Re: question about progress

[Guest guest]

Hi! The only improvements I have seen so far are in speech and I

guess cognitive/self help. - like she tries to throw away her

garbage now and hands me her dishes and answers questions. Receptive

seems better, but has always been at age level. She also sleeps much

better. She used to wake up every 1-2 hours and now only 1 or 2

times a night from 8-7. The only " bad " things I've seen is loose

stools (may be a bug, but I haven't given her milk of magenesia for

1 week now. Before ProEFA she took MOM daily for chronic

constipation for the last year. She hasn't had any other bug

symptoms. So I don't know what is affecting her stools.), gas,

decrease in appetite (but again if she has a stomach bug this could

be causing the decrease in appetite). I worry about the decrease in

appetite the most because of her weight gaining problems.

Her PT noted that her strength and muscle tone have improved but she

is still very clumsy. I haven't noticed any improvement in fine

motor.

Overall I have noticed improvement. No " big " thing like talking in

sentences or a lot more words, but more consistency and attention.

Just seems to be more " there " and in tune to the world around her

instead of in her own little world. She also seems to have more

energy. Even her ped noted this at our last appt last Thursday. (he

doesn't know we started the EFA because I'm supposed to be waiting

on his ok from the pharmicist - I decided not to wait. Our

nutritionist said there was no harm and seems to me she would know

best)) I haven't seen any improvements in the SI issues. BUT we have

only been taking them for 14 days so far!

Traci

> Traci,

>

> I was curious to know how Kennedy was progressing. Is she still

> doing much better. Any new words? Has the ProEFA seemed to help

her

> clumsiness and fine motor skills also? Write when you can

>

> God Bless,

> AMber

[Guest guest]

Hey I forgot to mention she is more demanding now. She used to be so

passive and content to just sit there and smile. Now she is always

demanding my attention. I don't know if it is related to the ProEFA

or not, but it is a change that has come about in the past 2 weeks.

Traci

>

> > Traci,

> >

> > I was curious to know how Kennedy was progressing. Is she still

> > doing much better. Any new words? Has the ProEFA seemed to

help

> her

> > clumsiness and fine motor skills also? Write when you can

> >

> > God Bless,

> > AMber

[Guest guest]

Hi, Traci. Wow! This is what happened with Wiley on the supplement - gas

and looser stools and he was seriously constipated all the time before

Proefa too. I'm a little weary now about giving it to him again - last

Friday he had really bad diarrhea and it caused him A LOT of discomfort - I

worry that it'll come right back. What a bummer. I was really hoping his

system could handle it. Interesting to see someone else write in about the

tummy effects of proefa. Guess I'll try a little less each day if I start

again.

Betsy

>From: " roddyt001 " <roddyt001@...>

>Reply-

>

>Subject: [ ] Re: question about progress

>Date: Mon, 13 May 2002 21:11:55 -0000

>

>Hi! The only improvements I have seen so far are in speech and I

>guess cognitive/self help. - like she tries to throw away her

>garbage now and hands me her dishes and answers questions. Receptive

>seems better, but has always been at age level. She also sleeps much

>better. She used to wake up every 1-2 hours and now only 1 or 2

>times a night from 8-7. The only " bad " things I've seen is loose

>stools (may be a bug, but I haven't given her milk of magenesia for

>1 week now. Before ProEFA she took MOM daily for chronic

>constipation for the last year. She hasn't had any other bug

>symptoms. So I don't know what is affecting her stools.), gas,

>decrease in appetite (but again if she has a stomach bug this could

>be causing the decrease in appetite). I worry about the decrease in

>appetite the most because of her weight gaining problems.

>

>Her PT noted that her strength and muscle tone have improved but she

>is still very clumsy. I haven't noticed any improvement in fine

>motor.

>

>Overall I have noticed improvement. No " big " thing like talking in

>sentences or a lot more words, but more consistency and attention.

>Just seems to be more " there " and in tune to the world around her

>instead of in her own little world. She also seems to have more

>energy. Even her ped noted this at our last appt last Thursday. (he

>doesn't know we started the EFA because I'm supposed to be waiting

>on his ok from the pharmicist - I decided not to wait. Our

>nutritionist said there was no harm and seems to me she would know

>best)) I haven't seen any improvements in the SI issues. BUT we have

>only been taking them for 14 days so far!

>

>Traci

>

[Guest guest]

Traci -

Just an FYI - I understand that milk intolerance (not allergy) can

cause both diarrhea and constipation. Often they cycle. Just a

thought...

Marina

> Hi! The only improvements I have seen so far are in speech and I

> guess cognitive/self help. - like she tries to throw away her

> garbage now and hands me her dishes and answers questions.

Receptive

> seems better, but has always been at age level. She also sleeps

much

> better. She used to wake up every 1-2 hours and now only 1 or 2

> times a night from 8-7. The only " bad " things I've seen is loose

> stools (may be a bug, but I haven't given her milk of magenesia for

> 1 week now. Before ProEFA she took MOM daily for chronic

> constipation for the last year. She hasn't had any other bug

> symptoms. So I don't know what is affecting her stools.), gas,

> decrease in appetite (but again if she has a stomach bug this could

> be causing the decrease in appetite). I worry about the decrease in

> appetite the most because of her weight gaining problems.

>

> Her PT noted that her strength and muscle tone have improved but

she

> is still very clumsy. I haven't noticed any improvement in fine

> motor.

>

> Overall I have noticed improvement. No " big " thing like talking in

> sentences or a lot more words, but more consistency and attention.

> Just seems to be more " there " and in tune to the world around her

> instead of in her own little world. She also seems to have more

> energy. Even her ped noted this at our last appt last Thursday. (he

> doesn't know we started the EFA because I'm supposed to be waiting

> on his ok from the pharmicist - I decided not to wait. Our

> nutritionist said there was no harm and seems to me she would know

> best)) I haven't seen any improvements in the SI issues. BUT we

have

> only been taking them for 14 days so far!

>

> Traci

>

[Guest guest]

Thanks. She has been on milk for almost a year now and this is her

her 1st bout w/ diarrhea. She has had constipation since she was 6

mo. Tonight she is running a fever and coughing, so I am guessing it

is a virus causing all of this and has nothing to do w/ ProEFA. But,

she doesn't have diarrhea anymore!! Yeah!

Traci

--- In @y..., " marina3029 " <philipmary@z...>

wrote:

> Traci -

> Just an FYI - I understand that milk intolerance (not allergy) can

> cause both diarrhea and constipation. Often they cycle. Just a

> thought...

>

> Marina

[Guest guest]

Loose stool is a common side effect, but i think they suggest starting with

a lower dose and taking it with food. I read somewhere about the absorbtion

rate changing eventually.

----- Original Message -----

> Hi, Traci. Wow! This is what happened with Wiley on the supplement - gas

> and looser stools and he was seriously constipated all the time before

> Proefa too. I'm a little weary now about giving it to him again - last

> Friday he had really bad diarrhea and it caused him A LOT of discomfort -

I

> worry that it'll come right back. What a bummer. I was really hoping his

> system could handle it. Interesting to see someone else write in about

the

> tummy effects of proefa. Guess I'll try a little less each day if I start

> again.

> Betsy