Choroid Plexus Cysts Website

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Hi Tami-

Here is the Choroid Plexus Cyst Brochure, Website and Message board.

Perhaps these resources can give you some information regarding your

questions. Hope this helps.

Choroid Plexus Cyst Website

http://www.choroidplexuscyst.org/

Choroid Plexus Cyst Message Board

http://choroidPlexusCyst.org/cpc1.html

Choroid Plexus Cyst Brochure

http://www.montanapregnancy.com/Netscape%20version/cpcns.htm

> my daughter sara had choroid plexus cysts present at 2 months of age

(nobody

> bothered to mention these to me.....the way i found out was when i

requested

> her chart when switching doctors when she was 18 months.....but

thats a whole

> other story) they had done a few ultrasounds on her because of an

unusually

> large fontanelle and they suspected hydrocephaly. all i was told by

her

> former doctor was that there was no hydrocephaly.

> but anyway, sara is 23 months now, and we are still waiting for her

first

> neurology appt in july. (we are on a waiting list for a sooner

" urgent "

> appt.)

> i am curious to know if she still has the cysts, and if maybe they

could be a

> contributing factor to some of the problems she is facing now. i

had never

> heard of these cysts before, and i still dont know much about them.

all of

> the literature i have come across is either too medical for me to

understand,

> or just a description, with no effects mentioned. so if any of you

have any

> info you'd like to pass on to me, i would be extremely grateful.

> thanks

> tami