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In a message dated 2/16/2001 12:56:00 AM Eastern Standard Time,

Mommy2Adam@... writes:

<< I am a brownie leader. I really like doing this job. Now the problem peer

pressure from the other leaders to go camping. There is a big camp out at

the

beach ... I was joking when I said I can go and watch but I can't do any

work. Some of the leaders snickered if you go you work. Imagin all o

bathroomthe camping problems. Slippery floors at the shower area. Long walks

to the bathroom, sleeping on the ground, cold air, sand, dirt, gravel.

Anyone

wanna go now? I have decided it's all out of my comfort zone. I am not

going

no matter what.

>>

I would not attempt to do anything like that. Too dangerous for you. No way

could I sleep on the ground. I don't even sleep well in my own bed.

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,

Dick S. here,

I am a cub scout leader. I share your enthusiasm for youth and think that

whatever we can do to help them is great. In addition to CMT I have sleep

apnea and require a CPAP at night(needs electricity). I have explained my

situation to the other leaders and they understand. I get lighter duties

around the campsite area, driving duties etc. I am sure that if you explain

they would rather have you as you are then not have you at all. Good luck

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Hi

,Iam mother of three children,2boys 1girl.

Iam very new to the world of computers so this

might be a bit trial and error.I use to be a girl

guide and then a very short stint as an assissant

leader many moons ago.Now that I know what we have we

can learn to understand our boundarys[i suppose that i

will never get to wear a pair of high heels so what

life goes on and its getting every day.

--- Mommy2Adam@... wrote:

<HR>

<html><body>

<tt>

I am & nbsp; a brownie leader. I really like doing this

job. Now the problem peer <BR>

pressure from the other leaders to go camping. There

is a big camp out at the <BR>

beach ... I was joking when I said I can go and watch

but I can't do any <BR>

work. Some of the leaders snickered if you go you

work. Imagin all o <BR>

bathroomthe camping problems. Slippery floors at the

shower area. Long walks <BR>

to the bathroom, sleeping on the ground, cold air,

sand, dirt, gravel. Anyone <BR>

wanna go now? I have decided it's all out of my

comfort zone. & nbsp; I am not going <BR>

no matter what.<BR>

<BR>

<BR>

<BR>

[Non-text portions of this message have been

removed]<BR>

<BR>

</tt>

<br>

<!-- |**|begin egp html banner|**| -->

<table border=0 cellspacing=0 cellpadding=2>

<tr bgcolor=#FFFFCC>

<td align=center><font size= " -1 "

color=#003399><b>

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,

I was not a leader but I did a lot of volunteer work in my girls

troops as a parent. AT the beginning of every year I told the

leaders I could help out in any way EXCEPT for the camping trips.

I could not SAFELY assist with those.

Girl scouts are big on the safety issues.

Leaders facilitate a troop - they do not have to run EVERYTHING.

There are other parents that can volunteer for duties, like going on

the camping trips. In our troops, every leader did not go on every

outing. One leader had a newborn so was often not present at the

outings. That's why you have more than one leader - to share

responsibilities throughout the year. You have our support on this

issue.

Ruth

> I am a brownie leader. I really like doing this job. Now the

problem peer

> pressure from the other leaders to go camping. There is a big camp

out at the

> beach ... I was joking when I said I can go and watch but I can't

do any

> work. Some of the leaders snickered if you go you work. Imagin all

o

> bathroomthe camping problems. Slippery floors at the shower area.

Long walks

> to the bathroom, sleeping on the ground, cold air, sand, dirt,

gravel. Anyone

> wanna go now? I have decided it's all out of my comfort zone. I am

not going

> no matter what.

>

>

>

>

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I agree, , that you should discuss it with the leader(s) privately so

they know you are willing and able, within your limitations. And if the

venture is outside your limitations, you may not be able to do it. I know

in my past when I didn't communicate my limitations ('cause it's not always

obvious - I didn't have crutches,etc) it was presumed that I wasn't a team

player, which wasn't true at all. I think I was embarrassed to explain my

problems, appear weak, all that...I was raised that way. I'm way over that

now!

Melody

----- Original Message -----

From: <swolfnc2@...>

< >

Sent: Friday, February 16, 2001 5:48 AM

Subject: Re: [] frustration

> ,

>

> Dick S. here,

>

> I am a cub scout leader. I share your enthusiasm for youth and think that

> whatever we can do to help them is great. In addition to CMT I have sleep

> apnea and require a CPAP at night(needs electricity). I have explained my

> situation to the other leaders and they understand. I get lighter duties

> around the campsite area, driving duties etc. I am sure that if you

explain

> they would rather have you as you are then not have you at all. Good luck

>

>

>

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In a message dated 2/16/2001 4:00:16 AM Pacific Standard Time,

ktbugg54@... writes:

> I would not attempt to do anything like that. Too dangerous for you. No way

> could I sleep on the ground. I don't even sleep well in my own bed.

>

>

I hear that!

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In a message dated 2/16/2001 4:17:37 AM Pacific Standard Time,

warrenre@... writes:

> Leaders facilitate a troop - they do not have to run EVERYTHING.

> There are other parents that can volunteer for duties, like going on

> the camping trips. In our troops, every leader did not go on every

> outing. One leader had a newborn so was often not present at the

> outings. That's why you have more than one leader - to share

> responsibilities throughout the year. You have our support on this

> issue.

