HI LYNN

[Guest guest]

Hi Lynn,

Just taking one day at a time right now. How about you? Any news yet from

your attorney or the courts on wc? That scar tissue sure doesn't sound too

good. I know, I have my own issues with scar tissue. I have to see my

surgeon because of the scar tissue in my abdomen. I have been able to hold

out for almost two years where I usually have to go in every year to have

them taken out. I also have a lump in my left breast that has to be looked

at, so I am hoping that he can do it all at once.

I saw the rheumy on Monday and he is very, very concerned about the blood

condition as it came up so fast. He thought maybe it was from the Remicade,

but he says that it occurred before me starting the infusion and it is not

listed in any literature. I was afraid that he was going to take me off it.

He is demanding that I have the bone marrow biopsy to determine the etiology

of the increased platelets and the anemia. I will be seeing the hematologist

on Tuesday for a consult and my Remicade infusion. I will also be receiving

iron IV to help with the anemia/no iron problem. Right now, I have -0-

energy. I am trying to get into the pool, where my joints feel their best,

but getting up the energy is next to impossible. I am hoping that the iron

infusion will help a little bit with this.

I saw the back ortho surgeon yesterday and pleaded my case with him to allow

another series of epidural injections in my back before we do the surgery.

He was reluctant, but finally said OK. From what he explains, the injections

should be giving me relief for like 9 months and I am barely getting 6 months

of relief, so I apparently have reached my max on these injections. I am

waiting for a call from the surgery center to set these things up. I don't

think I could face back surgery at this time with everything else going on.

Things are bad enough with the abdominal and breast surgery and what is

looking like another surgery on my right knee.

I will be seeing the ortho knee surgeon on Monday and have that situation

reevaluated again. I was unable to sleep again last night due to the severe

pain. I know that he did the best he could without cutting me, but at this

point, I can't live my life never knowing if the least little thing is going

to cause excruciating pain and instability in my knee. I am so upset,

because I had 3 weeks of what I thought was bliss. I guess the old saying is

true, if it feels too good to be true, chances are it is!

I am glad that you passed your class that you were worried about. I think I

am going to go back to school for web designing, something that has always

fascinated me. I am still in the talking stages right now, I have to get

some health issues resolved first. What a shame that you have reached your

max potential from the whipple procedure. But I guess that as long as you

know, that will be half of the battle.

My girls will be out of school next week so I am looking forward to that. I

will have buddies to swim with. My middle daughter will be going to summer

school, but not the youngest. Also, my niece from Chicago, will be flying in

from Chicago to spend the summer with us. Just what I need another teenager!

They are all good kids so it really isn't a problem.

Thanks for your notes of concern, my finger is finally getting healed over a

bit, so I am able to type a bit more than I have been able to the last few

days. Yikes, that was painful!

The pain pill is starting to kick in, so I will close. Please take care of

YOU and I will talk to your soon.

Gentle, tender, angel hugs across the miles,

Debs in FL

[Guest guest]

Debs,

So glad you aren¹t having back surgery. My husband only got 6 months relief

from his epidural. His doctor thought 6 months was good! I guess different

problems have different results.

But with what you are going through, back surgery added would be pretty

rotten.

Your 3 weeks of blissful knee needs to be a permanent thing! I hope your

ortho has plans to make it that way. It¹s so weird for your kneecap to just

crack like that. Did you ever get answers as to why it cracked? Is your

kneecap eroded?

Hope the iron helps. The fatigue must be awful. I don¹t know if you got to

read that site I posted on thrombocytosis. I was surprised to learn that

this problem goes along with inflammation. I guess we¹re all susceptible

to it. I¹ll be relieved when all your tests are done and they get to the

bottom of this. I want you to feel good again and enjoy those cabana

boys!!!

a

On 6/6/02 12:03 PM, " Auntblabbie2000@... " <Auntblabbie2000@...>

wrote:

> Hi Lynn,

>

> Just taking one day at a time right now. How about you? Any news yet from

> your attorney or the courts on wc? That scar tissue sure doesn't sound too

> good. I know, I have my own issues with scar tissue. I have to see my

> surgeon because of the scar tissue in my abdomen. I have been able to hold

> out for almost two years where I usually have to go in every year to have

> them taken out. I also have a lump in my left breast that has to be looked

> at, so I am hoping that he can do it all at once.

