasting time on helping her!

~Angie

May God Bless You As He Has Us

www.babiesonline.com/babies/s/sydniebrooke

mom to Sydnie (3, Ds), 3 angels in Heaven

http://www.earningforce.com/go.cgi?sydniesmom5

RE: [ ]down syndrome and apraxia

7/16/03

Dear Angie:

Please don't get stressed about this. Believe it or not, there is a lot of

information to digest. There are so many " issues " out there. If it's hard for

the professionals to diagnosis and treat properly, imagine what us lay people go

through. It feels overwhelming right now, but in time, as you keep reading and

understanding the information, you'll actually feel empowered and stronger to do

what has to be done. This is a long haul, it will never end, but what we gain

for our children is the best for their futures.

keep on trying and just love your child and yourself. It will help you both

Selena

[Guest guest]

Angie

It's the same thing. The words used are really interchangeable. It just

depends on who you talk to. It's the same thing.

Selena

Re: [ ]down syndrome and apraxia

What is the difference between dyspraxia and apraxia?

~Angie

May God Bless You As He Has Us

www.babiesonline.com/babies/s/sydniebrooke

mom to Sydnie (3, Ds), 3 angels in Heaven

http://www.earningforce.com/go.cgi?sydniesmom5

[Guest guest]

Selena, nooooooooooooo lol I mean the ST only mentioned it last Friday. I feel

like Im wasting time and not helping her enough in a weeks time. Does that

makes sense? She isnt diagnosed yet......and Im reading and asking questions

and blah blah blah and havent really done anything for her concerning the

possible apraxia. I guess Im a little neurotic. I want to work on it and work

on it NOW lol I know I need to have something done but tomorrow we have speech.

~Angie

May God Bless You As He Has Us

www.babiesonline.com/babies/s/sydniebrooke

mom to Sydnie (3, Ds), 3 angels in Heaven

http://www.earningforce.com/go.cgi?sydniesmom5

----- Original Message -----

From: selelk

Angie,

What do you mean " wasting time on helping her? "

[Guest guest]

Thank you.

~Angie

May God Bless You As He Has Us

www.babiesonline.com/babies/s/sydniebrooke

mom to Sydnie (3, Ds), 3 angels in Heaven

http://www.earningforce.com/go.cgi?sydniesmom5

----- Original Message -----

From: selelk

Angie

It's the same thing. The words used are really interchangeable. It just

depends on who you talk to. It's the same thing.

Selena

[Guest guest]

Angie, Sometimes before you walk you have to crawl. The best way you can help

her is to get as much information as possible, digest it, understand it, to then

have a way of trying to help her. I know I've become way neurotic when it comes

to Mark. It's this that will help make them all they and we are meant to be.

Diagnosis or not, you are on the right track. When Mark was younger, one of his

sp didn't believe in the apraxia dx. I didn't care, I wanted him treated as

such. If you treat as a speech delay and it isn't you are not going to get the

progress and results needed. If you treat as apraxia and it's not, nothing is

lost. From the speech and hearing website, you could find an sp in your area.

Definately go by the route of your school district or EI coordinator. Make sure

the sp has lots of experience and knowledge of apraxia. The therapy needed to

be done is different, not the same, no matter what the sp says.

Good luck and let me know what happens.

[Guest guest]

Thank you so much.........

~Angie

May God Bless You As He Has Us

www.babiesonline.com/babies/s/sydniebrooke

mom to Sydnie (3, Ds), 3 angels in Heaven

http://www.earningforce.com/go.cgi?sydniesmom5