Guest guest Posted March 24, 2002 Report Share Posted March 24, 2002 I decided to privately get my daughter checked out.In a couple months we will be getting more test done.At the first the doctor couldn't image what the problem could be.I told him since 2 1/2 she has had verbal apraxia,but I have always thought there was something else ( nothing serious)This doctor felt that way too,as a matter of fact he has never met a child like mine.He felt she had autisic behaviour but that she wasn't autisic.She had some attention problems ,he thought there also was selective mutism (spelt wrong).He thought that after all the testing she might be a candidate for anti depressants.He didn't think she was depressed but that this kind of drug would help her obssessive compulsive behavior,help negative responses to things.He thought it would give her the confidence to be with any speech therepy. SSSSOOOO, does anyone have an opinion??????????.My daughter is 5 years and right now is in a multiple disabilities kindergarten class. Also why do I to pay for this outside evaualtion with my insurance company? Thank you, Leone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2002 Report Share Posted March 26, 2002 Deborah, I don't necessarily agree with your statements....Many of the " autism characteristics " that some parents see.....are Sensory integration issues!!!!! This could be what the doctor was referring to!!!! Preemies show this tendancy alot and some outgrow it all on their own!!! Just a thought to add to your statements....While I do agree absolutely that a doctor should not keep you in the dark and that parents need to forcefully ask what they are saying exactly!!! I also agree with these treatments that you have mentioned!! Looked into them myself when we were being looked at for PDD/Autism Spectrum ....... Just wanted to add this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2002 Report Share Posted March 26, 2002 Hi, OK I am sure that many people can vouch for having had good results with these medications, and for many they may well be something that you ultimately need to consider but as a FIRST option !! i am very sceptical abvout anyone treating autism solely as a phsycological cndition so why should something designed to shift mood and or produce seratoinin help. It is very unusual to have a medication that is free from side effects - particularly with long term use. My son has autism and I hate to be rude but your Doctor does not inspire me with much confidence . A child displaying autistic tendencies has autism (I'm sorry if that sounds harsh) - it may just be REALLY mild so either your Doctor is patronising you by feeling that you would not cope with the proper diagnosis or he really does not understand the condition. A tendency is just a really mild form of the condition , so mild perhaps as to almost go unnoticed but autism nonetheless. Treat it as it is and you may see improvement. My son has made fantastic progress by changing his diet ( gfcf - go to www.autismmedical.com or www.autismdiet.com ) , many other children benefit from different teaching programmes such as ABA. Many of the children looking into dietary interventions only have dispraxia - some just very mild add on conditions like Aspergers or ADD . Taking milk out helped Charlie sleep and helped his eye contact - treating for yeast helped his speech enormously - if your child is so mild these things may be a complete answer for her. What specific tendencies are you seeing. Autism ( especially mild ) is REALLY common now ( more common than Downs , spina bifida and most other childhood difficulties combined and parents are finding REAL treatments . Please explore the options before you start on the medication route. Whatever you decide to do I wish you and your little one evry good luck. Regards Deborah >He thought > that after all the testing she might be a candidate for anti depressants.He > didn't think she was depressed but that this kind of drug would help her > obssessive compulsive behavior,help negative responses to things.He thought it > would give her the confidence to be with any speech therepy. SSSSOOOO, does > anyone have an opinion??????????.My daughter is 5 years and right now is in a > multiple disabilities kindergarten class. Also why do I to pay for this > outside evaualtion with my insurance company? Thank you, Leone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2002 Report Share Posted March 26, 2002 Dear , My daughter with apraxia and other factors that look like autistic tendencies also has been advised to take an antidepressant. Within the first few days we saw remarkable differences in several areas. First, she started to sleep through the night. Second, her eye contact improved. Third, nearly all temper tantrums stopped. Fourth, she started to copy some of our language. Fifth, obsessive/compulsive behaviors decreased significantly. For our daughter who is on the autism spectrum somewhere, these changes were nearly immediate. I attribute the changes to a positive effect on the neurotransmitter serotonin as that was one of the elements of the medicine. However, she is still struggling with many of the issues that are part of autism. Her language still is seriously delayed, her social interactions need much encouragement and work and there are still major sensory processing issues. I think that the medicine was (is) a tremendous help to us. However, I feel there is still a biomedical clue that is not clear yet. The immune system seems to be one of the factors that may not work well in her due to a variety of factors. Some of the approaches that could help her and that we consider are: the enzyme system in the body and the body's ability to deal with difficulties such as viruses or toxins in the environment. I find the information at The Pfeiffer Treatment Center to be of interest as those scientists are looking at the possibility that the metallothionein protein in the body could be coaxed to work more effectively. If this happens, the body system of someone who may be especially sensitive, such as someone with autism, may work much better. This could affect learning and language and interactions. You might enjoy looking at their website: http://www.hriptc.org Best wishes in finding help for your child, At 09:55 PM 3/24/02 -0500, you wrote: >I decided to privately get my daughter checked out.In a couple months we will >be getting more test done.At the first the doctor couldn't image what the >problem could be.I told him since 2 1/2 she has had verbal apraxia,but I have >always thought there was something else ( nothing serious)This doctor felt >that way too,as a matter of fact he has never met a child like mine.He felt >she had autisic behaviour but that she wasn't autisic.She had some attention >problems ,he thought there also was selective mutism (spelt wrong).He thought >that after all the testing she might be a candidate for anti depressants.He >didn't think she was depressed but that this kind of drug would help her >obssessive compulsive behavior,help negative responses to things.He thought it >would give her the confidence to be with any speech therepy. SSSSOOOO, does >anyone have an opinion??