>

> I saw the rheumy on Monday and he is very, very concerned about the blood

> condition as it came up so fast. He thought maybe it was from the Remicade,

> but he says that it occurred before me starting the infusion and it is not

> listed in any literature. I was afraid that he was going to take me off it.

> He is demanding that I have the bone marrow biopsy to determine the etiology

> of the increased platelets and the anemia. I will be seeing the hematologist

> on Tuesday for a consult and my Remicade infusion. I will also be receiving

> iron IV to help with the anemia/no iron problem. Right now, I have -0-

> energy. I am trying to get into the pool, where my joints feel their best,

> but getting up the energy is next to impossible. I am hoping that the iron

> infusion will help a little bit with this.

>

> I saw the back ortho surgeon yesterday and pleaded my case with him to allow

> another series of epidural injections in my back before we do the surgery.

> He was reluctant, but finally said OK. From what he explains, the injections

> should be giving me relief for like 9 months and I am barely getting 6 months

> of relief, so I apparently have reached my max on these injections. I am

> waiting for a call from the surgery center to set these things up. I don't

> think I could face back surgery at this time with everything else going on.

> Things are bad enough with the abdominal and breast surgery and what is

> looking like another surgery on my right knee.

>

> I will be seeing the ortho knee surgeon on Monday and have that situation

> reevaluated again. I was unable to sleep again last night due to the severe

> pain. I know that he did the best he could without cutting me, but at this

> point, I can't live my life never knowing if the least little thing is going

> to cause excruciating pain and instability in my knee. I am so upset,

> because I had 3 weeks of what I thought was bliss. I guess the old saying is

> true, if it feels too good to be true, chances are it is!

>

> I am glad that you passed your class that you were worried about. I think I

> am going to go back to school for web designing, something that has always

> fascinated me. I am still in the talking stages right now, I have to get

> some health issues resolved first. What a shame that you have reached your

> max potential from the whipple procedure. But I guess that as long as you

> know, that will be half of the battle.

>

> My girls will be out of school next week so I am looking forward to that. I

> will have buddies to swim with. My middle daughter will be going to summer

> school, but not the youngest. Also, my niece from Chicago, will be flying in

> from Chicago to spend the summer with us. Just what I need another teenager!

> They are all good kids so it really isn't a problem.

>

> Thanks for your notes of concern, my finger is finally getting healed over a

> bit, so I am able to type a bit more than I have been able to the last few

> days. Yikes, that was painful!

>

> The pain pill is starting to kick in, so I will close. Please take care of

> YOU and I will talk to your soon.

>

> Gentle, tender, angel hugs across the miles,

>

> Debs in FL

>

>

[Guest guest]

Hi Deb,

I sure wish things were better for you. I will be anxious to hear what your

doctors have to say. Can you tell me what was involved to get rid of the scar

tissue. It is really painful. The GI doctor gave me pills but they are not

helping much. I don't want to call her. On the other hand I don't want to wait

too long because I want to be able to go back to school the end of August. I

know I just can't go through anymore surgery. I figure this is a surgical

procedure to get rid of the scar tissue. Then I read that you have an 80

percent

chance of it coming back. Could you let me know? I would rather be prepared

than not know. I started aquatic therapy and that hurt. But it is okay, I

would

much rather be in the pool than on land. Hope to learn more this week about

what

they plan to do. Hope your Sunday is peaceful and painter.

Lynn (MeMom)

Auntblabbie2000@... wrote:

> Hi Lynn,

>

> Just taking one day at a time right now. How about you? Any news yet from

> your attorney or the courts on wc? That scar tissue sure doesn't sound too

> good. I know, I have my own issues with scar tissue. I have to see my

> surgeon because of the scar tissue in my abdomen. I have been able to hold

> out for almost two years where I usually have to go in every year to have

> them taken out. I also have a lump in my left breast that has to be looked

> at, so I am hoping that he can do it all at once.

>

> I saw the rheumy on Monday and he is very, very concerned about the blood

> condition as it came up so fast. He thought maybe it was from the Remicade,

> but he says that it occurred before me starting the infusion and it is not

> listed in any literature. I was afraid that he was going to take me off it.

