Guest guest Posted July 23, 2006 Report Share Posted July 23, 2006 No sun since yesterday and in the low 70's here in July which you know is wonderful. Buddy you are an adult it is your life and your decisions to make that is best for you not us. We all need to stop walking on egg shells and tip toeing around our HCV - medical problems and issues open up and be able to discuss it all in group without any fear of being judged by others or insulting others feelings. We join a support group for our own support whichever form is best for each one of us. If we are active in group than it's also a sharing - supportive and learning experiences for us all. If you notice when many of us get serious and try to help others we reply in the 1st person with - I have this - I found this works for me - I learned this about my HCV - transplant - with our own HCV experiences and what we have learned from it good or bad. I created this group for specific purposes as a honest and open family discussion type format of HCV personal issues for every stage from 1st dx'ed to yes ESLD - transplant or for some of us to our demise when love - understanding and support is needed the most. Haaaaaaaaaa I had to create my own group cause I got tired of being in deep shit in other peoples groups yep even as a moderator cause I only spoke the truth about my own HCV experiences and tried to reply to other members direct questions to me that didn't fall into the HCV support groups strict rules and regulations of what can and can not be discussed in group about HCV. I wanted a safe place for others to be able to open up share their HCV lives with others that understand have empathy not sympathy for what we are going through and for some of us a journey through all the stages. Buddy, I know where you are coming from and fear scaring others in earlier stages or by saying the wrong things. Fear and denial is a reality but for some of us our reality is now ESLD. No matter the reasons why we got HCV or now in ESLD we all need the acceptance - understanding - love and support of others also with HCV. Yep we do scare the hell out of others but in doing so have helped so many by our honesty made them see the light accepted their dx of HCV for what it is which has allowed them to make their best choices and in time for their own lives. Stats and statics are just numbers. Yes many do die on the table - many aren't given the chance to even make it to the table and many have been giving a 2nd chance at life. Going by the numbers I should have been dead and stayed dead cause I used up more lives than a cat many years ago but I'm still alive and kicking. Life is a crap shoot for all of us and it comes with no instruction booklet and with no guarantees. Life is the here and now and what we do with it while we still have it. Buddy, I learned enjoy and make the best of the here and now make the best choices and decisions for me for the future cause none of us knows about tomorrow and what it will bring us. Love and Hugs. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2006 Report Share Posted July 23, 2006 Deb - well said My Dear - you too Pat!!! I'm on way to start TX tomorrow, and feel much better about it now - LOL! Especially after reading you Pat's emails... I think we all take "life" for granted, if you want my opinion.... Rather you did or not - you got it.. So that is why I am doing TX and I will be walking in tomorrow with a smile on my face remembering these two emails.. You all did make me smile, and laugh out loud... There will be not self-pitty, at least not tomorrow anyway... Love, hugs, prayers, and peace -- Heyyyyy Del and Everyone No sun since yesterday and in the low 70's here in July which you know is wonderful. Buddy you are an adult it is your life and your decisions to make that is best for you not us. We all need to stop walking on egg shells and tip toeing around our HCV - medical problems and issues open up and be able to discuss it all in group without any fear of being judged by others or insulting others feelings. We join a support group for our own support whichever form is best for each one of us. If we are active in group than it's also a sharing - supportive and learning experiences for us all. If you notice when many of us get serious and try to help others we reply in the 1st person with - I have this - I found this works for me - I learned this about my HCV - transplant - with our own HCV experiences and what we have learned from it good or bad. I created this group for specific purposes as a honest and open family discussion type format of HCV personal issues for every stage from 1st dx'ed to yes ESLD - transplant or for some of us to our demise when love - understanding and support is needed the most. Haaaaaaaaaa I had to create my own group cause I got tired of being in deep shit in other peoples groups yep even as a moderator cause I only spoke the truth about my own HCV experiences and tried to reply to other members direct questions to me that didn't fall into the HCV support groups strict rules and regulations of what can and can not be discussed in group about HCV. I wanted a safe place for others to be able to open up share their HCV lives with others that understand have empathy not sympathy for what we are going through and for some of us a journey through all the stages. Buddy, I know where you are coming from and fear scaring others in earlier stages or by saying the wrong things. Fear and denial is a reality but for some of us our reality is now ESLD. No matter the reasons why we got HCV or now in ESLD we all need the acceptance - understanding - love and support of others also with HCV. Yep we do scare the hell out of others but