Re: Is Anyone Here being followed by a Neurolgist for their AS???

November 4, 2006

Sometimes autism has co-morbid neurological symptomology or

differences.

In my case, I was simply dx'd by a therapist and that was it.

I would ask what his reasons are for sending you on to this

neurologist. If there is no reason other than the fact that this is

standard procedure, then I would personally elect not to go.

Remember that it is YOU who are in control of your own medical

welfare, and if you do not wish to go to a neurologist, or do not

think it is necessary, then do not go.'

Tom

Administrator

Hello Everyone,

My GP is sending me to a Neurologist because I have AS and he feels

that Nuerologists, as well as psychiatrists, should " follow " on a

regular basis. Does anyone here have experience with being followed

by a neurologist for their AS? I don't have neurological symptoms,

per se; I exercise, do yoga and some weight lifting as well as

eating well with an empasis on green vegetables. I am healthy, other

than Celiac and other skin autoimmune diseases and my allergies are

only to major antibiotics and molds - well and bee stings.

I am not against having another doctor - I just wondered if others

had any suggestions on how to work with him - questions I might ask

and concerns that I should share.

Thank you!

Deborah

November 4, 2006

Dear Tom,

Thank you. I have to go for hand numbness, anyway - I was installling a floor

and injured

my neck and thus I am waking up with my arms asleep .. .

I was diagnosed by a psychiatirest - my husband - and then I sought out an

independent

therapist who specialises in AS for a number of years - in Ottawa - just to make

sure that

he was correct (I have a Ph.D. in psychology and do not feel that people have an

ability to

diagnose their family) (Nor did I feel that I had the perspective to diagnose

myself - and

autism is not an area of study and expertise for me)

My doctor simply felt that in this provence - that there are so few resources

for those who

speak English. the Autistic services here are mainly in French and I have

trouble following

them - I have enough trouble working and speaking English!!!!

I agree with you completely that no one should have any service that they don't

want - it is

just that it is very difficult to see a specialist here and my doctor thought

that maybe I

should see if the neurologist would follow me for my AS . . . . I should call

Dr. Schnurr

who diagnosed me in Ottawa and ask what her take is as far as AS and

Neurologists.

My husband has paranoid schizophrenia which has consumed our lives for the last

number

of years - and all my free time - so I am now just starting to catch up and

look at all that I

can re AS and trying to meet other adults who are consciously dealing with it.

(My

cousins, brother, uncles and several friends don't want to deal with it . as

adults they just

feel they are where they are. = we are in our fifties and older and I do find

that seems to

be a theme with older aspies that I know.)

It is easier here to meet the prime minister than to see a specialist . . so I

just thought I'd

get some guidance in what I might ask or want to know . . .

thanks!

Deborah

>

> Hello Everyone,

>

> My GP is sending me to a Neurologist because I have AS and he feels

> that Nuerologists, as well as psychiatrists, should " follow " on a

> regular basis. Does anyone here have experience with being followed

> by a neurologist for their AS? I don't have neurological symptoms,

> per se; I exercise, do yoga and some weight lifting as well as

> eating well with an empasis on green vegetables. I am healthy, other

> than Celiac and other skin autoimmune diseases and my allergies are

> only to major antibiotics and molds - well and bee stings.

>

> I am not against having another doctor - I just wondered if others

> had any suggestions on how to work with him - questions I might ask

> and concerns that I should share.

>

> Thank you!

>

> Deborah

>

November 4, 2006

" My husband has paranoid schizophrenia which has consumed our lives

for the last number of years - and all my free time - so I am now just

starting to catch up and look at all that I can re AS and trying to

meet other adults who are consciously dealing with it. "

When I found out I had AS I wanted to know if there were others out

there, but didn't know how to find them.

When I found out that there were web forums, I was pleased. Until

then, I thought I was mostly alone. I started out on Aspergia, which

once had a very simple posting structure like this one, but with even

LESS bells and whistles. It was very intimate, and the conversations

we had there are much like the ones you've been seeing the past few

weeks or so.

