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reply to Betsy Subject: New to group - question

Hi,

I am new to this group - my name is Betsy.

Betsy,

Welcome to the group, and I thought that perhaps I could give a few of my ideas

for you to see if it helps.

1) Early Intervention -- when early intervention came to our home, it was only

to test our son to see if he was delayed and to what extent and in what areas.

They don't do a diagnosis. Of course, because I was scared to death, I tried to

press them----- in the end I said " if this was your child what would you do

next? " --- dev ped

2) You mention the reflux and a feeding tube. My son had pyloric stenosis (the

muscle between stomach and intenstinal tract tightens and doesn't allow food to

pass requiring emergency surgery at 3 weeks old) and then he had reflux (though

mild) after that. (We started oral motor exercises see Sara website

for details when our son was 18 mos old)-- perhaps you are already pursuing

this, but if not, that might help

3) If a child is suspected of having APRAXIA, why take the " wait and see " speech

approach. That doesn't make sense to me. For apraxic children, frequency of

speech therapy is very important. Also, I understand that there are many

techniques to use, but our son has responded best to PROMPT therapy. As soon as

a talented slp prompt certified started with our son, he was able to make sounds

for the first time ever..........Apraxic kids don't respond best to " traditional

therapy ---or done in a group " PROMPT is a tactile method. You can find

therapists for your area listed on the PROMPT INSTITUTE website. It is worth

checking out!! We went to mediation to get the state therapist trained.

4) I am not a professional, but by 2.5 a good developmental pediatrician should

be able to make a diagnosis -- can any really qualified people help me out

here????

I feel for you because we as parents look for answers in so many places.

Finally, I decided only listen to a couple of people 1) Dev. Ped. who made a

whole program plan 2) slp very experienced with both oral motor issues and

prompt method. Otherwise, I do listen to everything and try to use my best

judgement because I will have to answer to my son one day --

I hope this is of some help -- it sounds like you are doing the most possible

for your little one. good luck

lois mom to lucas 2.5 apraxia, hypotonia, and fine motor issues