re-frustration

[Guest guest]

Gail,

That doesn't sound like a very good doctor to me. You can put your

grandson on a casein free, gluten free diet without him. I considered

doing that with my older ADHD ds. If the tests showed allergies to these

things I would guess you will have very good luck. You can get these

diets off the internet or I assume an OT is working with and she

should be able to give you them too. I know you are real busy with your

grand kids and a special diet is the last thing you need. But if the

diet takes away alot of symptoms it will be easier in the long run. Best

of luck. I hope things start going better. Dawn

I have had so many problems with my grandson who is five today.

We have had him for two years and he has been diagnosed with so many

things, that sometimes I wonder what is the real problem. He has dx of

ADHD, SID, PDD, Bipolar, Mild Mental Retarded, and the following speech

dx. Speech and language delays, Oral Hypotonia, Apraxix, and he also has

a small tongue.(I can't rember the word for that). He also has problems

with his teeth. He has had his four top front teeth pulled because they

came in black. He has a mouth full of fillings and stainless steel caps.

Yesterday one of the caps that was done in Dec. abscessed. They had to

do a root canal. They sedated him with Demerol. He was out off it all

day. He slept all day and all night. Even today he's acting a little

weird. I guess the Demerol stayed with him longer the six hours. Our

newest problem with him is allergies. His pediatrician did a blood test

that showed he had allergies. It showed he was allergic to milk, soy,

wheat, peanuts, almonds, dogs, and cats. So his doctor sent us to a

allergist. First of all he was the worst doctor we have ever seen. He

didn't even acknowledge . He said he doesn't trust that blood

test. He wants to skin test him. I said is a special needs child

and we have to do things differently with him. I asked how he would do

it. He said the same as anyone else. He didn't even know what PDD and

SId were. I just didn't feel comfortable with him. I asked if food

allergies can cause some of his problems and affect his behavioral

issues. He said NO. He said that only his asthma and runny nose could

cause his allergies. I have been reading a book called ,IS THIS YOUR

CHILD BY DORIS RAPP. She hits a lot of 's symptoms and says food

allergies can be a cause. So now I don't know what to think or what way

to turn. I did find out this is the only allergist in the area that

accepts Medicaid so I have no choice but to keep him.

Than we have the issue of what to do with him next year? He is

kindergarten age. He has been in special Ed. pre-school for the past two

years.He fuctions way below his age leval. His speech is about 18-24

months. He probally for the most part fuctions as a 2 1/2 year old.

However he has great problem solving skills. His teacher thinks he needs

more than what she can provide. She also knows he's not ready for

kindergartin. There is not much to offer in this town. We live in rural

Nevada. She is thinking of a autism class. He receives S. T. and O.T.

I'm writing a letter today to say I want tested in every area

and a behavior function assessment done before our end of the year IEP

meeting .

Sorry this is so long but I just needed to vent with all the

frustrations. Any help or advice would be very welcome.

Thanks, Gail