RE: Appt with Dr. Goldberg-Ri

[Guest guest]

Hi Ri,

When we first found out about Dr. G. my son was nine. His bloodwork showed

enough that Dr. G. said the scan was optional. Since my son was older and

had also developed a second problem (OCD) a few years prior, and for a few

other reasons, I decided to go ahead with that option.

Someone can correct me if I'm wrong, but my understanding is that the scans

are not done as much now. The abnormalities showing up in the childrens

bloodwork has become so familiar to Dr. G. that the scans might be done more

when the bloodwork leaves questions. Or possibly when a child has other

things going on like seizures, etc.

I would check with his office to be sure. They can tell you whether a scan

is something that Dr. G. wants your child to have.

>From: Rifat Arshad <kayarshad@...>

>Reply-

>

>Subject: Re: Appt with Dr. Goldberg

>Date: Mon, 18 Mar 2002 12:47:25 +0000 (GMT)

>

> Hi Cheryl

>I noticed from your reply to that you had the

>specscan done on your son, please can you or anyone

>else tell me if it was your idea or does DrG tell you

>to do it.

>

>i am seeing Him for the first time in July and have

>not received paperwork from his office yet and am

>wondering the above,and at what age is too young to do

>the scan.my child is 31/2.

>

>many thanks

>Ri

>

>

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[Guest guest]

Cheryl,

What may the scan look like if a child is having seizures?

Just curious.

Re: Appt with Dr. Goldberg

>Date: Mon, 18 Mar 2002 12:47:25 +0000 (GMT)

>

> Hi Cheryl

>I noticed from your reply to that you had the

>specscan done on your son, please can you or anyone

>else tell me if it was your idea or does DrG tell you

>to do it.

>

>i am seeing Him for the first time in July and have

>not received paperwork from his office yet and am

>wondering the above,and at what age is too young to do

>the scan.my child is 31/2.

>

>many thanks

>Ri

>

>

_________________________________________________________________

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[Guest guest]

I think, in retrospect, if your child is compliant to go through with it, a

scan is such an important diagnostic tool. While Dr G can use the blood work

to come up with the overall diagnosis, the scan will reveal other

hidden issues about over and under perfusion in various parts of the brain.

In our son's case (6 yo), we didn't do the scan on our first appointment

over two years ago. We got to a point recently where there were unanswered

issues, so had a scan done on this trip (end Jan) which answered a number of

puzzles, and allow us to focus very precisely on both medical intervention

and therapy/school/behavioural issues. Do it now if you can even if to get a

benchmark!

It costs about $900 now instead of $1500- the first part with the gas they

don't do any more as it doesn't show much extra, according to Harbor -UCLA

Radiology.

I brilliant piece of technology in unravelling this mystery,

Re: Appt with Dr. Goldberg

>Date: Mon, 18 Mar 2002 12:47:25 +0000 (GMT)

>

> Hi Cheryl

>I noticed from your reply to that you had the

>specscan done on your son, please can you or anyone

>else tell me if it was your idea or does DrG tell you

>to do it.

>

>i am seeing Him for the first time in July and have

>not received paperwork from his office yet and am

>wondering the above,and at what age is too young to do

>the scan.my child is 31/2.

>

>many thanks

>Ri

>

>

_________________________________________________________________

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Responsibility for the content of this message lies strictly with

the original author, and is not necessarily endorsed by or the

opinion of the Research Institute.

[Guest guest]

I honestly don't have a clue. I just mentioned that as a general example.

If you had a child with a seizure disorder you would already know.

Cheryl

>From: " Jansen " <rjansen@...>

>Reply-

>< >

>Subject: Re: Appt with Dr. Goldberg-Ri

>Date: Tue, 19 Mar 2002 07:42:36 -0500

>

>Cheryl,

>What may the scan look like if a child is having seizures?

>Just curious.

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[Guest guest]

Hi !

Thank you for your kind reply. please let me know

exactly what the whole procedures involves as my child

is very hyper and is very difficult to do any thing

with her. how long does it last?

where do you get it done? also can anyone please let

me know if i can have it done in the UK and if it has

the same name?

