Re: RE: to ......something wrong?

April 7, 2002

,

I am there with ya, I know how it feels.. Just thought I would send a hug out

your way. SOmetimes I think this is crazy.. I am all alone, then I read my email

to find ut there are others out there with me....

Thanks for your post.

Juli

Mom to 13, Kaitlyn 8, Keara 2 apraxia & sid.....

[ ] RE: something wrong?

I cannot tell you how much your support and responses have meant to me. It

has been a hard week for me I guess and I am very frustrated. I can feel

confident that my son is taken care of, he has CP and we have learned so

much about that I feel good for where he is right now.

has microcephaly so her head is very small, 44 cm last check. She is

about 21 lbs. She really looks proportional, not skinny and is tall enough to

go to 18mth-2T clothes. I have seen a nutritionist too who says pump up the

calories...but the thing is she hates to eat anything. She is really balking at

pureed food now. She will only drink milk. She will turn away water (or

watered down milk) and she has no interest in any juice..even the cool aid

stuff. I wonder if it is about her burping it back up (with the reflex). She

definitely has sensory issues. We chase her with a nuk brush, wash cloths,

electric toothbrush, and her brushing brush to do on her hands and feet plus

compression. She was a non cuddler before that but hey I would run (really

crawl or knee walk) away too. I may have to try the tip about the platex

non spill cup. You have to laugh about it, the first visit I had with the OT

she was recommending different cups and I pulled out my bin of assorted

cups.....all types of sippy cups ..handles, no handles, spill no spill, soft

tips hard tips, I even have a cup with the nose part cut out (from ). She

just looked at me and said wow.

I am so thankful for those of you who said it does get better. I assume that

is why many of the professionals we deal with have a wait and see attitude.

That is so hard for me. I am afraid to wait and see in case we are missing

anything so I get bent out of shape. Oh thank you so much for listening.

Mom to 4, and 20months

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