> He is demanding that I have the bone marrow biopsy to determine the etiology

> of the increased platelets and the anemia. I will be seeing the hematologist

> on Tuesday for a consult and my Remicade infusion. I will also be receiving

> iron IV to help with the anemia/no iron problem. Right now, I have -0-

> energy. I am trying to get into the pool, where my joints feel their best,

> but getting up the energy is next to impossible. I am hoping that the iron

> infusion will help a little bit with this.

>

> I saw the back ortho surgeon yesterday and pleaded my case with him to allow

> another series of epidural injections in my back before we do the surgery.

> He was reluctant, but finally said OK. From what he explains, the injections

> should be giving me relief for like 9 months and I am barely getting 6 months

> of relief, so I apparently have reached my max on these injections. I am

> waiting for a call from the surgery center to set these things up. I don't

> think I could face back surgery at this time with everything else going on.

> Things are bad enough with the abdominal and breast surgery and what is

> looking like another surgery on my right knee.

>

> I will be seeing the ortho knee surgeon on Monday and have that situation

> reevaluated again. I was unable to sleep again last night due to the severe

> pain. I know that he did the best he could without cutting me, but at this

> point, I can't live my life never knowing if the least little thing is going

> to cause excruciating pain and instability in my knee. I am so upset,

> because I had 3 weeks of what I thought was bliss. I guess the old saying is

> true, if it feels too good to be true, chances are it is!

>

> I am glad that you passed your class that you were worried about. I think I

> am going to go back to school for web designing, something that has always

> fascinated me. I am still in the talking stages right now, I have to get

> some health issues resolved first. What a shame that you have reached your

> max potential from the whipple procedure. But I guess that as long as you

> know, that will be half of the battle.

>

> My girls will be out of school next week so I am looking forward to that. I

> will have buddies to swim with. My middle daughter will be going to summer

> school, but not the youngest. Also, my niece from Chicago, will be flying in

> from Chicago to spend the summer with us. Just what I need another teenager!

> They are all good kids so it really isn't a problem.

>

> Thanks for your notes of concern, my finger is finally getting healed over a

> bit, so I am able to type a bit more than I have been able to the last few

> days. Yikes, that was painful!

>

> The pain pill is starting to kick in, so I will close. Please take care of

> YOU and I will talk to your soon.

>

> Gentle, tender, angel hugs across the miles,

>

> Debs in FL

>

>

>

[Guest guest]

Hi Sunshine,

Well, I do seem to be the expert on scar tissue. Seems I can make that

faster than I can make money. I have had scar tissue removed from my abdomen

approximately 9 times. Now my scar tissue may be different from yours in

that it is on the outside of the organs, inside the abdominal cavity. So my

scar tissue will sometimes constrict around the small bowel or large bowel

like a rubber band and actually cause an obstruction. You know when you have

formed an obstruction because anything you put in your mouth comes right back

up because it can't get past that rubberband area and your abdomen starts to

distend. My surgeon has been very very successful in that he has done all

the surgery laparoscopically and requiring a very minimal stay in the

hospital. He usually finds that the adhesions are stuck on my liver, thus

holding it down, near the stomach and then around the small and large bowel.

The surgery is very labor intensive to the surgeon and only feels like an

army has marched thru my abdomen when I wake up. Occasionally, he will find

them by my bladder and lower abdomen also. The scar tissue that I had

internally as seen during the ERCP was removed by some tool with the ERCP and

I never new the difference except for the severe pancreatitis that I

developed after that. My surgeon told me that he has some patients that he

operates on several times and never sees any scar tissue. Then there are

some patients who may have one minor surgery done and they are loaded with

scar tissue, so who knows? Apparently, there is or was some kind of product

on the market that if my surgeon does an open procedure on my abdomen, he can

then insert this material to prevent or diminish further scar tissue

production. However, that entails a large scar and weeks of recovery, so his

thinking is that as long as I am receiving relief from the lap procedure, he

will always start out with that and then if it turns into an open procedure,

he can insert this stuff. I don't know, heck, I am only the patient!

I think you need to find out where they think your adhesions are and how they

plan to approach their removal. I wasn't aware of any medication on the

market to deal with adhesions.

God knows I have asked my GI and surgeon for something, anything instead of

surgery. The have given me antispasmodics for my colon and IBS symptoms, but

when I actually obstruct, then it is a NG tube, IV fluids only and the whole

thing along with emergency surgery.