I am not sur if toput my little one should be put

through it if it is not neccessary? she is 31/2. has

anyone had one done at that age?

please reply, anyone as iwould rather know from a

parent

Many thanks

Ri

--- R M <rmwilson@...> wrote:

<HR>

<html><body>

<tt>

I think, in retrospect, if your child is compliant to

go through with it, a<BR>

scan is such an important diagnostic tool. While Dr G

can use the blood work<BR>

to come up with the overall diagnosis, the scan

will reveal other<BR>

hidden issues about over and under perfusion in

various parts of the brain.<BR>

In our son's case (6 yo), we didn't do the scan on our

first appointment<BR>

over two years ago. We got to a point recently where

there were unanswered<BR>

issues, so had a scan done on this trip (end Jan)

which answered a number of<BR>

puzzles, and allow us to focus very precisely on both

medical intervention<BR>

and therapy/school/behavioural issues. Do it now if

you can even if to get a<BR>

benchmark!<BR>

<BR>

It costs about $900 now instead of $1500- the first

part with the gas they<BR>

don't do any more as it doesn't show much extra,

according to Harbor -UCLA<BR>

Radiology.<BR>

<BR>

I brilliant piece of technology in unravelling this

mystery,<BR>

<BR>

<BR>

Re: Appt with Dr. Goldberg<BR>

& gt;Date: Mon, 18 Mar 2002 12:47:25 +0000 (GMT)<BR>

& gt;<BR>

& gt; & nbsp; Hi Cheryl<BR>

& gt;I noticed from your reply to that you had

the<BR>

& gt;specscan done on your son, please can you or

anyone<BR>

& gt;else tell me if it was your idea or does DrG tell

you<BR>

& gt;to do it.<BR>

& gt;<BR>

& gt;i am seeing Him for the first time in July and

have<BR>

& gt;not received paperwork from his office yet and

am<BR>

& gt;wondering the above,and at what age is too young

to do<BR>

& gt;the scan.my child is 31/2.<BR>

& gt;<BR>

& gt;many thanks<BR>

& gt;Ri<BR>

& gt;<BR>

& gt;<BR>

<BR>

<BR>

_________________________________________________________________<BR>

Chat with friends online, try MSN Messenger: <a

href= " http://messenger.msn.com " >http://messenger.msn.com</a><BR>

<BR>

<BR>

<BR>

<BR>

Responsibility for the content of this message lies

strictly with<BR>

the original author, and is not necessarily endorsed

by or the<BR>

opinion of the Research Institute.<BR>

<BR>

<BR>

[Guest guest]

Dear Ri,

I understand your concerns about getting a hyper 3 1/2 yo to comply. We had

these concerns when was younger, and mind you still had them eight

weeks ago before

he did the scan. The Nuerospect scans are done at the Radiology Associates

of Harbor - UCLA Medical Foundation in Torrance - a little over an hours

drive from Dr Goldberg's office. The procedure entails the intravenous

injection of something called B mCi Tc-99m HMPAO - which is something that

the SPECT emission can reflect on in the blood stream of the brain. After

this injection, it is necessary to wait for at least 40 minutes - and

I went to the waiting room and watched TV (luckily Teletubbies were on!) .

then had to lie on a 'bed' with his head lightly restrained by a

velcro strap to help keep him still and then have his head go partly into

one of this big round tunnel like body scanning devices -(don't' know the

proper name for it). He had to l ie still for 16 minutes while a lot of

scans from different angles were taken. He was very good and according to

Carmen at the centre she manages many children who are quite difficult. I

was impressed with the care and understanding through the procedure.

I'm not sure if it can be done in the UK though I recall reading something

about Spect scans being done in Europe - possibly France. The most important

part about the scan is once successfully completed, is the proper and

accurate clinical interpretation - and as far as kids are concerned,

the evaluation would need to be done by someone very familiar with scans in

children with spectrum disorders. You can always have Dr G's office book a

scan for your visit in July but cancel it if he really doesn't think it

necessary or you think at this time your child might not comply with the

procedure. We did this on our first visit.

regards,

Re: Appt with Dr. Goldberg<BR>

& gt;Date: Mon, 18 Mar 2002 12:47:25 +0000 (GMT)<BR>

& gt;<BR>

& gt; & nbsp; Hi Cheryl<BR>

& gt;I noticed from your reply to that you had

the<BR>

& gt;specscan done on your son, please can you or

anyone<BR>

& gt;else tell me if it was your idea or does DrG tell

you<BR>

& gt;to do it.<BR>

& gt;<BR>

& gt;i am seeing Him for the first time in July and

have<BR>

& gt;not received paperwork from his office yet and

am<BR>

& gt;wondering the above,and at what age is too young

to do<BR>

& gt;the scan.my child is 31/2.<BR>

& gt;<BR>

& gt;many thanks<BR>

& gt;Ri<BR>

& gt;<BR>

& gt;<BR>

<BR>

<BR>

_________________________________________________________________<BR>

Chat with friends online, try MSN Messenger: <a

href= " http://messenger.msn.com " >http://messenger.msn.com</a><BR>

<BR>

<BR>

<BR>

<BR>

Responsibility for the content of this message lies

strictly with<BR>

the original author, and is not necessarily endorsed

by or the<BR>

opinion of the Research Institute.<BR>

<BR>

<BR>