Final call...Directors for a major network documentary request for CHERAB

[Guest guest]

Hi everyone!

This is a last chance call to anyone who has an essentially nonverbal

child -preferably diagnosed with apraxia, with or without other

diagnosis, to participate in an major network TV Documentary which will

include world renowned scientists and MDs.

If your family is interested -you would need to be available for next

Saturday, April 13th, around noon to travel to the NYC studio for

filming. There will be a number of children there, so they also looking for

another SLP who has experience with apraxia to

interact with the children for this shoot and the next as well.

This group of families (and professionals) will be brought back

together at a later date for follow up. Out of the group -they may

focus on one family and professional to show a " particularly

charismatic child " for the documentary.

Again, this exciting opportunity is only a few days away at this

point. You would need to be able to get to the film production

studio next Saturday the 13th of April at around noon. I will

provide all the details once you contact me either via email at

lisa@... (lisa @kiddietalk.org) or call me at 908-626-KIDS

(5437) to give me your name and phone number and child's age and

diagnosed condition.. There are no age restrictions -or severity

restrictions - however " the older and more severe the child is

before, the more seriously the dramatic positive changes from EFAs

will be taken by the viewing public "

As I said in a post sent out last week, " If I can -I just want to

take a moment to say something. New parents ask us if we really see

results with EFA and it's typically the newer to our group parents

that answer -did you ever notice that? After all once you answer

once -and the question pops up again a few days later -and then

again. In addition to that - there is another reason its the newer

parents.

It used to be that if a child was diagnosed with apraxia, PDD or

autism, it was a hard future ahead for all. The EFAs have literally

changed that in many cases overnight-or within a week or two. The

road is still hard work, but the light, it's there now. The

progression sometimes is so rapid that it subsides the worry. I can't

tell you how many parents post to this list all scared and upset

about the diagnosis -who write to us amazed when they first started

the EFAs -typically ProEFA, and then you don't hear from them much

because their child is talking, interacting -and they can move on!!

I appreciate that feeling. Face it -we are all busy people -I'm

still here with all of you because my goal is to get the word out so

that other's can know this information that we as a group now take

for granted...so we can help all the children. Everytime I hear

about a child that talks for the first time on EFAs I get chills.

Just today I spoke to Mauri Blefeld's husband (Mauri runs the

Children's Apraxia Network of PA and is one of the contacts for the

Kaufman CHERAB meeting in AC) Her son, when I met him a bit

over a year ago when he was seven -was using an augmentative device

to speak for him, and some of his vocalizations sounded like grunts.

Mauri's husband told me how his son -who is just a few years shy of

ten years old, started to progress rapidly on the ProEFA -and now

just months later he's speaking in two word sentences and doesn't

want to even use the augmentative device anymore. Because...He's

talking!! Just think how many parents just like Mauri don't know to

try just giving their child some drops of fish oil every day.

This again is that opportunity to give our children, and the

communication impairments that blocked them, a voice - to the

children like ours out there who have mom's and dad's that don't own

computers, or who can't afford private evaluations -what happens to

those kids? What could happen if more knew about this? It's not the

name brand like it would be in a drug -it's the formula of DHA, EPA

and GLA -and anyone anywhere could make that. (And no I don't want

to say here what I'm doing yet with my own children that I've

confidentially shared with a few others -but when there is enough

anecdotal results from others of what we are now giving to our

children along with the ProEFA I will share it.)

This documentary and all the events coming up are all chances for all

of you to be involved and show you do care about communication

impairments in children -a condition that is the " so what? "

impairment of all time. So what?! We can all tell the story

of " what " and why we need awareness - please don't lose that passion

when we together can use it to help all of the children -which will

ultimately help your own child and mine much more than anything we

could ever do alone. "

Here are more details from a past post!

From: "