update from ND..igh's appts and Fifth's disease

[Guest guest]

It's been a long weekend, and now the week is almost over. Where does

the time go ???????? .

's mouth sores are gone. We started Miralax for the constipation

and that has made a world of difference. He started with a rash on his

chest Tuesday night and it has now spread to his cheeks and neck...and

another child at daycare had the same rash today...off tto the

ped.....Diagnosis...Fifth's disease...so now we will watch and wait and

see if he is able to fight this or not..appetite is poor...crabby, and

fussy.....we are hoping that his HGB will stay stable and that this

won't affect his bone marrow and red blood cells....

igh's appts went well.....More news, more things to do. She does

have Central Auditory processing disorder. Her Left ear hearing is

falling slightly behind the R ear and some of this could be caused by

the hole in the ear drum. We have an appt with the ENT here on June 7

and then will be transferred back to MPLS to a neuro ENT to repair the

whole...then 8 weeks later start the Hemisphere specific auditory stim

to help her learn how to process the things she hears. Right now she

hears more background noise then the speech, etc and also has a hard

time with the frequency of sounds from the S, T, F, etc...some of the

" harder " consonants. This will ultimately affect her learning as it can

" change the words " she hears....IE she may not understand directions,

etc.

OT agrees witht he diagnosis of sensory integration as does PT...both

want her in a program as well as start home therapy. Her gross motor

skills were in the 24th percentile by this PT, but these same numbers in

two weeks would give her a much lower score due to how the tests are

scored with their age...

I did make contact yesterday with a " new school " ....Child development

center here in town. They don't have OT at their center, but are doing

SI and CAPD stuff. We will meet with them next week. She is very

familiar with the CAPD stuff and apparently there is a good advocate in

the bismarck public school that she will get us in touch with. Then

there was talk about getting igh on SSI....so we will see....

Work has been crazy, I hope to have a little time this w/e to catch up

on email...but doubt it...as we need to go to Minot for a graduation.

Hope all are well.

BTW her nose is still draining tons of crap...will do one more round of

antibiotics...then I am asking for labs as I feel she could possibly

have a similar diagnosis as ....

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Checked by AVG Free Edition.

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[Guest guest]

Hi !!

My son Blake was DX'ed with CAPD(Central Auditory Processing

Disorder) when he was 6 yrs. old. The testing are very expensive &

we had to have Blake's ENT actually write it off as we could not

afford it. But he " liked " Blake & knew there just was something off

key with Blake.

Actually, we learned that CAPD was not caused by all of the

infections that Blake endured in just those 6 yrs. We also found

out that because he did have major hearing loss before the testing

was done, it would be more difficult to DX.

Blake went through 1 week of testing at the Auditory Specialist. He

has a hard time distinguishing between the normal female & the

normal male voices. I for one know how hard it is on you having a

child with this. It is frustrating to know that Blake can read

anything he wishes but to do anything orally forget it!!

I did want to tell you there is a program on CD-ROM it is called

Earobics. it is for the child who has CAPD. It helps the child learn

to distinguish between the background noise & the computer voices.

It helps also to have the child focus more on the voices rather than

the pencil that just fell to the floor!!! We actually were given

the whole program to use with Blake by the ENT & the School because

of Blake's home bound status. Maybe you can get a copy of this

program & use it through the summer & see a change with school when

the summer is over. Blake still likes to use this!!!

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>

>

> It's been a long weekend, and now the week is almost over. Where

does

> the time go ???????? .

>

> 's mouth sores are gone. We started Miralax for the

constipation

> and that has made a world of difference. He started with a rash

on his

> chest Tuesday night and it has now spread to his cheeks and

neck...and

> another child at daycare had the same rash today...off to the

> ped.....Diagnosis...Fifth's disease...so now we will watch and

wait and

> see if he is able to fight this or not..appetite is poor...crabby,

and

> fussy.....we are hoping that his HGB will stay stable and that this

> won't affect his bone marrow and red blood cells....

>

> igh's appts went well.....More news, more things to do. She

does

> have Central Auditory processing disorder. Her Left ear hearing is

> falling slightly behind the R ear and some of this could be caused

by

> the hole in the ear drum. We have an appt with the ENT here on

June 7

> and then will be transferred back to MPLS to a neuro ENT to repair

the

> whole...then 8 weeks later start the Hemisphere specific auditory

stim

> to help her learn how to process the things she hears. Right now

she

> hears more background noise then the speech, etc and also has a

hard

> time with the frequency of sounds from the S, T, F, etc...some of

the

> " harder " consonants. This will ultimately affect her learning as

it can

> " change the words " she hears....IE she may not understand

directions,

> etc.

>

> OT agrees witht he diagnosis of sensory integration as does

PT...both

> want her in a program as well as start home therapy. Her gross

motor

> skills were in the 24th percentile by this PT, but these same

numbers in

> two weeks would give her a much lower score due to how the tests

are

> scored with their age...

