Re: FYI--CFIDS

[Guest guest]

WISCONSIN CHRONIC FATIGUE SYNDROME

ASSOCIATION, INC.

<A HREF= " http://www.wicfs-me.org/ " >http://www.wicfs-me.org</A>

" International Awareness Day for ME-CFSâ€:

Another perspective

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by Pat Fero (editor and executive Director of the

Wisconsin CFS (CFIDS-ME) Association. INC.

How many million people on this planet have Myalgic

Encephalomyelitis, CFS, Fibromyalgia, Post Polio and Gulf

War Syndrome? Does it seem a bit odd to you that we need an

awareness day? Is " Awareness " the wrong word? How about

May 12th Information Day? If May 12th, is about creating

awareness by providing information, then why are many of us

so angry?

Every may 12th, I see groups and individuals struggle to set up

letter writing campaigns and mass mailings and media

coverage and library mailings. And every May 12th, it feels

tome that we are fulfilling an unspoken expectation...a powerful

someone demanding the irrational: " Come here and show me

your broken legs. And wed do it! Why is that " I think we should

call May 12th what it is, A DAY OF PROTEST against the

other 364 days that we endure the ignorance and subvert the

anger. Maybe protest is the way humans have always

corrected injustice. Maybe protest is the only pathway to

change. Bernard Shaw said, " The reasonable man

adapts himself to the world. The unreasonable man expects

the world to adapt itself to him. Therefore, all progress is made

by unreasonable men " If we say what we mean and use the

word PROTEST, will it change the focus and effectiveness of

MAY 12th efforts? Would you give this some thought as you

write your letters?

Pat Fero

Tina M. Hendrix

Cure2000@...

Vice-President, California Coalition

Neuro-Immune Dysfunction Syndromes

Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS,

etc.