Re: Apraxia and CP

[Guest guest]

Vicky,

Welcome! I know there are others on this list whose children have CP

whether mild or more serious, so I am sure you will hear from them.

Since you are in Michigan you may want to check out the Kaufman

Center http://www.kidspeech.com Kaufman is well known in the

apraxia field. She has developed a test (Kaufman Praxis) as well as

cards used for therapy. I am not sure where in Michigan she is but it

may be worth checking out. There is also a support group there, I'll try and get

you that info as well.

Good luck and feel free to ask away!

denise

Mom to 3 yrs 8 months (verbal apraxia)

> I've just discovered the CHERAB website and this list as well. I

have a 7-year-old who has cerebral palsy and is non-verbal. She has

not been diagnosed with apraxia, but now that I'm reading up on it,

the symptoms seem to pertain to my daughter. I am wondering if

anyone on this list has a child with CP who has also been diagnosed

with apraxia? I would really love to hear from you and to talk about

your experience and whether the proEFA has helped your child. I am

also in the Detroit area and would like to connect with those who are

located here to see if there is a group that meets regularly and has

more information on apraxia.

>

> Thanks,

>

> Vicky

>

>

>

[Guest guest]

My 5 year old daughter has CP and apraxia. We have not tried the

pro-efa, so I can't help you there.

> I've just discovered the CHERAB website and this list as well. I

have a 7-year-old who has cerebral palsy and is non-verbal. She has

not been diagnosed with apraxia, but now that I'm reading up on it,

the symptoms seem to pertain to my daughter. I am wondering if

anyone on this list has a child with CP who has also been diagnosed

with apraxia? I would really love to hear from you and to talk

about your experience and whether the proEFA has helped your child.

I am also in the Detroit area and would like to connect with those

who are located here to see if there is a group that meets regularly

and has more information on apraxia.

>

> Thanks,

>

> Vicky

[Guest guest]

Thanks for the story. I can remember when my son was little,(he's almost 8

now) he would talk nonstop and we had to repeat everything back to him or he

would just keep saying it over and over. There's a motorcycle... There's a

motorcycle... Yes ph I see the motorcycle....Then we pass another one 30

seconds later and start over again.

I just got back from apple picking with my daughter's PreK class, and a

little boy has befriended her and talks to her constantly and offers to help her

with things that are hard for her to do. He is kind of like her big brother, so

I'm hoping she will open up a bit and begin using the few words she has and

maybe start adding to them. I asked him where his Mom works and her told me she

is a speech therapist for little kids. So maybe he has a soft spot in his heart

for a little girl who can speak much. Seeing him interact with her has made this

a good day.

Toni Wells <mommybizz@...> wrote:

My daughter Faith also has mild CP due to her birth. I had her evaluated at 8

months old when all the warning flags went up that she wasn't on track

developmentally, even accounting for her being preemie. The big problem she has

with her CP is her right side is still a bit weaker than her left, and her right

leg gives her problems walking. Her speech finally started coming along when

she was 2 years 4 months. Now she's a chatterbox and just doesnt stop talking.

She's in a 3 year old preschool class and the only difference we can see is that

her words arent quite as clear as most of the other kids. But her sentences are

longer and she uses longer words, and properly too. So it's a trade off. Other

than that, and being the shortest one in her class, she's like any other kid.

So for everyone waiting for a speech explosion and waiting for thier little one

(or not so little one) to talk, think of me. Especially as I'm driving through

town ready to pull my hair out as Faith feels the need to point out every stop

sign we pass saying " look. it's an octogon. It's red. Look it's another

ocotogon........ "

BTW Faith will turn 3 on October 17. :-)

Toni Wells

http://designs.merlins-avalon.com

[Guest guest]

Cheryl,

Thank you. I do believe my daughter will speak enough to be understood some

day. It is hard in the meantime to know what to do. She just started PreK and

the SPecial Ed teacher and SLP are trying to decide whether she should have a

communication device so she can communicate with people who don't know sign

language. They feel this will be helpful for her in learning to read, so she can

actually make the sounds that the letters make, and then eventually put them

together in her mind to create words.

Does your son have any kind of device or does her use sign ? I have such a

happy and very intelligent daughter, I am trying to help her communicate so she

doesn't get frustrated and act out. There are always tough decisions to make.

cheryl lambright <cherlamb@...> wrote:

,

I just wanted to tell you that you are not alone. My

son will be 3 at the end of the week and he too has

mild CP and apraxia. His was caused from a traumatic

birth. Our biggest issue is speech. He did not say his

first word until he was 2.7 and now says about 15-20

word approximations/words. I have had some bad days

where I feel so down but then I get on the computer

and hear all the stories of success it helps me go on.

Everyone who has been in a similar situation has told

me the speech will come, I just have to be patient. I

must tell myself that everyday to keep my spirits up.

I hope this helped a little.

Cheryl