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2002 Report Share Posted March 26, 2002 - Hi , Thanks - thats really interesting . I know lots of ASD children have sensory integration issues - I didn't know that it exists as a condition on its own - nor that it can " clear up " . I confess to being a bit jaded so perhaps I give the Doc's a hard time but honestly I have seen so many parents given nonsensical diagnostic gibberish because the Doc dosen't want to say ASD. I had to go through the grieving process and that took some time but because of the delay in getting the diagnosis in the first place , by the time I was ready to get in the game and help Charlie I had lost so much time already. One VERY ASD child at my sons nursery got pulled out because, having two good diagnoisis of ASD the mum found a psychiatrist who said she had attchment issues. That poor little one lost out on goodness knows how much valuable time and help .....ah well. Thanks again - just when I thought I knew most of what I needed about ASD ....! Regards Deborah PS From the sites I've read sensory integration issues arn't primarily treated with anti-depressants either are they ? > Deborah, > I don't necessarily agree with your statements....Many of the " autism > characteristics " that some parents see.....are Sensory integration > issues!!!!! This could be what the doctor was referring to!!!! Preemies > show this tendancy alot and some outgrow it all on their own!!! Just a > thought to add to your statements....While I do agree absolutely that a > doctor should not keep you in the dark and that parents need to forcefully > ask what they are saying exactly!!! I also agree with these treatments that > you have mentioned!! Looked into them myself when we were being looked at for > PDD/Autism Spectrum ....... > Just wanted to add this. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2002 Report Share Posted March 26, 2002 Deborah.... You are welcome...look up SID on the net....there is lots of info for you to browse through....as for the med's....I have never heard of treating this with med's....like Autism related therapies....you need to do the work to see the results!!!! OT/PT/SLP you name it!!!!!! Anyway I don't know about the med's either!!! Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2002 Report Share Posted May 29, 2002 , You wrote this a couple of months ago but I haven't had a chance to respond. Sometimes I believe using medications (anti-depressants) can be very helpful. My son Mark who has autism is taking one right now. When he was 5 or so is when we began using them (2 different ones over the years) because he was having a lot of self-abusive issues and I was afraid he'd hurt himself. He wanted desperately to be calm and handle a situation but clearly he was incapable of doing that on his own. He'd get so upset about trying to handle the situation (transitioning activities for example) that he'd begin to hurt himself, like a " bad Mark " response because he knew his behavior wasn't normal. I was willing to take the risk of using a medication at that time because we (including him) were desperate to help him function without such trauma. They have helped him tremendously with concentration and the self-abusive issues and have helped calm him a little (he's a pretty hyper little kiddo) too so he can sit still for a few minutes. No they didn't help his speech or social skills at all but the ProEFA he is currently taking has yielded some miracles in those areas. I am so proud of his progress. At age two, he was given the diagnosis of Kanner's Syndrome, classic infantile autism which is a very bleak diagnosis. Currently he's considered high functioning and I don't believe they professionals thought he could ever do this well. Leave it to Mark to break out of their " box " ! :-) Tammy [ ] Re: anti depressants anyone have an opinion?????????? Dear , My daughter with apraxia and other factors that look like autistic tendencies also has been advised to take an antidepressant. Within the first few days we saw remarkable differences in several areas. First, she started to sleep through the night. Second, her eye contact improved. Third, nearly all temper tantrums stopped. Fourth, she started to copy some of our language. Fifth, obsessive/compulsive behaviors decreased significantly. For our daughter who is on the autism spectrum somewhere, these changes were nearly immediate. I attribute the changes to a positive effect on the neurotransmitter serotonin as that was one of the elements of the medicine. However, she is still struggling with many of the issues that are part of autism. Her language still is seriously delayed, her social interactions need much encouragement and work and there are still major sensory processing issues. I think that the medicine was (is) a tremendous help to us. However, I feel there is still a biomedical clue that is not clear yet. The immune system seems to be one of the factors that may not work well in her due to a variety of factors. Some of the approaches that could help her and that we consider are: the enzyme system in the body and the body's ability to deal with difficulties such as viruses or toxins in the environment. I find the information at The Pfeiffer Treatment Center to be of interest as those scientists are looking at the possibility that the metallothionein protein in the body could be coaxed to work more effectively. If this happens, the body system of someone who may be especially sensitive, such as someone with autism, may work much better. This could affect learning and language and interactions. You might enjoy looking at their website: http://www.hriptc.org Best wishes in finding help for your child, Quote Link to comment Share on other sites More sharing options...
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