I hope that I answered your questions or maybe answered them too much.

Everyone is different. If you need to have the scar tissue treated, I hope

they can do it with a minimum invasive technique.

Good luck, my friend. Your condition is a worry to so many of us here. You

have come so far, but it looks as though your journey is not yet quite over.

Hang in there. I will be praying for God to give you the strength to get

thru this.

Gentle, tender, angel hugs,

Debs in FL

[Guest guest]

Thank You, I saw that product on tv last week. This really hurts and I don't

think the medication is doing much. I just can't do another ERCP. The drug he

put me on is Hyoscyamine. I have to put under my tongue and let it dissolve.

Yesterday I ate tomato soup and afterwards the pain was bad. It passed after

awhile and I was all right. The pain I have is very low, more pelvic pain.

Since my insides are so different now I believe the scar tissue is between the

resectioning at the stomach and intestines. When I mentioned it too the GI

doctor, she knew right were the pain was without me even telling her. Well I

have to go with this and hope for the best. My daughter Cherylynn's graduation

party is Saturday and she graduates next Monday. She is the last of six

children. I dream about not having to buy school clothes anymore or school

supplies. I really wasn't prepared for what I have now. The eating problems

are one thing but this, no one told me about. I can deal with knowing I may

never get any better from the surgery. However, I am sure I don't want to stop

hoping for improvements. I would rather believe in some positive changes. On

the days I don't go to water therapy I am trying to walk around the

neighborhood. Maybe, if I can get built up a little things will improve. I

will

not stop trying to find a better quality life.

How are you doing??? I have been thinking about you and as always lighting

candles. I hope this week finds you with some improvements. Let me know and

again thank you for your help. I figured it was going to be something involving

surgery to correct this problem.

Lynn (MeMom)

Auntblabbie2000@... wrote:

> Hi Sunshine,

>

> Well, I do seem to be the expert on scar tissue. Seems I can make that

> faster than I can make money. I have had scar tissue removed from my abdomen

> approximately 9 times. Now my scar tissue may be different from yours in

> that it is on the outside of the organs, inside the abdominal cavity. So my

> scar tissue will sometimes constrict around the small bowel or large bowel

> like a rubber band and actually cause an obstruction. You know when you have

> formed an obstruction because anything you put in your mouth comes right back

> up because it can't get past that rubberband area and your abdomen starts to

> distend. My surgeon has been very very successful in that he has done all

> the surgery laparoscopically and requiring a very minimal stay in the

> hospital. He usually finds that the adhesions are stuck on my liver, thus

> holding it down, near the stomach and then around the small and large bowel.

> The surgery is very labor intensive to the surgeon and only feels like an

> army has marched thru my abdomen when I wake up. Occasionally, he will find

> them by my bladder and lower abdomen also. The scar tissue that I had

> internally as seen during the ERCP was removed by some tool with the ERCP and

> I never new the difference except for the severe pancreatitis that I

> developed after that. My surgeon told me that he has some patients that he

> operates on several times and never sees any scar tissue. Then there are

> some patients who may have one minor surgery done and they are loaded with

> scar tissue, so who knows? Apparently, there is or was some kind of product

> on the market that if my surgeon does an open procedure on my abdomen, he can

> then insert this material to prevent or diminish further scar tissue

> production. However, that entails a large scar and weeks of recovery, so his

> thinking is that as long as I am receiving relief from the lap procedure, he

> will always start out with that and then if it turns into an open procedure,

> he can insert this stuff. I don't know, heck, I am only the patient!

>

> I think you need to find out where they think your adhesions are and how they

> plan to approach their removal. I wasn't aware of any medication on the

> market to deal with adhesions.

> God knows I have asked my GI and surgeon for something, anything instead of

> surgery. The have given me antispasmodics for my colon and IBS symptoms, but

> when I actually obstruct, then it is a NG tube, IV fluids only and the whole

> thing along with emergency surgery.

>

> I hope that I answered your questions or maybe answered them too much.

> Everyone is different. If you need to have the scar tissue treated, I hope

> they can do it with a minimum invasive technique.

>

> Good luck, my friend. Your condition is a worry to so many of us here. You

> have come so far, but it looks as though your journey is not yet quite over.

