Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 Hummmm no takers yet. Deb Deb <posttransplant@...> wrote: How has our group benefited you and your HCV needs ???? How can we better address and support you and your HCV needs ????? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 When I was first diagnosed, this group gave me information, support & love. While on tx, I got more information, support & love and an occasional kick in the butt to restart my motivation and calm my fears. After treatment, I get support, love, camaraderie and lots of encouragement that I am not alone, my feelings & symptoms are normal and I’m not crazy. I wish more of the quiet members would speak up and ask us questions. I have to assume that they’re getting all the information the need just by reading. De New Q and A How has our group benefited you and your HCV needs ???? How can we better address and support you and your HCV needs ????? Let's keep this in a constructive focus and discussion format and not turn it into a gripe session. Thanks. Deb Offline for now but will be back soon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 This group has been the second opinion on my tx. I knew all the aspects of the sides before they happened, so there were no surprises. That alone makes this group invaluable, besides getting to know some really nice people. The group does a good job of addressing the issues of Hep C. Keep it up, but we need to have some fun once in awhile. Thank you for the time, Your Great Redness...... Dick At 08:17 AM 5/29/2006, you wrote: How has our group benefited you and your HCV needs ???? How can we better address and support you and your HCV needs ????? Let's keep this in a constructive focus and discussion format and not turn it into a gripe session. Thanks. Deb Offline for now but will be back soon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 Oh, yeah, I forgot to say, that I’ve made permanent friends who feel more like family here who understand far more than my real family about what’s going on with me. De Re: New Q and A This group has been the second opinion on my tx. I knew all the aspects of the sides before they happened, so there were no surprises. That alone makes this group invaluable, besides getting to know some really nice people. The group does a good job of addressing the issues of Hep C. Keep it up, but we need to have some fun once in awhile. Thank you for the time, Your Great Redness...... Dick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 Good morning everyone, When I was first diagnosed with HCV I didn't know anything about it. I escaped the doctors office, came home, and went online. I spent many hours over the next few days reading about this disease, and it scared the crap out of me. I then subscribed and unsubscribed to several Groups before stumbling onto this bunch of certifiable lunatics. Being looney myself it is a match! You all have shown me that one can live with HCV. Not only live, but laugh, cry, grow, and generally care. Other than that guy that hangs around here, this group really has become my only family. I send love at you all, PS... I really hate it when you all try to tell me what not to do (like drive), but I can live with it. Besides... you'd have to find me to stop me, lol. How has our group benefited you and your HCV needs ???? How can we better address and support you and your HCV needs ????? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 De, Im scared shi___ess and if you got something for that im listening. Im afraid to get cancer again from this antifreeze thats goin into my leg, im sick of fighting, though continue to, and im tired of being paranoid and dam its been 104 in this apartment for three straight days, though last night it did get down to a balmy 98 for about an hour. otherwise im keepin my lips locked so i dont piss anyone off again. my hearts actin up again, just like last time, and theres no shame in admitting im scared, right? wanna send me some chill pills? connie Motley <dmotley@...> wrote: When I was first diagnosed, this group gave me information, support & love. While on tx, I got more information, support & love and an occasional kick in the butt to restart my motivation and calm my fears. After treatment, I get support, love, camaraderie and lots of encouragement that I am not alone, my feelings & symptoms are normal and I’m not crazy. I wish more of the quiet members would speak up and ask us questions. I have to assume that they’re getting all the information the need just by reading. De -----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of DebSent: Monday, May 29, 2006 11:18 AMHepatitis Cfordummies Subject: New Q and A How has our group benefited you and your HCV needs ???? How can we better address and support you and your HCV needs ????? Let's keep this in a constructive focus and discussion format and not turn it into a gripe session. Thanks. Deb Offline for now but will be back soon. The light at the end of the tunnel may be you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 Your great redness. roflmao. Ok there it is. thats why i love this group, the unexpected blindsiding type of laugh that this group brings occasionally. Thats why im here. connieDick Southern <southern@...> wrote: This group has been the second opinion on my tx. I knew all the aspects of the sides before they happened, so there were no surprises. That alone makes this group invaluable, besides getting to know some really nice people.The group does a good job of addressing the issues of Hep C. Keep it up, but we need to have some fun once in awhile.Thank you for the time, Your Great Redness......DickAt 08:17 AM 5/29/2006, you wrote: How has our group benefited you and your HCV needs ???? How can we better address and support you and your HCV needs ????? Let's keep this in a constructive focus and discussion format and not turn it into a gripe session. Thanks. DebOffline for now but will be back soon.The light at the end of the tunnel may be you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 being a member of this group has helped me to understand more about hepc but the biggest and most important thing was helping me and supporting me to help donald get through tx and continue to support us with out my new online family i dont know were we would be. everyone has always answered my questions let me vent or whatever i need and i would like to thank each and everyone of you love and hugs kat and donald Deb <posttransplant@...