The setup you see on most big web based forums was what the second

Aspergia board looked like, and then the board became less intimate,

and got filled up with trolls.

It feels good when you meet others with AS and realize that, not only

are they NOT that different from you, but they are not that different

AT ALL.

Physchologists make it out that we are all some sort of social rejects

with a bit of weirdness thrown in that are too clueless to know that

we want to be medicated and reprogrammed into socialites. Nothing

could be further from those statements.

I think for the most part we like ourselves the way we were made, we

feel comfortable being alone or relatively friendless and anti-social,

and our logic, common sense, and intelligence would get us through if

the NTs could respect those traits.

Anyway, here we can be ourselves, and we can learn to like and love

ourselves. That is my hope anyway.

Where was I?

Oh yeah...

These forums were started because I wanted to meet others with AS just

like you do, and on a deep and intellectual level, rather than on a

shallow fluffy level like on some of the big boards.

" (My cousins, brother, uncles and several friends don't want to deal

with it . as adults they just feel they are where they are. = we are

in our fifties and older and I do find that seems to be a theme with

older aspies that I know.) "

People mellow with age, and they also tend to " mature " socially. By

this I mean they become more accepting of themselves and of others.

Think about THAT one if you will. Whereas society says that we must

conform, it seems that once you get past the age where everyone has to

compete for sexual partners, socializing gets put on the back burner

in terms of importance.

But for some reason the psychological community seems not to be able

to make such connections of thought, and by the DSM IV anti-social

behavior is still connotated with the word " bad. "

Tom

Administrator

November 4, 2006

Do not stay with these doctors. They obviously see you as a guinea pig in their sadisitic, psychopathic sideshow. Doctors aren't your answer. If you're doing okay for yourself by doing yoga and eating healthy then why screw around with it? Why risk it by allowing a drug-warlock to have an influence over you? I don't know alot about neurologists. You can't work with the psychiatrist. I knew a guy who was put on more than 6 different medications for several bogus psychiatric illnesses. He didn't get help like he should have. He ended up shooting his family while they were asleep, then shooting himself dead. Your GP is probably a "dominant personality". In that case you won't convince him of anything. Alot of them develop malignant narcissism. I haven't read any posts after this one so, it's possible some people have said the same thing I have considering that a couple people in this forum are struggling with the system right now. All I'm saying is choose your battles

carefully and don't try to fight the strongest corporation in the world, the medical industrial complex. They will chew you up and spit you out. According to their law you, as an Aspie have no logic and therefore have no right to happiness. zarinangel <healingintoauthenticity@...> wrote: Hello Everyone,My GP is sending me to a Neurologist because I have AS and he feels that Nuerologists, as well as psychiatrists, should "follow" on a regular basis. Does anyone here have experience with being followed by a

neurologist for their AS? I don't have neurological symptoms, per se; I exercise, do yoga and some weight lifting as well as eating well with an empasis on green vegetables. I am healthy, other than Celiac and other skin autoimmune diseases and my allergies are only to major antibiotics and molds - well and bee stings.I am not against having another doctor - I just wondered if others had any suggestions on how to work with him - questions I might ask and concerns that I should share.Thank you!Deborah

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November 4, 2006

>

> Hello Everyone,

>

> My GP is sending me to a Neurologist because I have AS and he feels

that Nuerologists, as

> well as psychiatrists, should " follow " on a regular basis.

I think it's always important not to do antyhing your doctor, or

teacher, or textbook, personally chances to " feel " is right, if you

know it's just down to personal chance that you could have a different

doctor who doesn't feel it. It's important to have your own feelings

and not just someone else's, determine your life.

November 4, 2006

thank you. I am going to get in touch with the woman psychologist who did the

second

diagnoses. As I have posted again - people here are in the dark in Quebec. The

political

thing isolates the information. My doctor is in his seventies - wonderful - and

is only

trying to find services that might be supportive. Seeing any specialist is

harder than

meeting STephen Harper, the current Prime Minister - once one is " in " then a

doctor will

follow them - so I guess my question is more about what a neurologist might be

able todo

for someone with AS.