> Hang in there. I will be praying for God to give you the strength to get

> thru this.

>

> Gentle, tender, angel hugs,

>

> Debs in FL

>

>

[Guest guest]

Hi,

Wow, six kids thru high school. I sweat just the 3 girls! Vickie is in

college and now the 2 younger ones will both be in high school. They have 3

more days left of school and then they are out for the summer. That will be

good company for me. The days are very long for me when they all go off to

work and school.

I guess you have traded off one thing for another with the surgery and the

adhesions. It is a double edge sword. Hopefully, if they need to get the

adhesions, it will be minimally invasive. Surgeons today can do so much, but

can't stop the body from making scar tissue. Sometimes, scar tissue is a

good thing, that is when my body decides not to make it! Before I had the

knee replacements, they would scrape the knee or something like that,

thinking that I would make scar tissue and that would then act like

cartilage. Never happened! Go figure!

Wish we lived closer, that way I could take your water class with you.

Sometimes, it is more enjoyable if you have some company. Of course, when I

go out back in my pool, I prefer to be alone only because the kids are

jumping, diving, cannon-balling, etc. I think you get the idea! LOL.

Take care, my friend. Thinking and praying for you always.

Debs

[Guest guest]

Lynn,

I am so happy for you. It is about time that you can put these two things

behind you. You have been through enough already! What a relief. Now you

can have your graduation party this weekend and REALLY enjoy yourself. Well,

as much as your tummy will let you! It has been a long tough road for you,

my friend, and it is LONG overdue.

I really can't say that I will be following up with any of my medical doctors

or treatment. I have been fighting various doctors for 9 almost 10 years and

I am just plain tired. These knee problems that I have experienced is not

due to my negligence of caring for my body. It is just a side effect of this

disease. I can't even describe the pain I am in with my knee and when they

withdrew the fluid on Monday, it was all bloody indicating that yes another

fracture had occurred and the pieces in my patella were once again cutting up

the internal workings of my knee. Now if a doctor feels that this doesn't

cause any pain, he must have been absent on the day they discussed this in

medical school. I have been to most of the ortho groups in this area and I

don't think that I would have much faith in anyone anyway. The amount of

help that I get at home is non-existant and can't even find someone to take

me for the Remicade or IV iron infusions or find out what the hematologist

has to say about my blood condition. I am scared that my body is crumbling

and failing me faster than I can patch it up and there is no one who will

listen or help me because I don't look sick. My kneecap has been broken

since 2/02, surgery was on 5/9/02 and I refractured it again on 5/23/02.

OK even about my whining, once again, I am so happy for you and now with this

off your shoulders, maybe you will start putting the pieces back together in

your life. Hope the graduation party is a success. Please don't overdue it,

though!

Gentle, tender, angel hugs, to you my friend.

Debs

[Guest guest]

Hi Debs,

I'm sorry I didn't answer you sooner. Getting ready for Cherylynn's party

and graduation. I can't wait for it to be over. I feel so sorry for you with

all you are going through. There doesn't seem to be any easy road for you. But

like you I think in the end it will all work out. It is just getting there.

Wish I had you with me at water therapy too. It is nice but very tiring. I

found out yesterday that I have to go for four weeks, three times a week. Then

I

don't know what happens.

The stomach thing well I agree it was a trade off. Right now I just want to

ride it out. However, if something has to be done I don't want to wait until I

see the GI doctor in August. I don't want to have to drop another semester. I

will see how it goes after the graduation.

Good news yesterday, first I heard from ss. I was getting a little nervous

not having anything in writing. But it is official it all went through, I

should

know in two weeks how much I will be getting. The really big news is the worker

compensation judge ruled in my favor. WC can NOT stop my income and must

continue to pay for all medical concerning my neck and arms. I could switch the

therapy bills to medicare but why should I. They forced me into treatment so I

feel they should pay for it all. Now we sit back and see what they do. I guess

if they wanted too they could appeal the decision, but I don't think they would

do that. Maybe if they start getting some serious bills they will go away for

good.

I wish you were better. Rest and let the girls take care of things. I know

that is hard, I have issues with that but do it to get better.

