Re: question for everyone re supps

[Guest guest]

Going to give all the history (long) so I won't have to do it again

and so you can get your questions answered. I'm happy to do it, but

I just asked all these questions, too...Here goes!

My oldest will be 4 in July(and he's about 43lbs), has tons of words

but is largely unintelligible except to his family and our closest

friends. He receives ST 1X per week, and we just added a second

session. He's been diagnosed officially with dyspraxia. I also feel

he's got some sensory issues, but we'll wait for the dev ped to

diagnose that...He's been on 2 ProEFA caps a day for about 11 days

now - we use the horsepills from Nordic Naturals. He gets one in the

morning in his juice and another in the afternoon in some root beer.

We've noticed some changes, but as he was already verbal it's a

little hard to differentiate hopes from reality. What we have

noticed is a difference in content - a depth that was lacking

before. Also, there is less repetitive speech and he is more likely

to try to correct his pronunciation on the ProEFA. Just what we've

noticed.

My little guy is 2.5 (35lbs) and probably only has 15 words

(including bump, moo, etc.). He has more phonemes than my older son

did, so my concern is in a different place. We need to have him

evaluated, but he is extraordinarily uncooperative and I fret they'll

label him autistic. After a long talk with my fab pediatrician, we

decided to have a dev ped look at my 4 year old to see if there was a

genetic issue (it seems to run in my husband's family) and then look

at Riley later. I've been giving him 1 ProEFA a day for about 7

days - in the morning. We've noticed more babbling, though most of

it isn't terribly productive - alot of mamamama or dadadad or

bababab - but I'll take what I can get. What we have noticed with

him is an increase in interaction - more smiling, more game playing,

just more interaction in general. We've also added about 7 words in

the past week.

I hope this helps. If you're trying to make the decision, my

suggestion would be to call and order the stuff. My mother-in-law

who grew up in England during WWII told me that they all got fish oil

daily because their diet was so poor and they knew it was important

for brain development. How can it hurt? If it's an affordability

issue, that's different, but if you're just questioning it, let me

say that I wish I had bought it 4 mos ago when I first read about it

rather than waiting...We've not seen out-of-this-world changes, but I

wouldn't give back what we've gotten - and it's not been 2 weeks!!

Finally, no side effects noticed - digestive or otherwise.

Good luck!

Marina

--- In @y..., " adamcthompson " <addobrat@a...>

wrote:

> I was just wondering, for those taking supplements of any sort, If

> you would post what supplements, how much, how it's helped, how

long,

> or anything you want to share. I'm pretty lost on where to start

and

> I think this will help. Thanks

[Guest guest]

Thanks for answering. Sorry for asking this question again, I just can't seem

to decide what would be best for Brady. Actually we started the ProEFA 6 days

ago and we've been giving him two a day (since a lot of the oil stays in the

glass). It's really hard to tell a difference though because 11 days ago

Brady broke his arm and three days ago he became VERY constipated so he's not

been feeling all that great. I will say that he has been saying the

" mamamama " sound for the first time in a year, I don't know if he's saying if

for a specific reason, but at least he's making the " m " sound again. He also

started telling me " no " very clearly and appropriatly a few days ago which is

new. About two weeks ago, for two nights in a row, he told me " nye nye (nite

nite) " but that was before ProEFA and I havent' heard it since. Bradys'

babbling more too and making a bigger variety of sounds but I think this has

been progressing for a month or so now so I'm not sure if I should credit

ProEFA or not. Our biggest problem with measuring his progress is his

inconsistency. Sometimes, on a good day, Brady babbles to us all day (and

sometimes we *think* we hear a word), he plays, has constant eye contact,

follows directions, pays attention, etc.. BUT sometimes he has a bad day and

does little of these things, we can always getting his attention

though,occasionally is just harder work. Thanks again for answering and I

hope your sons' continue to progress.

Donna Mommy to Brady 29 months

and Connor 7 weeks

[Guest guest]

That does make me feel better. I'm still not sure about the ProEFA. I really

don't think it's the cause of Bradys constipation because this is a frequent

problem for us. I also realized that Brady is like this a lot when he is not

feeling well/having trouble to go to the bathroom, the only thing different

this time is that he is laying around and seems a lot more tired (he hasn't

been sleeping well though because if the consipation). He was excessively

" spirited " anyway so the lack of energy isn't holding him back that much.

After he was able to have a small bowel movement he perked up a little and

babbled, then he had to go again and went back to being cranky/tired/quiet

but thats understandable. I dont' see him in any pain (except the bathroom

thing) and he's not running a fever or acting disoriented or anything so I'll

think i'll stick it out for a little while longer. Thanks for everyones

replies. It's scary when you think you might be doing something to hurt your

child.

Donna Mommy to Brady 29 months

and Connor 7 weeks

[Guest guest]

Hi Donna,

That's so difficult - I know what you mean ! I also used to struggle

because I would be looking at him so hard and I found it difficult to

get perspective.

If he is constipated too he may not be feeling well and that may

affect him in any number of ways, including increasing or decreasing

his speech. Don't apologise for asking questions and being unsure -

that's what mums are for !

For what it is worth Charlie has good days and bad days - and some of

his bad days are often imediately after we have changed something in

his diet...removed a food or added a supplement .

Each child needs time to react to things and you can often find it

hard to judge what is going on as your child adjusts. I think many

children are different and experience different reactions to the

introduction of EFA's etc. Some may exhibit hyperactivity or poor

sleep - you may just be witnessing your childs reaction. I'm sure

others will be able to comment on their experiences for you !