>

> Ruth

>

>

Thats what I need support. Tonights meeting I flat out said to my co leader

" you need to find another camper to go with you. " She said lets go somewhere

you will be comfortable like a cabin with beds. She said she will being along

another leader to help out. Preasure.

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In a message dated 2/16/2001 5:51:29 AM Pacific Standard Time,

swolfnc2@... writes:

> . I am sure that if you explain

> they would rather have you as you are then not have you at all. Good luck

>

>

>

Thanks Dick,

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In a message dated 2/16/2001 5:51:29 AM Pacific Standard Time,

swolfnc2@... writes:

> . I am sure that if you explain

> they would rather have you as you are then not have you at all. Good luck

>

>

>

I was saying ( dang email sent itself) I wish we lived close I would send my

Adam to your den. By the way Adam gets his bear at the blue and gold dinner

on Friday night:)

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In a message dated 2/16/2001 9:40:13 AM Pacific Standard Time,

mel2mars@... writes:

> I agree, , that you should discuss it with the leader(s) privately so

> they know you are willing and able, within your limitations. And if the

> venture is outside your limitations, you may not be able to do it. I know

> in my past when I didn't communicate my limitations ('cause it's not always

> obvious - I didn't have crutches,etc) it was presumed that I wasn't a team

> player, which wasn't true at all. I think I was embarrassed to explain my

> problems, appear weak, all that...I was raised that way. I'm way over that

> now!

>

> Melody

>

>

I keep thinking DUH can't they see I have a problem. I think some of the

other leaders know it. Maybe just a few who don't.

jenny

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In a message dated 2/17/2001 3:02:25 PM Eastern Standard Time,

Mommy2Adam@... writes:

<<

I keep thinking DUH can't they see I have a problem. I think some of the

other leaders know it. Maybe just a few who don't.

jenny >>

Have you ever told them about your health problem? Most people understand and

are willing to help. I bet they would too. If you're like me, you don't like

to have to explain to people why you can't do this and that. I never have

explained until now, since I'm getting worse, I feel I have to tell them. You

don't have to go in detail about it, just tell them you aren't strong due to

a nerve/muscle disease and you don't feel that you can do some of the things

and be comfortable with it. What ever you do, good luck.

Years ago, when we were young married couple, my husbands family treated me

terrible because I had headaches and backaches really bad and didn't feel

like doing a lot of things. It hurt me but I ignored most of it. Back then, I

didn't even know what was wrong with me. I knew there was something, but had

no idea what it was or that I would feel this bad at my age now.

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Just by being there should be enough for them as you

are another pair of eyes and ears so if they cant see

the value they have in you tell them thier lucky just

to have your company and your precious time.

Carolyn

--- Mark Scotney <scotcmjml@...> wrote:

<HR>

<html><body>

<tt>

Hi <BR>

& nbsp; & nbsp; ,Iam mother of three children,2boys

1girl.<BR>

& nbsp; & nbsp; & nbsp; Iam very new to the world of

computers so this<BR>

might be a bit trial and error.I use to be a girl<BR>

guide and then a very short stint as an assissant<BR>

leader many moons ago.Now that I know what we have

we<BR>

can learn to understand our boundarys[i suppose that

i<BR>

will never get to wear a pair of high heels so

what<BR>

life goes on and its getting every day.<BR>

--- Mommy2Adam@... wrote: <BR>

& lt;HR & gt;<BR>

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& lt;tt & gt;<BR>

I am & amp;nbsp; a brownie leader. I really like doing

this<BR>

job. Now the problem peer & lt;BR & gt;<BR>

pressure from the other leaders to go camping.

There<BR>

is a big camp out at the & lt;BR & gt;<BR>

beach ... I was joking when I said I can go and

watch<BR>

but I can't do any & lt;BR & gt;<BR>

work. Some of the leaders snickered if you go you<BR>

work. Imagin all o & lt;BR & gt;<BR>

bathroomthe camping problems. Slippery floors at

the<BR>

shower area. Long walks & lt;BR & gt;<BR>

to the bathroom, sleeping on the ground, cold air,<BR>

sand, dirt, gravel. Anyone & lt;BR & gt;<BR>

wanna go now? I have decided it's all out of my<BR>

comfort zone. & amp;nbsp; I am not going & lt;BR & gt;<BR>

no matter what. & lt;BR & gt;<BR>

& lt;BR & gt;<BR>

& lt;BR & gt;<BR>

& lt;BR & gt;<BR>

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  • 2 years later...

Hello everyone, I 'm still new here, I introduced myself a couple of days

ago... but I figured people here would understand my frustration. I was

calling my lung transplant coordinator (for a different condition) to let

her know about the new dx of RA. She immediately asked if they had checked

that out during all my other testing last year for my lung condition. I

told her I thought they had, and that, although I'm not that far above

normal, my doctor wants to start treatment to keep it low. She finally

found the results and they were above normal, too!! No one thought it

important to mention this to me last year.... it wasn't high enough results,

she said!! I went through knee surgery for NO reason, I now realize. Had I

known it was a little high, I would have gone straight to the rheumy vs

going to my orthopedic guy first!!! UGH!! I'm so angry and frustrated that

they decided what they needed or didn't need to tell me!

Robin

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