in doing so have helped so many by our honesty made them see the light accepted their dx of HCV for what it is which has allowed them to make their best choices and in time for their own lives. Stats and statics are just numbers. Yes many do die on the table - many aren't given the chance to even make it to the table and many have been giving a 2nd chance at life. Going by the numbers I should have been dead and stayed dead cause I used up more lives than a cat many years ago but I'm still alive and kicking. Life is a crap shoot for all of us and it comes with no instruction booklet and with no guarantees. Life is the here and now and what we do with it while we still have it. Buddy, I learned enjoy and make the best of the here and now make the best choices and decisions for me for the future cause none of us knows about tomorrow and what it will bring us. Love and Hugs. Deb Letter ©Chezmf Graphics by Chezmf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2006 Report Share Posted July 23, 2006 Deb - well said My Dear - you too Pat!!! I'm on way to start TX tomorrow, and feel much better about it now - LOL! Especially after reading you Pat's emails... I think we all take "life" for granted, if you want my opinion.... Rather you did or not - you got it.. So that is why I am doing TX and I will be walking in tomorrow with a smile on my face remembering these two emails.. You all did make me smile, and laugh out loud... There will be not self-pitty, at least not tomorrow anyway... Love, hugs, prayers, and peace -- Heyyyyy Del and Everyone No sun since yesterday and in the low 70's here in July which you know is wonderful. Buddy you are an adult it is your life and your decisions to make that is best for you not us. We all need to stop walking on egg shells and tip toeing around our HCV - medical problems and issues open up and be able to discuss it all in group without any fear of being judged by others or insulting others feelings. We join a support group for our own support whichever form is best for each one of us. If we are active in group than it's also a sharing - supportive and learning experiences for us all. If you notice when many of us get serious and try to help others we reply in the 1st person with - I have this - I found this works for me - I learned this about my HCV - transplant - with our own HCV experiences and what we have learned from it good or bad. I created this group for specific purposes as a honest and open family discussion type format of HCV personal issues for every stage from 1st dx'ed to yes ESLD - transplant or for some of us to our demise when love - understanding and support is needed the most. Haaaaaaaaaa I had to create my own group cause I got tired of being in deep shit in other peoples groups yep even as a moderator cause I only spoke the truth about my own HCV experiences and tried to reply to other members direct questions to me that didn't fall into the HCV support groups strict rules and regulations of what can and can not be discussed in group about HCV. I wanted a safe place for others to be able to open up share their HCV lives with others that understand have empathy not sympathy for what we are going through and for some of us a journey through all the stages. Buddy, I know where you are coming from and fear scaring others in earlier stages or by saying the wrong things. Fear and denial is a reality but for some of us our reality is now ESLD. No matter the reasons why we got HCV or now in ESLD we all need the acceptance - understanding - love and support of others also with HCV. Yep we do scare the hell out of others but in doing so have helped so many by our honesty made them see the light accepted their dx of HCV for what it is which has allowed them to make their best choices and in time for their own lives. Stats and statics are just numbers. Yes many do die on the table - many aren't given the chance to even make it to the table and many have been giving a 2nd chance at life. Going by the numbers I should have been dead and stayed dead cause I used up more lives than a cat many years ago but I'm still alive and kicking. Life is a crap shoot for all of us and it comes with no instruction booklet and with no guarantees. Life is the here and now and what we do with it while we still have it. Buddy, I learned enjoy and make the best of the here and now make the best choices and decisions for me for the future cause none of us knows about tomorrow and what it will bring us. Love and Hugs. Deb Letter ©Chezmf Graphics by Chezmf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2006 Report Share Posted July 24, 2006 Deb hon I sent you a copy of the pictures from the airport of me,my youngest daughter and her boyfriend.Can you post them in the picture group for me cause I don't know how to use it.I sent out copies to several members but I don't understand how to post it in picture group.I am the old one in the pictures. Gail -----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ]On Behalf Of DebSent: July 23, 2006 12:43 PMHepatitis Cfordummies Subject: Heyyyyy Del and Everyone No sun since yesterday and in the low 70's here in July which you know is wonderful. Buddy you are an adult it is your life and your decisions to make that is best for you not us. We all need to stop walking on egg shells and tip toeing around our HCV - medical problems and issues open up and be able to discuss it all in group without any fear of being judged by others or insulting others feelings. We join a support group for our own support whichever form is best for each one of us. If we are active in group than it's also a sharing - supportive and learning experiences for us all. If you notice when many