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Steve and Doris <sjsmith@e...> wrote:

> Yes, is being seen by an OT/sensory therapist.

> I'm re-reading 'the out of sync child'.

Oh I'm glad to hear it, Doris! That's a wonderful book. I remember

reading it when my son was about 2.5 and just being shocked at how

well it described him and his symptoms. Good luck to you! I have a

great OT certified in sensory integration and if you'd like to share

information on therapies, I'd be happy to. Do you do the Willbarger

brushing?

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who is the author of this book and where can I get it.

--- jessicanicholas <jessicanicholas@...> wrote:

> Steve and Doris <sjsmith@e...> wrote:

>

> > Yes, is being seen by an OT/sensory

> therapist.

> > I'm re-reading 'the out of sync child'.

>

> Oh I'm glad to hear it, Doris! That's a wonderful

> book. I remember

> reading it when my son was about 2.5 and just being

> shocked at how

> well it described him and his symptoms. Good luck

> to you! I have a

> great OT certified in sensory integration and if

> you'd like to share

> information on therapies, I'd be happy to. Do you

> do the Willbarger

> brushing?

>

>

>

>

>

__________________________________________________

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The Out-of-Sync Child by Carol Kranowitz. Our local library had it, but

I'm sure Amazon.com would also.

On Mon, 22 Apr 2002 06:39:32 -0700 (PDT) Sharnita

<sharnitap@...> writes:

> who is the author of this book and where can I get it.

>

>

> --- jessicanicholas <jessicanicholas@...> wrote:

> > Steve and Doris <sjsmith@e...> wrote:

> >

> > > Yes, is being seen by an OT/sensory

> > therapist.

> > > I'm re-reading 'the out of sync child'.

> >

> > Oh I'm glad to hear it, Doris! That's a wonderful

> > book. I remember

> > reading it when my son was about 2.5 and just being

> > shocked at how

> > well it described him and his symptoms. Good luck

> > to you! I have a

> > great OT certified in sensory integration and if

> > you'd like to share

> > information on therapies, I'd be happy to. Do you

> > do the Willbarger

> > brushing?

> >

> >

> >

> >

> >

>

>

> __________________________________________________

>

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What is Willbarger brushing that is mentioned in this

email?

--- jessicanicholas <jessicanicholas@...> wrote:

> Steve and Doris <sjsmith@e...> wrote:

>

> > Yes, is being seen by an OT/sensory

> therapist.

> > I'm re-reading 'the out of sync child'.

>

> Oh I'm glad to hear it, Doris! That's a wonderful

> book. I remember

> reading it when my son was about 2.5 and just being

> shocked at how

> well it described him and his symptoms. Good luck

> to you! I have a

> great OT certified in sensory integration and if

> you'd like to share

> information on therapies, I'd be happy to. Do you

> do the Willbarger

> brushing?

>

>

>

>

>

__________________________________________________

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This is a particular technique using a specifically designed brush (has lots

of soft nylon hairs) where the body is brushed in particular directions and

using certain pressure to help regulate an over sensory system. A good OT

will train you to do this. It is used as part of a " sensory diet " as part of

an OT program.

Re: Re: sensory

What is Willbarger brushing that is mentioned in this

email?

--- jessicanicholas <jessicanicholas@...> wrote:

> Steve and Doris <sjsmith@e...> wrote:

>

> > Yes, is being seen by an OT/sensory

> therapist.

> > I'm re-reading 'the out of sync child'.

>

> Oh I'm glad to hear it, Doris! That's a wonderful

> book. I remember

> reading it when my son was about 2.5 and just being

> shocked at how

> well it described him and his symptoms. Good luck

> to you! I have a

> great OT certified in sensory integration and if

> you'd like to share

> information on therapies, I'd be happy to. Do you

> do the Willbarger

> brushing?

>

>

>

>

>

__________________________________________________

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I believe you're referring to the Wilbarger Protocol. We use it on our

son (4yrs, PDD-NOS, SID) and it really helps relax him. Several of his

therapists also practice the protocol and they showed us. Just search

the web for Wilbarger Protocol and you should find lots of information.

Books on Sensory Integration Disorder sometimes talk about it too.

Here's one of the sites I found searching on it:

http://pbb.net/wilbarger_brushing_protocol.htm

As some one else pointed out (and the link I included says): To use

this technique with out instruction from a trained therapist could be

harmful at the extreme, and at the minimum, completely useless.

Re: Re: sensory

What is Willbarger brushing that is mentioned in this

email?

--- jessicanicholas <jessicanicholas@...> wrote:

> Steve and Doris <sjsmith@e...> wrote:

>

> > Yes, is being seen by an OT/sensory

> therapist.

> > I'm re-reading 'the out of sync child'.

>

> Oh I'm glad to hear it, Doris! That's a wonderful

> book. I remember

> reading it when my son was about 2.5 and just being

> shocked at how

> well it described him and his symptoms. Good luck

> to you! I have a

> great OT certified in sensory integration and if

> you'd like to share

> information on therapies, I'd be happy to. Do you

> do the Willbarger

> brushing?

>

>

>

>

>

__________________________________________________

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  • 4 months later...

Hi Doris, I found a few things that I'll put together and post. There is a

spectrum of pathogens linked to GBS. That seems to be the problem with all

of these disorders. Even though the same process is involved, our genetic

make-up determines what we are susceptable to and how our body reacts. The

sensory link is probably due to the type of cells that are susceptable to

herpes viruses like CMV. It's like chicken pox, the virus remains dormant

in the nerve cells and can reactivate later when the immune system is

stressed. Another way there can be sensory problems is from something like

PANDAS where the antibodies cross-react with the part of the brain that

includes the sensory/motor area. My son has really bad sensory/motor

problems when his OCD flairs. His motor skills deteriorated during the

years that I couldn't find anyone to help us.

Are you doing allergy shots? That was the first treatment we tried (two

years of shots and diet) and during that time my younger son developed the

PANDAS type symptoms on top of the ASD. Sometimes I wonder if the immune

shift or stimulation is what made him susceptable. Or if he would have

developed symptoms regardless.

Cheryl aka 1Raptor

>From: steve smith <sjsmith@...>

>Reply-

>

>Subject: sensory

>Date: Sat, 14 Sep 2002 22:31:41 -0400

>

>My son is (now) 7 yrs old and has been a patient of Dr G's

>for almost 3 yrs.

>He's very sensory, esp this time of year when the pollen and mold are

>up.

>We see a sensory therapist once a week and an allergist 2-3 x a year.

>We do a variety of desensitation techniques to calm his senses.

>Dr G isn't very thrilled over this - feels as the brain heals the body

>will too.

>Yes, while this is true, it doesn't hurt to help things along.

>The sensory techniques are working, slowly.

>Now, I read an item in the GBS newsletter that I haven't had

>time to explore. I was going to pass the item to LRAPTOR and see

>if she could hunt it down :o) :o) :o)

>In the article, a researcher looking into the causes of GBS mentions

>that GBS sufferers who have sensory issues have high titers

>to CMV. CMV and/or EB are known to cause GBS.

>Both my husband and son have high titers to CMV.

>

>So, my belief is, until we can get the CMV either under control

>or erradicated, sensory issues will continue.

>

>doris

>land

>

>

>

>

>

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