Guest guest Posted June 11, 2006 Report Share Posted June 11, 2006 We've infused at home for over 3 years now. The nurse comes to our house, starts the infusion, and stays for the first hour to monitor vitals. I take the needle out myself. At first, the nurse stayed the entire time. We were scared about doing it at home since we'd had a lot of problems at the doctor's office. After a few treatments, we were comfortable with the nurse coming to start the line and staying for awhile, leaving, and then coming back to remove the line. Finally, I learned to remove the line myself. It wasn't all that bad. Now, I hand my 6yo dd the flushes in the proper order and she removes the needle herself. Ah, the freedom of home infusions!!!!! I can't say enough how much we prefer them to office treatments. We get the same nurse almost all the time. She knows us and she knows Rebekah, so Rebekah is much less anxious about the pokes. After the line is in, she can go along to errands, stay home and watch TV, or nap in her own bed. We were terrified about starting home infusions at first, but it is a huge blessing now! On our 3rd anniversary with the home health company, they brought over pizza for lunch and delivered presents for a surprise party! They are like family now. And home treatment is much cheaper than an office treatment! Use that with your insurance company! Pam mom to 4 I was wondering if any of your children have their infusions at home. My husband is switching school districts and we may have to go to in home healthcare for 's infusions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2006 Report Share Posted June 11, 2006 Thanks for that encouraging input. Pam Mork <pmork@...> wrote: We've infused at home for over 3 years now. The nurse comes to our house, starts the infusion, and stays for the first hour to monitor vitals. I take the needle out myself. At first, the nurse stayed the entire time. We were scared about doing it at home since we'd had a lot of problems at the doctor's office. After a few treatments, we were comfortable with the nurse coming to start the line and staying for awhile, leaving, and then coming back to remove the line. Finally, I learned to remove the line myself. It wasn't all that bad. Now, I hand my 6yo dd the flushes in the proper order and she removes the needle herself. Ah, the freedom of home infusions!!!!! I can't say enough how much we prefer them to office treatments. We get the same nurse almost all the time. She knows us and she knows Rebekah, so Rebekah is much less anxious about the pokes. After the line is in, she can go along to errands, stay home and watch TV, or nap in her own bed. We were terrified about starting home infusions at first, but it is a huge blessing now! On our 3rd anniversary with the home health company, they brought over pizza for lunch and delivered presents for a surprise party! They are like family now. And home treatment is much cheaper than an office treatment! Use that with your insurance company! Pam mom to 4 I was wondering if any of your children have their infusions at home. My husband is switching school districts and we may have to go to in home healthcare for 's infusions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2006 Report Share Posted June 11, 2006 Hi, Christy! I am glad to hear that 's health problems were identified and that she is being treated. I hope that she is starting to feel much better. My daughter was diagnosed with CVID -- after a long period of not knowing what was going on. Her quality of life improved so much with IVIG but we chose to swith to SCIG (subcutaneous infusions) at home. For her, they are much safer (no more migraines/fevers and no vein needed) and it has " normalized " her life. There are a few kiddos here who have trialed off of IVIG for various reasons. Many ended up back on IgG therapy but a few are still doing okay with supportive anti-microbials only. So, to answer your question: it just really depends. = ) I have learned so much from being a part of this group -- and still learn new things all of the time! Welcome! mom to Dani, CVIDer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2006 Report Share Posted June 11, 2006 Hello to all, I just thought I'd jump in here. My son has been getting ivig at home for two years now and we have had the same RN and she stays the entire 4 plus hours and now I have the same ivig treatment and RN with it has worked for us. We also had severe anphax. for his 1st. treatment. The next 2 were in icu then we moved to home. We love it. I infuse in two hours takes longer. Dawn cvid mother to cvid ect. CHRISTY MCNIEL <christymcniel@...> wrote: Thanks for that encouraging input. Pam Mork <pmork@...> wrote: We've infused at home for over 3 years now. The nurse comes to our house, starts the infusion, and stays for the first hour to monitor vitals. I take the needle out myself. At first, the nurse stayed the entire time. We were scared about doing it at home since we'd had a lot of problems at the doctor's office. After a few treatments, we were comfortable with the nurse coming to start the line and staying for awhile, leaving, and then coming back to remove the line. Finally, I learned to remove the line myself. It wasn't all that bad. Now, I hand my 6yo dd the flushes in the proper order and she removes the needle herself. Ah, the freedom of home infusions!!!!! I can't say enough how much we prefer them to office treatments. We get the same nurse almost all the time. She knows us and she knows Rebekah, so Rebekah is much less anxious about the pokes. After the line is in, she can go along to errands, stay home and watch TV, or nap in her own bed. We were terrified about starting home infusions at first, but it is a huge blessing now! On our 3rd anniversary with the home health company, they brought over pizza for lunch and delivered presents for a surprise party! They are like family now. And home treatment is much cheaper than an office treatment! Use that with your insurance company! Pam mom to 4 I was wondering if any of your children have their infusions at home. My husband is switching school districts and we may have to go to in home healthcare for 's infusions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2006 Report Share Posted June 11, 2006 Camcniel, we do ivig at home for two years now. we have the same nurse too and now I get treatment as well. It is great....we love it. certaintly e-mail me of site if you need more info. nwd30@... Dawn cvid mother to cvid ect. camcniel <christymcniel@...> wrote: I was wondering if any of your children have their infusions at home. My husband is switching school districts and we may have to go to in home healthcare for 's infusions. We have been getting them in her drs. office. HOw does the infusions at home work? Does a nurse come to your house and stay for the whole infusion? I am a little nervous about changing. Our dr. may be able to work something out with the insurance company, but you know how they can be.Argggghhhhhh!!!! Thanks and have a blessed day!!!! Dawn Souza __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 Hi, We also do our infusions at home...for 5 years now. We have had the same nurse for five years and she stays for the entire infusion. It is wonderful. She works with our schedule so that we try to fit our treatments in on school days off and she comes in the afternoon so that my son only misses 1/2 of a day. Good luck! Kim, Mom to - 9, CVID Infusions at home I was wondering if any of your children have their infusions at home. My husband is switching school districts and we may have to go to in home healthcare for 's infusions. We have been getting them in her drs. office. HOw does the infusions at home work? Does a nurse come to your house and stay for the whole infusion? I am a little nervous about changing. Our dr. may be able to work something out with the insurance company, but you know how they can be.Argggghhhhhh!!!! Thanks and have a blessed day!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 Ashton receives her infusions at home, and always has. We are lucky, and have always had the same nurse. She started IVIG over two years ago. We receive all the supplies via FedEx. US BioServices supplies the pump, IVIG, tubing, etc.. Bayada Home Health sends the nurse. US Bio are the ones who hire the nurse, so we only receive one bill. We have never had any problems. Ashton has a port, and the nurse follows sterile proceedure. She enjoys her time with the nurse. She is like part of the family. L. mom to Ashton 12 CVID, Asthma, Dyslexia & Marina 10 Asthma, Migraines Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Hi, My son has been getting his ivig treatments at home for 18 months now. It is WONDERFUL!!! The same nurse comes every 28 days, and feels like part of our family now. The supplies are fedex'd from the pharmacy the day before. We haven't had any problems. The nurse comes Friday night after dinner (our choice) so Tim infuses while watching a movie and vegging on the couch. He usually falls asleep. We don't have to drive anywhere, worry about hospital germs, etc. Pam Tim - cvid age 16 Quote Link to comment Share on other sites More sharing options...
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