Guest guest Posted January 17, 2000 Report Share Posted January 17, 2000 Welcome Rhonda, Betty here, where in PA do you live. I am from the Lancaster, PA area. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2000 Report Share Posted January 17, 2000 Hello Rhonda! What a surprise to see some Swedish words here. Hur kommer det sig? Have a good time from Rosis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2000 Report Share Posted January 17, 2000 Hello Rhonda! What a surprise to see some Swedish words here. Hur kommer det sig? Have a good time from Rosis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2000 Report Share Posted January 18, 2000 Hi, Rhonda. My name is Marc. I am very curious about the vitamin therapy you mention. I'm now 41 and was basically diagnosed more than twenty years ago, and for a long time I didn't realize there was much I could do besides watch my weight and exercise (do some of you have problems with weight? Sometimes it's hard to burn off the calories...). But in the last few years I have been learning that there are things I can do to help myself in terms of this disease. I have been learning about which vitamins are helpful and how they are best taken (with what other vitamins for best absorption, etc). And also about herbs. There are herbs that it seems will help. Any info in these areas would be great. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2000 Report Share Posted January 18, 2000 Hi Betty-- You said--Welcome Rhonda, Betty here, where in PA do you live. I am from the Lancaster, PA area. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Betty, I live in York. Surely you know where that is, if you're in the Lancaster area. I'm in East York, close to all the malls (and I'm not bragging when I say that, I'm complaining) Traffic is horrendous over weekends and holidays. If you're coming to York sometime, email me, maybe we can meet. Later, Theresa ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2000 Report Share Posted January 18, 2000 Rhonda: I can't believe you live in York. I would love to meet with you sometime, maybe when the weather gets a little warmer. I have always wondered if anyone else has CMT around this area. Do you know of anybody else in this neck of the woods with CMT?If you are ever in Lancaster e-mail me also. My e-mail address is Buchie54@... Betty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2000 Report Share Posted January 18, 2000 Dear Rose I am DIMITRIOS OF GREECE and i send you some information about CMT. I have found these from the address http://www.cmtint.org and i believe that there you can find more information about your questions. <<... Pain from nerve deterioration and weak, tired, overworked muscles is common and we work with a lot of CMT people who are in pain. A feeling of nerve or muscle crawling called formication and burning, mainly on the soles of the feet and palms of the hands and sometimes the behind and back of thighs as well as tremors can also be part of CMT. Sciatic leg pain and foot pain are also common. We continue to print a page on a variety of aspects of pain and pain management in each newsletter and we are actively involved in pain research. Some people with CMT experience bouts of unexplained diarrhea or constipation. Some are extremely sensitive to light and sound, hot or cold and many are sensitive to stimulants such as caffeine and react badly to alcohol and tobacco and are sensitive to normal adult doses of many drugs, instead taking a child's dosage after talking to their physician. Drugs contraindicated for CMT Drugs which may aggravate or exacerbate CMT Adriamycin - for cancer Alcohol Amiodarone - for irregular heartbeat Chloramphenicol - antibiotic Cis-platinum - for cancer Dapsone - for chronic and certain rare skin diseases, also for leprosy Diphenylhydantoin (Dilantin) - for seizures and pain Disulfiram (Antabuse) - alcoholics Ethionamide - for tuberculosis Flagyl (Metronidazole) - for trichomonas infection - read the labels on prescriptions for vaginal bacterial infections - alert doctor - can be found in combination with another drug for vaginal yeast infections, also used topically for acne and orally as an antibiotic by some dentists and doctors Glutethimide (Doriden) - sleeping pill Gold - for rheumatoid arthritis Hydralazine (Apresoline) - high blood pressure Isoniazid (INH) - for tuberculosis Lithium - for manic depressive illness or headache prevention Misomidazole - for cancer Nitrofurantoin (Furadantin, Macrobid, Macrodantin) - for urinary tract infection - alert doctor Nitrous Oxide (chronic repeated inhalation) - an anesthetic Penicillamine - rheumatiod arthritis Perhexiline (Pexid) - for angina Pyridoxine (Vitamin B6) - a vitamin Suramin, Taxol, Vincristine - for cancer Tobacco Zoloft Megadoses of vitamins A, B6 and D can be harmful. Check carefully with your doctor and pharmacist before taking any drug. Ask them to look for the words " could cause peripheral neuropathy " in the drug description. In almost all the conditions in which these drugs are used an alternative can be found. If you need lithium, or misomidazole for cancer or other cancer drugs, discuss possible repercussions with your doctor. Zoloft can cause increased fatique but is not necessarily dangerous to those who need it. Remember that all drugs have side effects. You could be extremely sensitive to drugs not listed here. Megadoses of some vitamins can also be toxic. Our motto is to BE AWARE and BEWARE.........>> Rose-Marie Isakson wrote: > From: Rose-Marie.Isakson@... (Rose-Marie Isakson) > > Hello everybody! > > I´m also interested of hearing what vitamines you think are good for us. > My doctors have never said someting about this things, only that there is > nothing to do about CMT, except light excercise. > And what about alcohol? Does it hurt our nerves in some way? Anybody who > knowes? > > About raising in weight; don´t you think that it is easy for us when we > are doing everything in more slow tempo than others? Both me and my sons > are a little to fat. > > from Rosis in Sweden > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2000 Report Share Posted March 8, 2000 I don't have anything to say about anything. I just wanted to post a message cuz nobody else did today!! Talk to ya'll later! Kendra Quote Link to comment Share on other sites More sharing options...
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