>

> I did make contact yesterday with a " new school " ....Child

development

> center here in town. They don't have OT at their center, but are

doing

> SI and CAPD stuff. We will meet with them next week. She is very

> familiar with the CAPD stuff and apparently there is a good

advocate in

> the bismarck public school that she will get us in touch with. Then

> there was talk about getting igh on SSI....so we will see....

>

> Work has been crazy, I hope to have a little time this w/e to

catch up

> on email...but doubt it...as we need to go to Minot for a

graduation.

>

> Hope all are well.

>

> BTW her nose is still draining tons of crap...will do one more

round of

> antibiotics...then I am asking for labs as I feel she could

possibly

> have a similar diagnosis as ....

>

>

>

> ----------

>

> Internal Virus Database is out-of-date.

> Checked by AVG Free Edition.

> Version: 7.1.392 / Virus Database: 268.5.5/333 - Release Date:

5/5/2006

>

>

>

[Guest guest]

Thanks.

That is one of the programs the Audiologist talked about. I think we first

need to fix the ear before starting anything...I think at this point that is

the first place to start.

BTW>...everyone here is so great....this is why I have gotten as far as I

have.

Have a good w/e.

Quoting marie <momtoboywholoveshisgoats@...>:

>

> Hi !!

> My son Blake was DX'ed with CAPD(Central Auditory Processing

> Disorder) when he was 6 yrs. old. The testing are very expensive &

> we had to have Blake's ENT actually write it off as we could not

> afford it. But he " liked " Blake & knew there just was something off

> key with Blake.

> Actually, we learned that CAPD was not caused by all of the

> infections that Blake endured in just those 6 yrs. We also found

> out that because he did have major hearing loss before the testing

> was done, it would be more difficult to DX.

> Blake went through 1 week of testing at the Auditory Specialist. He

> has a hard time distinguishing between the normal female & the

> normal male voices. I for one know how hard it is on you having a

> child with this. It is frustrating to know that Blake can read

> anything he wishes but to do anything orally forget it!!

> I did want to tell you there is a program on CD-ROM it is called

> Earobics. it is for the child who has CAPD. It helps the child learn

> to distinguish between the background noise & the computer voices.

> It helps also to have the child focus more on the voices rather than

> the pencil that just fell to the floor!!! We actually were given

> the whole program to use with Blake by the ENT & the School because

> of Blake's home bound status. Maybe you can get a copy of this

> program & use it through the summer & see a change with school when

> the summer is over. Blake still likes to use this!!!

>

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>

> >

> >

> > It's been a long weekend, and now the week is almost over. Where

> does

> > the time go ???????? .

> >

> > 's mouth sores are gone. We started Miralax for the

> constipation

> > and that has made a world of difference. He started with a rash

> on his

> > chest Tuesday night and it has now spread to his cheeks and

> neck...and

> > another child at daycare had the same rash today...off to the

> > ped.....Diagnosis...Fifth's disease...so now we will watch and

> wait and

> > see if he is able to fight this or not..appetite is poor...crabby,

> and

> > fussy.....we are hoping that his HGB will stay stable and that this

> > won't affect his bone marrow and red blood cells....

> >

> > igh's appts went well.....More news, more things to do. She

> does

> > have Central Auditory processing disorder. Her Left ear hearing is

> > falling slightly behind the R ear and some of this could be caused

> by

> > the hole in the ear drum. We have an appt with the ENT here on

> June 7

> > and then will be transferred back to MPLS to a neuro ENT to repair

> the

> > whole...then 8 weeks later start the Hemisphere specific auditory

> stim

> > to help her learn how to process the things she hears. Right now

> she

> > hears more background noise then the speech, etc and also has a

> hard

> > time with the frequency of sounds from the S, T, F, etc...some of

> the

> > " harder " consonants. This will ultimately affect her learning as

> it can

> > " change the words " she hears....IE she may not understand

> directions,

> > etc.

> >

> > OT agrees witht he diagnosis of sensory integration as does

> PT...both

> > want her in a program as well as start home therapy. Her gross

> motor

> > skills were in the 24th percentile by this PT, but these same

> numbers in

> > two weeks would give her a much lower score due to how the tests

> are

> > scored with their age...

> >

> > I did make contact yesterday with a " new school " ....Child

> development

> > center here in town. They don't have OT at their center, but are

> doing

> > SI and CAPD stuff. We will meet with them next week. She is very

> > familiar with the CAPD stuff and apparently there is a good

> advocate in

> > the bismarck public school that she will get us in touch with. Then

> > there was talk about getting igh on SSI....so we will see....

> >

> > Work has been crazy, I hope to have a little time this w/e to

> catch up

> > on email...but doubt it...as we need to go to Minot for a

> graduation.

> >

> > Hope all are well.

> >

> > BTW her nose is still draining tons of crap...will do one more

> round of

> > antibiotics...then I am asking for labs as I feel she could

> possibly

> > have a similar diagnosis as ....

> >

> >

> >

> > ----------

> >

> > Internal Virus Database is out-of-date.

> > Checked by AVG Free Edition.

> > Version: 7.1.392 / Virus Database: 268.5.5/333 - Release Date:

> 5/5/2006

> >

> >

> >