I would never persist with anything that was distressing my son or

causing him pain but I don't think that is what you are saying. I

would have thought that six days is too early to identify any

progress or problems and it may be worth sticking it out ( unless you

are concerned).

Re your childs behaviour generally - that all sounds really positive

and again if I may use Charlie as a reference point ( although he is

not the same as your son ). I have often noticed that at certain

times , in certain situations Charlie is more " with us " than others .

I think those times are the ones when he is feeling well , free from

stress and it is easier for him to accomodate us . When he is unwell

or bothered , if things are different or he is just " out of sorts " I

think the effort becomes just that - an effort. He talks less ,

interact less and is harder to connect with.

None of which is saying that your son and mine are the same but maybe

your little one loves you and loves connecting with you but it is

just a bit harder for him than other kids . Does that make any kind

of sense ? If he is feeling different that may make him a little more

closed down and less connected than usual . That is what happens with

my boy .

Anyway - let us know what you decide and how you get on !

Regards

Deborah Dore

> Thanks for answering. Sorry for asking this question again, I just

can't seem

> to decide what would be best for Brady. Actually we started the

ProEFA 6 days

> ago and we've been giving him two a day (since a lot of the oil

stays in the

> glass). It's really hard to tell a difference though because 11

days ago

> Brady broke his arm and three days ago he became VERY constipated

so he's not

> been feeling all that great. I will say that he has been saying the

> " mamamama " sound for the first time in a year, I don't know if he's

saying if

> for a specific reason, but at least he's making the " m " sound

again. He also

> started telling me " no " very clearly and appropriatly a few days

ago which is

> new. About two weeks ago, for two nights in a row, he told me " nye

nye (nite

> nite) " but that was before ProEFA and I havent' heard it since.

Bradys'

> babbling more too and making a bigger variety of sounds but I think

this has

> been progressing for a month or so now so I'm not sure if I should

credit

> ProEFA or not. Our biggest problem with measuring his progress is

his

> inconsistency. Sometimes, on a good day, Brady babbles to us all

day (and

> sometimes we *think* we hear a word), he plays, has constant eye

contact,

> follows directions, pays attention, etc.. BUT sometimes he has a

bad day and

> does little of these things, we can always getting his attention

> though,occasionally is just harder work. Thanks again for answering

and I

> hope your sons' continue to progress.

> Donna Mommy to Brady 29 months

> and Connor 7 weeks

[Guest guest]

Regarding constipation. What does your doctor say about this? I know that

exercise helps constipation, and some fruit juices. I would be concerned

about constipation because my friends little boy (2 at the time) was very

constipated and after being Xrays taken, his bowels were backed up quite

seriously and they had to clean him out. I am not trying to scare you, but

has your pediatrician researched the cause and remedies for you? Let us

know! Good luck!

[Guest guest]

I would also be interested to know if anyone has tried any special

diets or food eliminations w/ or w/out success. It seems I keep

seeing these special diets now being recommeneded for children w/

any developmental disorder - not just autism or PDD.

Traci Mom to Kennedy 2.0 and Hunter 4.6

--- In @y..., " adamcthompson " <addobrat@a...>

wrote:

> I was just wondering, for those taking supplements of any sort, If

> you would post what supplements, how much, how it's helped, how

long,

> or anything you want to share. I'm pretty lost on where to start

and

> I think this will help. Thanks

[Guest guest]

Actually my son was able to pass a lot if not " everything " tonight. It was

painful though and I hated seeing him go through that.again. The last time,

which was about a week or so ago (his constipation usually occurs on ave. one

time or more a month), he cried so hard it broke my heart. He eventually

passed it too but I know it was painful. I've called the dr's office about it

before to do something to help him but I always get the same recommendations,

" use vaseline, it'll help ease the passing " , " have him drink more

juice/fluids " , etc..Needless to say these aren't the best solutions. Trying

to get him to cooperate for the vaseline when he's hurting is very difficult

and heart-breaking and fluids only prevent the problem, when it's too late

those don't help. The last time it happened, towards the end, I told my

husband if he didn't have a BM in a couple of hours then we would just go to

the hospital- thankfully he did. I know how badly he must feel because almost

immediatly afterwards he is ready to play and so happy, of course he's " sore "

though. I think when I called the dr's office today the nurse realized this

was a too frequent event and said she'd speak with the dr and get back to me

tomorrow so hopefully we'll get to the bottom of the problem. Thanks for

responding. I know how your friend must have felt, I had a problem " almost "

that severe after having my son and I can say that it was worse than the 37hr

labor! Thanks again.

Donna Mommy to Brady 29 months

and Connor 7 weeks

[Guest guest]

Well, I did find out from my mom's doctor, that fish oil, " CAN " cause

constipation?? I am not saying it does all the time, I have to put my sons

on a stool softner. Once I stopped PRO EFA, they did not have constipation

anymore, 2wks., But I had to start Pro EFA again, I do believe in it But

then I see the pain my kids go through in BM, is horrible,!! I watch their

diet, lots of water, apples, peaches, raisins, sweet potatoes...but they

still need a supplement of stool softner.

JOYA

[Guest guest]

About the constipation you referred to in Brady....

My son had a horrible bout of this when introducing more iron into

him. So our dr's office suggested a suppository. It worked

wonderfully. Wasn't pleasant to give but what a relief. I'll look up

the name if you are interested.

Lynn

Austin 27 months with possible verbal apraxia and LCA-which is a form

of congenital blindness