Re: Re: Question to everyone.../carnosine info

[Guest guest]

> I was just wondering, for those taking supplements of any sort, If

> you would post what supplements, how much, how it's helped, how

long,

> or anything you want to share. I'm pretty lost on where to start

and

> I think this will help. Thanks

Hi, Glad to see your post on carnosine. My son 12 years old apraxic and

expressive language disorder has been on 400 mg carnosine twice a day for 2

months. A noticeable increase in all areas of speech and language expression. I

will continue to supplement the carnosine.

[Guest guest]

Do you also use Pro Efa with it? How old is your child and how much do you

give?

Ilene Martire, NJ

Re: [ ] Re: Question to everyone.../carnosine info

Hi, Glad to see your post on carnosine. My son 12 years old apraxic and

expressive language disorder has been on 400 mg carnosine twice a day for 2

months. A noticeable increase in all areas of speech and language expression. I

will continue to supplement the carnosine.

[Guest guest]

,

Is carnosine the same as carnitine??? I think this information is very

interesting, I am going to have my geneticist look into it for me and

hopefully contact Dr. Chez. Myra has problems with frontal lobe seizures (I

don't want to say epilepsy because there have only been two so far), she's

hypotonic and had delayed myelin. Last MRI showed age approriate

myelination. She also has severe milk and dairy allergies. She had one

bottle of DHA Jr. and is almost finished with her first bottle of ProEFA,

but she still has the loose stools. The carnosine or is it carnitine helps

absorb EFA right. It also helps with muscle energy which would help with

the hypotonia. Plus is helps with weight gain, My' is 28 lbs and 30 " , not

too bad since she is getting really good with her walking. I posted earlier

her imporvements in vocalization which are not quite as dramatic as others

experience but if she is still not absorbing as much as we giver her then

that could have something to do with the slower progress. And Dr. Katz told

me that it would take longer for us to see results with her because of the

delayed myelin. He suggested the DHA Jr. when we were interested in aiding

the myelination deficiency.

Thanks for sharing your information, I am so impressed with your dedication

to helping your children and others.

Deirdre

[ ] Re: Question to everyone.../carnosine info

> Hi !

>

> You have NO idea how happy I am to hear from you!!!! So I'm not the

> only one -like I said I was a bit nervous because when Sallie Bernard

> sent the first post about carnosine nobody commented on it -and then

> I asked around and I couldn't find anyone that tried it.

>

> I'm curious how the natural effects of carnosine a naturally-

> occurring combination of the two amino acids alanine and histidine

> relates to docosahexenoic acid (DHA) and eicosapentaenoic acid (EPA)

> and gamma-linolenic acid. And I do believe that there may be at

> least one researcher who is also curious, or at least that's what I'm

> told.

>

> So anyway -how did you learn about carnosine, and were you too at

> first nervous to try it? I discussed it with Tanner's developmental

> pediatrician Dr. Marilyn Agin - however whatever information she has

> on it in relationship to being helpful to children with communication

> disorders I sent to her. Did you purchase the carnosine from

> http://www.carn-aware.com or elsewhere? I'm thinking of adding this

> to the http://www.shop-in-service.com/efa_basics.htm resources page

> of the CHERAB site -but I wanted to hear from others (and quite

> honestly I was looking for a bit more than one!!)

>

> Your child is probably able to swallow the capsules -but if not do

> you also mix the powder with the water? You say you have seen marked

> improvements in speech and language -and I discussed this with the

> one doctor who worked on the study. Since we are seeing the same

> results with Omega 3 and Omega 6 supplementation like ProEFA -how can

> I tell if a surge if from one or the other? And will both together

> be better or worse? So again I'm curious if the two together can be

> a better mix? I personally am not willing to stop supplementation of

> fish oil for Tanner again -and I know he wouldn't want that either.

> (my kids ask for it -and as an adult if you take it you probably want

> to take it for the same reason -you do notice it helps with memory,

> and mood)

>

> Speaking of which -do you know if adults take carnosine? Just

> curious since many of the parents who have conditions that run in the

> family that benefit from PUFA supplementation have children that

> benefit too- conditions like heart disease, Crohn's disease,

> rheumatoid arthritis, cancer, mental health, and of course the

> dreaded eczema. I know I had a great memory before my first son was

> born -and then not as good to " Oh no am I developing Alzheimer's or

> what?! " after my first and then second was born -finding myself standing

in a room and forgetting why I went

> in there. I started taking fish oil after I read Dr. Stoll's The

> Omega 3 Connection book because my dad unfortunately died of a heart

> attack when I was only 23, and my mom had open heart surgery -so as a

> preventative. And guess what? I got my memory back!!! I wasn't

> counting on it -but a great side effect. So I'm curious about carnosine

for us too -the parents.

>

> =====

>

[Guest guest]

To jump into the carnosine conversation, is this a supplement that was given

because your loved one is deficient in it, or is this something that you are

just trying to see if it's helpful with the symptoms?

I am curious because my daughter MiKayla had many signs of being deficient in

carnotine but all of her labs came back normal. In her case however she is

making great gains and recovery from a sleep disorder. Now that she's sleeping

at night life has gotten much better for us all.

Tammy

[ ] Re: Question to everyone.../carnosine info

Hi !

You have NO idea how happy I am to hear from you!!!! So I'm not the

only one -like I said I was a bit nervous because when Sallie Bernard

sent the first post about carnosine nobody commented on it -and then

I asked around and I couldn't find anyone that tried it.