> wrote: How has our group benefited you and your HCV needs ???? How can we better address and support you and your HCV needs ????? Let's keep this in a constructive focus and discussion format and not turn it into a gripe session. Thanks. Deb Offline for now but will be back soon. Messenger with Voice. PC-to-Phone calls for ridiculously low rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 Girl you have to stop stressing out.While you are on treatment it is a little harder to chill out,but you have to stay in a good head space.Whether you survive what ailes you is up to God not you.God only expects you to do everything you can to make you feel better and the rest is up to him.All the serious illnesses you' ve had and you still aren't learning to make the best out of TODAY.It is one day at a time Connie.Have you got a fan?If you do put a bowl of water in the freezer and when it is ice put the bowl in front of the fan.My mom did that all the time when I was a kid and it felt great.Cheep air conditioning. Gail RE: New Q and A De, Im scared shi___ess and if you got something for that im listening. Im afraid to get cancer again from this antifreeze thats goin into my leg, im sick of fighting, though continue to, and im tired of being paranoid and dam its been 104 in this apartment for three straight days, though last night it did get down to a balmy 98 for about an hour. otherwise im keepin my lips locked so i dont piss anyone off again. my hearts actin up again, just like last time, and theres no shame in admitting im scared, right? wanna send me some chill pills? connie Motley <dmotley@...> wrote: When I was first diagnosed, this group gave me information, support & love. While on tx, I got more information, support & love and an occasional kick in the butt to restart my motivation and calm my fears. After treatment, I get support, love, camaraderie and lots of encouragement that I am not alone, my feelings & symptoms are normal and I’m not crazy. I wish more of the quiet members would speak up and ask us questions. I have to assume that they’re getting all the information the need just by reading. De -----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of DebSent: Monday, May 29, 2006 11:18 AMHepatitis Cfordummies Subject: New Q and A How has our group benefited you and your HCV needs ???? How can we better address and support you and your HCV needs ????? Let's keep this in a constructive focus and discussion format and not turn it into a gripe session. Thanks. Deb Offline for now but will be back soon. The light at the end of the tunnel may be you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 Deb, Way to go. This is an excellent Q n A. I found this group like others. Trying groups looking for the one that fit me. Well I found the DUMMIES. At first I thought this family Is not gonna let me in. They are too close to let in an outsider. Boy was I wrong. When I was sitting back just reading I seen how close this group is. But I also seen that there is always room for more family here. We all have our own story. And with each story comes a different level of support needed. We all have so much to give to each other. And so much info to share. I can say to know the little things that we have all said "Is this normal?" To have someone who has been there to say "honey it's normal" THAT HELPS.. I might be crazy but I'm not alone. This group has given me strength when I felt I could not go another step, OK maybe it was a swift kick in the pants at times, but you were all there. Even when personal non-HCV things came up, you, MY FAMILY was always here. This is just a few ways this group has helped me. How can we better address and support you and your HCV needs ????? That is something I am blank on. Because this group is there on so many levels.. love d Sneak preview the all-new .com. It's not radically different. Just radically better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2006 Report Share Posted May 30, 2006 Our group has givin me the much needed support and love that I couldnt get otherwise on the outside...The support groups here in my city were not worth my time..and I have rcvd the most updated & correct info because of all the people here that volunteer thier time to research this invaluable info for us all...Those here that are ptp and ESLD have showed me that life goes on, no matter how much of it you might have left, Life is not fair...Live for today,love your family as if tomorrow was your last and continue to fight and learn because being undetectable doesnt mean it a cure or the stuggle is over...we all have ptp & ptx , & tx side effects that can make life unbearable, but Im blessed to have you all to share it with and help me feel Im accomplishing something to the good of my health...life is full of surprises and hepc is just one of em..I will deal with it and go along my way until the next bump in the road arises..Love you all, PatMc New Q and A How has our group benefited you and your HCV needs ???? How can we better address and support you and your HCV needs ????? Let's keep this in a constructive focus and discussion format and not turn it into a gripe session. Thanks. Deb Offline for now but will be back soon. Quote Link to comment Share on other sites More sharing options...
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