Hugs,

Lynn

Auntblabbie2000@... wrote:

> Hi,

>

> Wow, six kids thru high school. I sweat just the 3 girls! Vickie is in

> college and now the 2 younger ones will both be in high school. They have 3

> more days left of school and then they are out for the summer. That will be

> good company for me. The days are very long for me when they all go off to

> work and school.

>

> I guess you have traded off one thing for another with the surgery and the

> adhesions. It is a double edge sword. Hopefully, if they need to get the

> adhesions, it will be minimally invasive. Surgeons today can do so much, but

> can't stop the body from making scar tissue. Sometimes, scar tissue is a

> good thing, that is when my body decides not to make it! Before I had the

> knee replacements, they would scrape the knee or something like that,

> thinking that I would make scar tissue and that would then act like

> cartilage. Never happened! Go figure!

>

> Wish we lived closer, that way I could take your water class with you.

> Sometimes, it is more enjoyable if you have some company. Of course, when I

> go out back in my pool, I prefer to be alone only because the kids are

> jumping, diving, cannon-balling, etc. I think you get the idea! LOL.

>

> Take care, my friend. Thinking and praying for you always.

>

> Debs

>

>

>

[Guest guest]

Deb,

So you think it is wise not to follow up? Sounds like you have not only a

lot going on but some pretty serious stuff. Maybe you should reconsider, you

don't want to get worse. This scar tissue does it ever go away it self? I am

thinking no but hoping maybe it will. If that is the problems. I guess the GI

isn't that worried about it since I don't see her till the end of August.

Hope today is better for you.

Lynn (MeMom)

Auntblabbie2000@... wrote:

> Lynn,

>

> I am so happy for you. It is about time that you can put these two things

> behind you. You have been through enough already! What a relief. Now you

> can have your graduation party this weekend and REALLY enjoy yourself. Well,

> as much as your tummy will let you! It has been a long tough road for you,

> my friend, and it is LONG overdue.

>

> I really can't say that I will be following up with any of my medical doctors

> or treatment. I have been fighting various doctors for 9 almost 10 years and

> I am just plain tired. These knee problems that I have experienced is not

> due to my negligence of caring for my body. It is just a side effect of this

> disease. I can't even describe the pain I am in with my knee and when they

> withdrew the fluid on Monday, it was all bloody indicating that yes another

> fracture had occurred and the pieces in my patella were once again cutting up

> the internal workings of my knee. Now if a doctor feels that this doesn't

> cause any pain, he must have been absent on the day they discussed this in

> medical school. I have been to most of the ortho groups in this area and I

> don't think that I would have much faith in anyone anyway. The amount of

> help that I get at home is non-existant and can't even find someone to take

> me for the Remicade or IV iron infusions or find out what the hematologist

> has to say about my blood condition. I am scared that my body is crumbling

> and failing me faster than I can patch it up and there is no one who will

> listen or help me because I don't look sick. My kneecap has been broken

> since 2/02, surgery was on 5/9/02 and I refractured it again on 5/23/02.

>

> OK even about my whining, once again, I am so happy for you and now with this

> off your shoulders, maybe you will start putting the pieces back together in

> your life. Hope the graduation party is a success. Please don't overdue it,

> though!

>

> Gentle, tender, angel hugs, to you my friend.

>

> Debs

>

>

>

[Guest guest]

Hi Sunshine,

To my knowledge, scar tissue does not go away by itself and is the body's

natural response to trauma or injury. Normally it doesn't cause any

problems. However, in some lucky peoples case, it does. Such is our

dilemma. Besides the pain that scar tissue can cause, the only other

complication of scar tissue is that of obstruction. Your doc must feel that

you are in no immediate danger of an obstruction and thus the wait is OK. My

surgeon first told me that medical books don't even state that scar tissue

can cause any type of pain or complications other than obstruction. Mine

causes pain (when I am not obstructing) due to the fact that it attaches

itself to my liver and other internal organs. Whenever he does do surgery on

my adhesions, he always tells me that he is not sure if this is going to help

or not and (knock on wood) I have always gotten relief for usually at least a

year after the procedure. I have been needing to go to see him since last

year, but can't seem to bring myself to go to any type of medical

professional these days. So I suffer with the pain and intermittent

obstructions. One of my other doctors has told me that I should not let this

go because of the gravity of an obstruction.

