Hi, I'm new...in need of encouraging words!!!

[Guest guest]

Hi everyone,

I was so pleased to find a group out there for children's apraxia!

Let me give you a little background:

Our son was born 3 1/2 months early due to my severe preeclampsia

luckily had a brilliant NICU recovery. No major problems...or so we

thought when we came home...all of the head ultrasounds were clear

and everything looked fine. At about 8 months we noticed that

was regressing and scheduled him for an MRI, before our appointment

came he had his first seizure. We battled the seizures with heavy

medications that would really do a number on him. After one year we

came completely off of all meds when his EEG came back normal. Now

our son, almost 3, is learning much faster...but not nearly at a

normal pace. Everything seems to be advancing albeit slowly, except

for his speech. He cycles through 2 words for everything " Ba Ba "

and " Ma Ma " . He has started gesturing (yet still does not shake his

head yes or no) and has a very good receptive vocabulary. Other

quirky habits include...wanting to chew on EVERYTHING (except food)

and sensitivity around his face and mouth. We are trying to address

these problems but I have little faith in my " new " therapist. We've

been unlucky quite a few times with therapists moving away. Anyway,

I asked her about the PECS system, I hope I'm spelling this right,

(do you guys know what I'm talking about?) and she didn't know what

it stood for but she had heard about it....that scared me...of all

people she should know! Anyway...I was wanting to know a little

about what your therapy includes and some of your individual

stories....We were diagnosed a week ago with speech and limb apraxia

and I was searching for a little reassurance.

Thanks so much!

Mommy to 26 weeker, now 2 1/2

[Guest guest]

and ,

Have either of you investigated Landau-Kleffner

Syndrome? My son will be getting an E.E.G. soon to

check for it although why, I am unsure. He never had

language then lost it as is common with this. Check

it out on the net and best wishes.

> Hi ,

> I was wondering what you meant when you said

> started regressing. The reason I ask is my daughter

> was also a preemie (34 weeks) and her language

> regressed at 18 mos.

>

>