Guest guest Posted May 11, 2002 Report Share Posted May 11, 2002 Hi , And YES YES YES Jack my apraxic first child had them and they went away at like 26 weeks. But then His brother who is now 17 months had them too! He dosen't seem to have any speech problems but he is also on pro-efa and has been since 11 months. I always wondered about the cysts too after we realized the issues JAck had. You know I was thinking about them alot latley and was going to post but you beat me too it. The cysts are also a possible sign of trisomy 18. That is why when they did the level 2 ultrasound on both my boys they checked for growth and diformities on all organs, and checked for open hands. My second () I was in the ultrasound room for about 2hr. with them shaking my stomach because he just did not want to open his hand. The thing they said is it was weird that both my boys had them, I thought so too! Eileen mom to Jack Oral apraxia Si (3) and 17 months and using 2 word sentences and says some words clearer than JAck --- roddyt001 <roddyt001@...> wrote: > Wondering if anyone's child had choroid plexus cysts > during > gestation? My daughter Kennedy had them from 19-24 > wks. I read an > article saying that DHA development happens during > the same period. > Wondering if there was a possible link there? Either > the cpc's were > a sign that something was going wrong or the cpc's > caused damage to > the brain. (cpc's are cysts in the choroid plexus of > the brain) > > Traci > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2002 Report Share Posted May 13, 2002 my daughter sara had choroid plexus cysts present at 2 months of age (nobody bothered to mention these to me.....the way i found out was when i requested her chart when switching doctors when she was 18 months.....but thats a whole other story) they had done a few ultrasounds on her because of an unusually large fontanelle and they suspected hydrocephaly. all i was told by her former doctor was that there was no hydrocephaly. but anyway, sara is 23 months now, and we are still waiting for her first neurology appt in july. (we are on a waiting list for a sooner " urgent " appt.) i am curious to know if she still has the cysts, and if maybe they could be a contributing factor to some of the problems she is facing now. i had never heard of these cysts before, and i still dont know much about them. all of the literature i have come across is either too medical for me to understand, or just a description, with no effects mentioned. so if any of you have any info you'd like to pass on to me, i would be extremely grateful. thanks tami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2002 Report Share Posted May 14, 2002 my daughter's cpcs was seen on ultrasound at 18 wks gestation and resolved by 24 wks gestation. As far as I know she does not have them because we have never had an MRI done. But, we might find out soon because her dev ped wants to do an MRI if her FOC falls below 5%. Her FOC just recently crossed the 10% to the 5%. It has been gradually falling down the charts since 6 mo. There is little info out there on them. It is discouraging. Traci > my daughter sara had choroid plexus cysts present at 2 months of age (nobody > bothered to mention these to me.....the way i found out was when i requested > her chart when switching doctors when she was 18 months.....but thats a whole > other story) they had done a few ultrasounds on her because of an unusually > large fontanelle and they suspected hydrocephaly. all i was told by her > former doctor was that there was no hydrocephaly. > but anyway, sara is 23 months now, and we are still waiting for her first > neurology appt in july. (we are on a waiting list for a sooner " urgent " > appt.) > i am curious to know if she still has the cysts, and if maybe they could be a > contributing factor to some of the problems she is facing now. i had never > heard of these cysts before, and i still dont know much about them. all of > the literature i have come across is either too medical for me to understand, > or just a description, with no effects mentioned. so if any of you have any > info you'd like to pass on to me, i would be extremely grateful. > thanks > tami > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2002 Report Share Posted May 14, 2002 Hi Tami, Both my son's had CPC's during gestation. I can't believe your daughter had them and they did not tell you!! Absolutley disguisting! I was told that CPC's could possibly be from trisomy 18. When I asked them they basically said that if your child had them they would not live more than 2 days after birth!!! Imagine my horror! There is a great web site, www.choroidplexuscyst.org It is a message board but they have great parents who have been through it and are currently going through. Boy these are the times that I wished I had the computer then!!! Good luck Eileen --- TAMINEWMAN@... wrote: > my daughter sara had choroid plexus cysts present at > 2 months of age (nobody > bothered to mention these to me.....the way i found > out was when i requested > her chart when switching doctors when she was 18 > months.....but thats a whole > other story) they had done a few ultrasounds on her > because of an unusually > large fontanelle and they suspected hydrocephaly. > all i was told by her > former doctor was that there was no hydrocephaly. > but anyway, sara is 23 months now, and we are still > waiting for her first > neurology appt in july. (we are on a waiting list > for a sooner " urgent " > appt.) > i am curious to know if she still has the cysts, and > if maybe they could be a > contributing factor to some of the problems she is > facing now. i had never > heard of these cysts before, and i still dont know > much about them. all of > the literature i have come across is either too > medical for me to understand, > or just a description, with no effects mentioned. > so if any of you have any > info you'd like to pass on to me, i would be > extremely grateful. > thanks > tami > > > [Non-text portions of this message have been > removed] > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2002 Report Share Posted May 14, 2002 You should try znd get the MRI done before your meeting with the Nuerologist so the results can be reviewed before your meeting. Good Luck, Deirdre ----- Original Message ----- > my daughter's cpcs was seen on ultrasound at 18 wks gestation and > resolved by 24 wks gestation. As far as I know she does not have > them because we have never had an MRI done. But, we might find out > soon because her dev ped wants to do an MRI if her FOC falls below > 5%. Her FOC just recently crossed the 10% to the 5%. It has been > gradually falling down the charts since 6 mo. There is little info > out there on them. It is discouraging. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2002 Report Share Posted May 14, 2002 We were offered the MRI a few months ago, but I turned it down because I was a little worried to sedate her. And I didn't feel she had a life threatening condition. But, her dev ped informed us last week that if her FOC fell below the 5% then we would be proceeding w/ an MRI. So, we are going to wait and see if her FOC continues to fall. But, I will definetly arrange for a meeting w/ her ped neuro after the MRI! Thanks, Traci > You should try znd get the MRI done before your meeting with the Nuerologist > so the results can be reviewed before your meeting. > > Good Luck, > Deirdre Quote Link to comment Share on other sites More sharing options...
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