Graduation parties all over with? Any changes in your condition? Hope you

are doing OK. Keeping you and yours in my prayers. Take good care of

yourself, my friend.

Gentle, tender, angel hugs,

Debs

[Guest guest]

Hi Deb,

I'm here just very tired from all the graduation stuff. She graduated and I

am so pleased she is finished. School was a challenge for my Cherylynn. Right

now we have senioritis big time. But I am just letting it go and enjoying the

fact that I don't have to buy school clothes or school supplies anymore. Well

for me but that is different.

I wish you were feeling better and I am worried that you are not seeing your

doctors. This scar tissue thing has me worried. It is like I have the pain all

the time just different degrees. She gave me Hyoscyamine to take, not really

sure what it is doing. Have you ever tried it? She didn't seem overly

concerned

about the scar tissue. Said as long as I wasn't loosing anymore weight. I

don't

think I want to sit on this for a long time. I don't see the GI till the end of

August. Now if something has to be done with this scar tissue I want it done

soon. Only because I don't want to have to drop another semester of school.

The

other thought is she was so sure it was scar tissue. What if it is something

else, I trust her. Guess I am just worried. Eating is the same but I am trying

to introduce different veggies. They have to be really, really cooked but that

is okay. Tonight I am trying a tomato/zucchini baked dish. I think I have come

to terms with my limited diet and I am adjusting to it. I am glad she finally

told me the truth, it is easier to deal with. When I eat the pain is much worse

so I do hold off eating.

I hope you get to one of your doctors. I understand you being afraid to go

but be careful. Don't let things get too bad.

Thanks for the information on the scar tissue any other thoughts I would

appreciate. I have been having computer problems hopefully lynn has it all

figured out. I couldn't receive any mail. So I don't know what I have lost.

You are as always in my prayers. Hope today finds you relaxing and not in

pain.

Lynn (MeMom)

Auntblabbie2000@... wrote:

> Hi Sunshine,

>

> To my knowledge, scar tissue does not go away by itself and is the body's

> natural response to trauma or injury. Normally it doesn't cause any

> problems. However, in some lucky peoples case, it does. Such is our

> dilemma. Besides the pain that scar tissue can cause, the only other

> complication of scar tissue is that of obstruction. Your doc must feel that

> you are in no immediate danger of an obstruction and thus the wait is OK. My

> surgeon first told me that medical books don't even state that scar tissue

> can cause any type of pain or complications other than obstruction. Mine

> causes pain (when I am not obstructing) due to the fact that it attaches

> itself to my liver and other internal organs. Whenever he does do surgery on

> my adhesions, he always tells me that he is not sure if this is going to help

> or not and (knock on wood) I have always gotten relief for usually at least a

> year after the procedure. I have been needing to go to see him since last

> year, but can't seem to bring myself to go to any type of medical

> professional these days. So I suffer with the pain and intermittent

> obstructions. One of my other doctors has told me that I should not let this

> go because of the gravity of an obstruction.

>

> Graduation parties all over with? Any changes in your condition? Hope you

> are doing OK. Keeping you and yours in my prayers. Take good care of

> yourself, my friend.

>

> Gentle, tender, angel hugs,

>

> Debs

>

>

>

[Guest guest]

Hi Lynn

thanks for the info on the gold injections

I am so sorry that they never worked out for your husband

How long was he on them before he got the nasty side affects ?

I have been to the rhuemy this morning and I spoke about all the side afects and he assured me that I will be monitered every week.

So I have took the plunge and started on the injections I just hope and pray I am one of the lucky ones and dont suffer with the side affects. I suppose time will tell.

thanks lynn

Joyce

[Guest guest]

I took gold shots for 4 -5 years when I first got my diagnosis. They

worked well to keep it under control but gradually were less useful

and I moved on to something else. They did monitor it carefully and

I had no side effects

Annette

> Hi Lynn

> thanks for the info on the gold injections

> I am so sorry that they never worked out for your husband

> How long was he on them before he got the nasty side affects ?

>

> I have been to the rhuemy this morning and I spoke about all the

side afects

> and he assured me that I will be monitered every week.

> So I have took the plunge and started on the injections I just hope

and pray

> I am one of the lucky ones and dont suffer with the side affects. I

suppose

> time will tell.

>

> thanks lynn

> Joyce