I have " gained " the right to see him as I have a two year problem with a neck

injury that

causes my arms to fall asleep when I am sleeping - which then causes me to wake

up!

And I have constant numbness in my right hand - if I put in a tiled floor or

hardwood floor

- both arms are numb, ache and I cannot use my computer keyboard for days - so a

neurologist is finally going to see me . . .

I will simply ask him what he might be able to offer me re my AS . . . I don't

have

depression or anxiety that I can't " treat " with the walking, yoga and breathing

exercises

that I do, as well as strict, gluten free diet . . . but I do at times have

balance problems -

so maybe he can help with that.

thanks for your help. Having a Ph.D. in psychology and working in the medical

field for

years - right now marooned because of a Divorse situation and my husband, who

has

Paranoid Schizophrenia thinks that I am out to get him so he has brought a

restraining

order against my speaking with any of our former colleagues (my husband thinks

that I am

living in his head, trying to destroy him - it is the disease, not the person

that I know

under the disease because we never had a fight or anything before he started

spiraling

downward - he says that I live in his head and control his thoughts!!!! It is

disconserting)

- your advise is appreciated as I always advise people to do what is best for

them. I

studied a bit with Bernie Siegel in the early eighties and he used to say . .

" In the hospital

or doctors office - if they can't explain why something is necessary - don't

take off your

clothes!!!!! " It is just that this medical system is so overburdened and

under staffed that

I wanted to see if anyone out there had some suggestions as to what a

neurologist could

do for us . .

Thanks again,

Deborah

> >

> > Hello Everyone,

> >

> > My GP is sending me to a Neurologist because I have AS and he feels

> that Nuerologists, as

> > well as psychiatrists, should " follow " on a regular basis.

>

> I think it's always important not to do antyhing your doctor, or

> teacher, or textbook, personally chances to " feel " is right, if you

> know it's just down to personal chance that you could have a different

> doctor who doesn't feel it. It's important to have your own feelings

> and not just someone else's, determine your life.

>

November 6, 2006

Deborah,

I have a similar situation as yourself. My son has ASD it is through

his DX that the pieces of my own family history came up. I have

considered a developmental psy to dx me and " Follow " me if you will.

As you know in your own profession I feel that a psy can speak to me

without breaking me Intellectually. People tend to lie to themselves

as well as others (I don't think Aspies do this) I don't require

compliments to operate. As you stated our society is built on lying

and deception leading to mating, oh and other purchases. I was never

attracted to the beautiful people as beauty was usually a surface

condition, as you wrote of your realities, past the mating age " need

for deception " dissipates. This makes the condition difficult for

woman such as ourselves. We (woman) " fit " nowhere, as we don't play

with the " rules " to choose the mate that is largest and grunts most.

As the men here have stated this is difficult for aspie males and

females. WE woman are expected to like Barbie, shopping, and big

hulking males that can protect us. False advertising(for as you stated

abusive parents teach a child that there is no protection(it comes

from within or nowhere) but some woman still get lost. If you know

what you want from a neurologist, then take the chance, don't be

railroaded and say no when you want to. They are unlikely to chain

you up and electrode your brain to force you to normalcy.

I couldn't help but notice your mention of your diet. I cannot

process complex sugars. Neither can most of my ancestry. Nor can my

son. Simple sugars are ok but disaccharides or polysaccharides result

in more than upset stomach, the reading also points to many AS

behaviors Stimming, head banging, muscle pain etc. I have just found

this. Although it has been around for 30 years. I wonder how many of

us are have been affected by our diet? In my son's case diet cause

behavioral changes, compliance, but what happens when it is more

subtle? Like in my own case. My grandmother whom most considered

normal restricted her own diet to chicken and rice. Sadly I believe

her inability to break down the rice killed her. Our bodies aren't

built for the processed foods we have, and it has a neurological

effect. I know this wasn't what was asked

The news talk about the " susceptibility gene " what if it is

dysfunction due to malabsorbtion of nutrients. This is also for

drumthis. I believe you are correct in your wholistic approach.

heavy metals in our environment, exacerbate a digestion issue and

result in atypical yet focused behaviors. All of these are used to

explain our environment. We have sensitive countinenecs, as a group I

find all of us sensitive, people whom by and large have been hurt by

socialites.