of us get serious and try to help others we reply in the 1st person with - I have this - I found this works for me - I learned this about my HCV - transplant - with our own HCV experiences and what we have learned from it good or bad. I created this group for specific purposes as a honest and open family discussion type format of HCV personal issues for every stage from 1st dx'ed to yes ESLD - transplant or for some of us to our demise when love - understanding and support is needed the most. Haaaaaaaaaa I had to create my own group cause I got tired of being in deep shit in other peoples groups yep even as a moderator cause I only spoke the truth about my own HCV experiences and tried to reply to other members direct questions to me that didn't fall into the HCV support groups strict rules and regulations of what can and can not be discussed in group about HCV. I wanted a safe place for others to be able to open up share their HCV lives with others that understand have empathy not sympathy for what we are going through and for some of us a journey through all the stages. Buddy, I know where you are coming from and fear scaring others in earlier stages or by saying the wrong things. Fear and denial is a reality but for some of us our reality is now ESLD. No matter the reasons why we got HCV or now in ESLD we all need the acceptance - understanding - love and support of others also with HCV. Yep we do scare the hell out of others but in doing so have helped so many by our honesty made them see the light accepted their dx of HCV for what it is which has allowed them to make their best choices and in time for their own lives. Stats and statics are just numbers. Yes many do die on the table - many aren't given the chance to even make it to the table and many have been giving a 2nd chance at life. Going by the numbers I should have been dead and stayed dead cause I used up more lives than a cat many years ago but I'm still alive and kicking. Life is a crap shoot for all of us and it comes with no instruction booklet and with no guarantees. Life is the here and now and what we do with it while we still have it. Buddy, I learned enjoy and make the best of the here and now make the best choices and decisions for me for the future cause none of us knows about tomorrow and what it will bring us. Love and Hugs. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2006 Report Share Posted July 24, 2006 Hope it turns out for you hon.You are prepared for what happens and you will make it and we know it.Make sure you keep in touch with us hon.Your in my prayers. Gail Heyyyyy Del and Everyone No sun since yesterday and in the low 70's here in July which you know is wonderful. Buddy you are an adult it is your life and your decisions to make that is best for you not us. We all need to stop walking on egg shells and tip toeing around our HCV - medical problems and issues open up and be able to discuss it all in group without any fear of being judged by others or insulting others feelings. We join a support group for our own support whichever form is best for each one of us. If we are active in group than it's also a sharing - supportive and learning experiences for us all. If you notice when many of us get serious and try to help others we reply in the 1st person with - I have this - I found this works for me - I learned this about my HCV - transplant - with our own HCV experiences and what we have learned from it good or bad. I created this group for specific purposes as a honest and open family discussion type format of HCV personal issues for every stage from 1st dx'ed to yes ESLD - transplant or for some of us to our demise when love - understanding and support is needed the most. Haaaaaaaaaa I had to create my own group cause I got tired of being in deep shit in other peoples groups yep even as a moderator cause I only spoke the truth about my own HCV experiences and tried to reply to other members direct questions to me that didn't fall into the HCV support groups strict rules and regulations of what can and can not be discussed in group about HCV. I wanted a safe place for others to be able to open up share their HCV lives with others that understand have empathy not sympathy for what we are going through and for some of us a journey through all the stages. Buddy, I know where you are coming from and fear scaring others in earlier stages or by saying the wrong things. Fear and denial is a reality but for some of us our reality is now ESLD. No matter the reasons why we got HCV or now in ESLD we all need the acceptance - understanding - love and support of others also with HCV. Yep we do scare the hell out of others but in doing so have helped so many by our honesty made them see the light accepted their dx of HCV for what it is which has allowed them to make their best choices and in time for their own lives. Stats and statics are just numbers. Yes many do die on the table - many aren't given the chance to even make it to the table and many have been giving a 2nd chance at life. Going by the numbers I should have been dead and stayed dead cause I used up more lives than a cat many years ago but I'm still alive and kicking. Life is a crap shoot for all of us and it comes with no instruction booklet and with no guarantees. Life is the here and now and what we do with it while we still have it. Buddy, I learned enjoy and make the best of the here and now make the best choices and decisions for me for the future cause none of us knows about tomorrow and what it will bring us. Love and Hugs. Deb Letter ©Chezmf Graphics by Chezmf Quote Link to comment Share on other sites More sharing options...
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