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Larry Halloran (who organized the hearing; he is counsel for the

sibcommittee) told me on Friday that C Span told him at 5 pm Wednesday

that they would not be filming the hearing. He thought it was only

filmed by local stations, though one camera was from Fox.

Meryl

--

Meryl Nass, M.D.

Parkview Hospital, Brunswick, Maine 04011

email mnass@...

phone (207) 865-0875

fax (207) 865-6975

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  • 1 year later...
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I haven't been able to dig up much of anything on the actual

hearings last week. The letter that I posted from Dr.

McCandless came out in response to the IOM report that came

out on Monday. It wasn't really a part of the Congressional

Hearings.

If I do find anything, I'll post it here.

Shirley

> Did anything significant come out of the congressional hearings

last week?

>

> The thread on this list regarding the " Burton Hearing:IOM Report

Dirty "

> alludes to a problem with a specific report.

>

> Is this the test of neonatal blood samples for growth factors? If

so, I

> thought that is an old study. Why is it now news again?

>

> The letter from Jaquelyn McCandless, MD to the Los Angeles Times

and the

> Institute of Medicine

> which Shirley posted in message 23078 is excellent (I added her to

my list of

> heroes as well), but is there a direct connection between her

letter and the

> hearings? Did she testify? Was anyone on this list at the

meetings?

>

> Does anyone have a link to find more information?

>

> Joe Marciano

>

>

>

>

>

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  • 9 months later...

Dear Listmates,

I had a phone consult with Dr. G the other day and asked him how the " business

plan " is going. He says it's out there, but the parents need to get the word

out and help get some funding. No one from is being represented at the

April congressional hearings.

Our congressman, Rob Portman, has a son in my son's class and is a wonderful,

approachable guy. Would one of you veteran or regional Presidents email me

privately with a little blurb that you would write to inform a congressman that

Dr. G needs to be heard because there are things that can be done NOW to help

these children. My husband and I will present it to him personally. I think I

can get him invited if I present it well. Please help.

I need to know the exact dates and title of the hearings, ie, autism,

immunizations? Sorry to be so ignorant, but I have been obcessing over my

child. We really need to gain access to these new immune modulators.

Thanks,

Ellen

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contact reynolds <A HREF= " keys2ua@... " >keys2ua@...</A>

Tina M. Hendrix

Cure2000@...

Vice-President, California Coalition

Neuro-Immune Dysfunction Syndromes

Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS,

etc.

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