Guest guest Posted November 28, 2006 Report Share Posted November 28, 2006 Terry-I am so sorry to hear that you are going thru such a rough time. May I pray for you and your family? Peace, Amy (mom to Bradley 4 IGA Def, and 8) _____ From: [mailto: ] On Behalf Of cerdaclan Sent: Tuesday, November 28, 2006 9:39 AM Subject: [sPAM] Running on empty You know, when things get tough....I think about just cutting everything out of my life and curling up in a ball....I told a friend yesterday that I would not be here (in this forum) for a while. But after coming a bit to my senses this morning, I realize that this is likely the only place that people understand...where I can get support to stay afloat. I was so excited in here a few weeks ago when it seemed things were going our way....we thought we had a teacher for the girls....we thought the Beckett waiver would be cut and dry.....we thought things were looking up. Yesterday, I sat and watched a news story that was done about our family on a copy DVD of the broadcast....and I fell apart realizing that it just doesn't change. I have my precious daughter who I am worried about, but the docs won't respond. I have the school district that told me that they will not write an IEP for my children because they are too far ahead and that they will not write an IEP until they fall behind....but in the meantime, if I want a teacher, they will teach them at an age appropriate level....not a level that they are functioning at. I have piles of paperwork for the Beckett Waiver, but the docs won't get the paperwork done and submitted to support the application...it isn't that they won't....they are supportive of it...they are just too busy to get it done and I have a deadline of December 4th. Then yesterday, my husbands employer...the lovely federal government decided to give all of their dedicated police officers a special christmas gift....they cut his monthly paycheck by over $800 without warning. We stayed up all night last night panicing.....he is ready to stand out on a street corner with a sign that reads " will enforce laws and protect your country for groceries " . Our home is falling apart. We are living out of a 16cu foot fridge that has only enough room for our medicine and a small amount of groceries. I am waking up most mornings feeling like I am dying.....I am so exhausted. I don't understand....I don't get it. I ask what I have done to deserve this. I have spent so much of my life helping others....giving.....supporting.....never with expectations....but at some level....I wonder why nothing good ever happens to us..... In my heart....I know I won't die....I know that we will be ok.....I know that good things happen to us....I remind myself that there are so many people who have it so much worse than we do. I know that, because of who I am....I will get over this and put it behind me and keep pushing ahead in hopes that just one thing will go the right way. But here we are at Christmas, and my husband and I have realized that we will not be able to get gifts for eachother this year....that my family will be angry with me when their gift giving is not reciprocated......and frankly, we are not sure how much longer we will have a home. I spend day after day being the " rock " for this family, but I feel that I am crumbling. Don't worry, I am sure I will be better and over this in a few days....perhaps even a few hours....but for now, I need to whine a bit. Terri (mom, 46, Molly 6 and Maggie 4 PIDers....probably CID...but who knows) Quote Link to comment Share on other sites More sharing options...
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