November 13, 2006

Dear miminm and all,

thank you for your post. As an update i went to the Neurologist and he has

ordered tests

for the Sciatica that I got when twisted on a ladder and the numbness in one

hand and

falling " asleep " of both arms when I sleep - that wakes me up! He feels the

arms are from

an accident I had when installing hard wood floors a few years ago . . . .

I spoke to him about the Asperger's and he said that normally, in Canada, that

the

neurologists don't follow unless there are things that we feel we need from

them. He

knows that there are few services in Quebec for English speaking people - He was

very

nice about it, asked intelligent questions and said that he was availible for

anything I

might feel he can help me with.

So that was a very positive experience.

I already have my diagnoses - so I am not worried about things along that line.

Here in

Canada there are few support networks for support for adults except in British

Columbia

and some in Ontario - perhaps in populated areas of the maritne provinces and

the central

ones, around the cities. But at least within the public health sector I am

finding a few

doctors who are helpful and just are wracking their brains as to who might offer

positive

support - which is why my Gynocologist thought I should see this neurologist.

(GYNs often

function as GP's for women here as there are so few GP's)

Thanks. I hope that helps.

Deborah

>

> Deborah,

>

> I have a similar situation as yourself. My son has ASD it is through

> his DX that the pieces of my own family history came up. I have

> considered a developmental psy to dx me and " Follow " me if you will.

> As you know in your own profession I feel that a psy can speak to me

> without breaking me Intellectually. People tend to lie to themselves

> as well as others (I don't think Aspies do this) I don't require

> compliments to operate. As you stated our society is built on lying

> and deception leading to mating, oh and other purchases. I was never

> attracted to the beautiful people as beauty was usually a surface

> condition, as you wrote of your realities, past the mating age " need

> for deception " dissipates. This makes the condition difficult for

> woman such as ourselves. We (woman) " fit " nowhere, as we don't play

> with the " rules " to choose the mate that is largest and grunts most.

> As the men here have stated this is difficult for aspie males and

> females. WE woman are expected to like Barbie, shopping, and big

> hulking males that can protect us. False advertising(for as you stated

> abusive parents teach a child that there is no protection(it comes

> from within or nowhere) but some woman still get lost. If you know

> what you want from a neurologist, then take the chance, don't be

> railroaded and say no when you want to. They are unlikely to chain

> you up and electrode your brain to force you to normalcy.

>

> I couldn't help but notice your mention of your diet. I cannot

> process complex sugars. Neither can most of my ancestry. Nor can my

> son. Simple sugars are ok but disaccharides or polysaccharides result

> in more than upset stomach, the reading also points to many AS

> behaviors Stimming, head banging, muscle pain etc. I have just found

> this. Although it has been around for 30 years. I wonder how many of

> us are have been affected by our diet? In my son's case diet cause

> behavioral changes, compliance, but what happens when it is more

> subtle? Like in my own case. My grandmother whom most considered

> normal restricted her own diet to chicken and rice. Sadly I believe

> her inability to break down the rice killed her. Our bodies aren't

> built for the processed foods we have, and it has a neurological

> effect. I know this wasn't what was asked

>

> The news talk about the " susceptibility gene " what if it is

> dysfunction due to malabsorbtion of nutrients. This is also for

> drumthis. I believe you are correct in your wholistic approach.

> heavy metals in our environment, exacerbate a digestion issue and

> result in atypical yet focused behaviors. All of these are used to

> explain our environment. We have sensitive countinenecs, as a group I

> find all of us sensitive, people whom by and large have been hurt by

> socialites.

>

November 13, 2006