Sensory Issues and some positive feedback

[Guest guest]

Hello to all of you fighting for your child's recovery,

My son is 6 1/2 years old and we removed milk and whole wheat in September and

have used Valtrex for a few months. He has made some improvements lately, one

being a decrease in noise sensitivity. Hair cuts have always been traumatic.

The last time I got the clippers out, my husband was not home to hold my son.

He cried a bit, but I told him he had to sit (he is nonverbal) and he did. It

was our quickest hair cut yet. Instead of disappearing when I get the electric

toothbrush out or the vacuum, we can now do these chores like a game. I can

chase him with the dust buster and he laughs. He is also going down the big

slides. In the past he would climb to the top, but go back down the

ladder--especially the twisted or covered slides. Now he goes down them all and

he laughs. I took him to the theatre to see Ice Age. Those previews are sooo

loud. He did fine. He even laughed at the movie. On our recent trip to see

Dr. Goldberg, we took the Amtrak train. The giant train pulled into the station

with the whistle blowing and the brakes squeeling. He buried his face in my

shirt, but no real problem. This was an 18 hour trip. He not only did fine, he

loved it. Our trip to the doctor ended up being one of our best mini vacations

we've had.

On another note about reactions to medications. My son was having what looked

like psychotic episodes shortly after starting the Valtrex. We stuck it out for

a few months and then stopped giving it to him. The episodes did not stop. We

took him out of kindergarten. The episodes did not stop. I remembered that we

had changed pharmacies for another medication he takes. It turns out that they

used a different generic brand of the medicine. The day we switched back it was

noticeable that he was much better, however, some of his crazy behavior had

become habit and took about a month to lose some of his aggressive reactions.

We have since put him back on the Valtrex with no negative reactions. I

realized now why Dr. Goldberg changes things slowly. Had I not backtracked on

every change, we may have continued to think the Valtrex was the culprit.

Another note about Valtrex. My regular pediatrician is normally reluctant to

dispense medications. His opinion of Valtrex is that it is extremely safe and

all it can do is kill viruses with the same DNA structure as herpes.

My son's improvements have been subtle and most noticeable in our daily

activities. The ABA data may not show much. I think my uncle whom we haven't

seen in about a year brought things into perspective. I hadn't even asked him

anything, but he came up to me and said, " he seems so interactive now, I am so

happy for you " . Of course I beemed like any proud parent.

I hope this helps some people. I think human nature is to speak up when there

are problems or concerns. There are a lot of new people on this list or people

who are investigating the information to see if it is right for their kids. I

think it would be a great service for those who are seeing positive results due

to Dr. Goldberg's treatment to share it from time to time. Even though I feel I

am doing the right thing, I would like to hear posivitve comments as well as the

necessary discussions about problems.

Thank you

Little