Guest guest Posted March 22, 2002 Report Share Posted March 22, 2002 Kate, my daughter wears bifocals for the exact thing and you daughter/she also has hypotonia but the ophthalmologist never mentioned her eye condition being hypotonia. Interesting. Jennie Lindsey's site http://lindsey03.homestead.com/mygirl.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2002 Report Share Posted March 22, 2002 Kate what are these supplements supposaed to help with??? I would be interested to know!! , Mom to Aidan & Devlin, 30 weekers, now 2 years, IUGR, TTTS, Apnea (resolved), Bradycardia (resolved), ROP (resolved), pulmonary Stenosis, intrahepatic portal shunt (liver now resolved), delayed in every area ( global delays), speech delays...now looking into apraxia...... But HAPPY, BEAUTIFUL baby boys.....a constant inspiration and source of joy to their parents. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2002 Report Share Posted March 22, 2002 My daughter right eye does the same thing and we took her to the optomotrist and were told that she is far sighted. She now wears glasses and when she wears them, her eye stays straight. When she does not have them on her eye does turn in at times. I am by no means saying that your doctor is incorrect just giving you my situation. Thank you >From: " kschutzler " <kathryn.schutzler@...> >Reply- > >Subject: [ ] Hypotonia in the Eye >Date: Fri, 22 Mar 2002 18:59:42 -0000 > >Hi > >I recently noticed that my daughter's left eye was moving towards her >nose whenever she looked at something up close. We took her to a >pediatric opthamologist who told us she has hypotonia! Well we knew >she had hypotonia elsewhere (trunk & mouth) but never knew it could >also be a vision disorder as well. Luckily her vision is perfectly >fine, the doctor said we will watch it closely. If it gets worse, >they will put her in bifocals to strengthen the muscles. > >In addition, has anyone supplemented with high doses of vitamin B-6 & >Manganese? I have jsut started my daughter and was wondering if >anyone else has seen any results. > >Kate >PA, mother to Hannah (4, Apraxia & hypotonia) and Maggie,(8) > > _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2002 Report Share Posted March 23, 2002 Hi everyone interested in this topic. My son, too, has eye problems. He has been seeing an opthamologist since he was three months old and has had strabismus surgery, has been " patched, " which means wearing a patch on one eye to force the brain to use the other eye, and otherwise has normal vision. My view is that eyesight is very complicated. has global hypotonia and the thought is that it is that condition which causes his eyes to roam. However, he started with nystagmus, which is rapid, seemingly random movement of the eye, usually horizontally (back and forth). For that condition, he had many frightening tests (frightening, because a " positive " result would have meant very serious eye disorders or brain disorders). All were negative. The nystagmus is now only occasional and the patching and surgery were more or less successful. I know of other children who have been patched or wear glasses for problems with eyes that turn in or out. I think treatment depends on the root cause, but I'm not sure. I don't think we can really compare our children's treatment plans without knowing a lot more. In my son's case, it seems the lazy eye was a neuromuscular problem (hypotonia) and that the treatment involved surgery to adjust the muscle alignment and patching to assure that the brain developed proper vision in the weaker eye. If one eye is out of focus, the brain will ultimately rely only on the good eye and the child will lose vision in the bad eye. If that happens, it is because of the brain, not because there is anything wrong with the physical structure of the eye -- but blindness is blindness in my book. So the surgery and patching allowed his eyesight to develop more or less normally during the first eight years of his life. He continues under the care of a pediatric opthamologist. Vision stabilizes some time around age 14 and after that it is no longer developing. This is the extent my knowledge. Sue in Michigan Quote Link to comment Share on other sites More sharing options...
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