Re: Our trip to see Dr. G (loooong)

May 13, 2002

Hi , I just read your story, and I have heard a lot recently about DR. G

and how wonderful he is with helping Autistic children. I am wondering, what

does he do exactly? Chelation? How do you go about getting an appointment

with him?

How many days would you need to be there? How much is the cost? Does he take

insurance for everything? I would really appreciate as much information as

you can give me, my family lives out in Las Vegas, I am in New York, and I am

hoping if I can get an appt. to see Dr. G, that I can have my family drive

there from Vegas with me and my son , who is five and high functioning

Autistic.

I would appreciate your response,

Vicki Lowery

May 13, 2002

Thank you so much for your very very useful info. I

will be going to see Dr G from the uk in July and as

you could imagine am dreading the plane journey as my

daughter is very difficult to control and very hyper.

I am flying with American Airlines (any tips welcome.

your email gave me lots of relevant info regarding

taxis etc. I too am thinking of satying at the Inn.

Please tell me was seeing Dr G as you expected?

Rifat

--- Doug McCreary <dmccreary@...> wrote:

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Hi all,

We just got back from our trip to LA and thought some

people might want to hear of our travel

experience.

Our trip was a very short one, we left Toronto on

Monday evening and got home Friday morning.

We checked at the Park and Fly and Air Canada checked

us in and issued us boarding passes right there, while

and I stayed in the car. They advised us to go

to the Special Services counter for Air Canada in the

airport. Those people were fantastic they escorted us

and carried our luggage though the entire airport

right to our gate! We got to take our stroller right

to the gate and it was retrieved at LA and given to us

at the gate there. We preboarded in Toronto, but I

would suggest if the flight is full as it was coming

home that you actually get on last, it's less time on

the plane. Our flight was at 6:30pm so we gave

some Gravol at 6pm. We lucked out because the plane

was only half full. We found the best seating

arrangement was at a window seat, Doug next to

him in the aisle and me across the aisle. He had a

really good Gluten Free meal (pre-ordered). Then after

dinner he cuddled in on a bed made of two seats,

pillows and blankets, had a bottle and didn't wake up

until landing. WOW. In LA we got our bags and headed

for the Thrifty shuttle which was right outside, we

had prebooked our rental car from Thrifty over the

internet. It was $30 a day, unlimited mileage (we

didn't have any special discounts) and $15 for the

booster for the week. & nbsp; They filled it back up

with gas at the end of the week because gas was

significantly cheaper through them. I found a

maps site on the internet where I could type in

Thrifty's address and the Days Inn address and it gave

me a printable map both in pictures and written

instructions on exactly how to get to the Hotel, it

was amazing. We were at the hotel within one hour of

landing! We got in at about 9;30 pm LA time and there

was no traffic. If someone wanted to take a cab

however, I got some names and numbers. I would not

recommend driving on the freeway during the day if you

are not comfortable in really fast, unpredictable

traffic ( for any Canadians reading this, it's like

Montreal!). These are the cab companies;Primetime

Shuttle 1-800-773-8267 & amp; Super Shuttle

1-818-556-6600. These two companies were about

$30.

Carnival car and limousine service 1-800-928-2899

& amp; 818-345-5466 www.limo1.com, about $60. This

company claims they are the & quot;only transportation

allowed to pick-up & amp;drop off inside the

terminal & quot;. That would save getting the

shuttle.

We stayed at the Days Inn 1-818-345-9410 . It's not

the Ritz but it was clean and the staff was very

friendly, and we didn't get strange looks when

was whooping it up out at the pool. It looked a bit

like the set of Melrose Place. We spoke with Randy the

Manager (ask to speak with him and mention that you

are going to see Dr. G, for a reduced rate)in advance

and he gave us a reduced rate of $80/nt, that

consisted of 2 queen beds, coffeemaker, iron,

hairdryer, fridge which is empty (that was great, we

stocked up at the supermarket). The rate also included

continental breakfast which was great. It was in a

hotel room converted into a kitchen with a few tables

in it. There was lots of fresh fruit, bread bagels,

danish's, doughnuts,cereal, condiments, OJ, milk, tea,

coffee a toaster (we used it for our GFCF bread that

we brought with us) and a microwave. We took the tray

that was in our room and carried breakfast back to the

room.

Although all they have is breakfast, this room can be

opened by a staff at any time during the day if you

need to use the microwave. We loved the pool area, it

was totally fenced in and provided towels, we could

actually sit and relax while played. Except

when he would go after the sand in the ashtrays

aaaargh!!! At night we always kept the fan running in

the room for & quot;white noise & quot;. He also had a

suite available with a full kichen and a separate

bedroom, I think it was $160/nt but I have temporarily

lost my notes. Dr G's office was about a five minute

walk from the hotel, so if you don't rent a car it's a

breeze to get there. It's right next to Mcs.

There is a health food store two blocks from the

hotel, on your way to Dr. G's, they don't have a lot

but they do sell rice and soy milk.

There are a lot of restaurants in the area. The first

Mcs you get to is right next to Dr. G's, if you

go a couple of miles down the road they have one with

an outdoor playplace yayyy!

The meeting with Dr. G was great, we had a little bit

of bloodwork left and & quot;the vampire & quot; from the

lab was amazing, barely knew what

happened.

We found a huge dollar store down the strip past

Dr.G's where we got pool toys (we left them at the

hotel, so you may not need any) souviners and snacks.

I had a blast and blew $38. A little further down the

road there is a large grocery store called Ralphs

where we stocked up on groceries.

We spent two wonderful evenings with president

Marc Share and his beautiful family, and we miss them

already. There was a rock band from England called

Glisten staying at the hotel who were very friendly

and very interested in , they gave us their CD

(which is pretty good, they sound like U2)and promised

if they make it big they will be

spokes people for , (you never know).

On the last day we headed slowly back to the airport,

we had about 7 hours to kill. & nbsp; We got on to the

Pacific Coast Highway and made our way to the Santa

Pier. We played in the sand, watched fish being

caught and then moved on a little further south to

Venice beach where they had some awesome playgrounds,

you can kind of parkhop all the way down the

beach.

Eventually we got to the airport, they didn't appear

to have special services there so we had to go through

the & quot;system & quot; like everyone else. Oh

Well!

The flight home was uneventfull, fell asleep

before boarding, it was an 11pm departure and slept

the whole way home.

I wish the best of luck to anyone making this journey.

I lived in dread for the last eight months of doing

this and it turned out just fine.

Happy Mothers Day,

McCreary

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May 13, 2002

Hi Vicki,

The first thing that I would suggest that you do is make an appointment

TODAY. The waiting list is very long, we waited 8 months. You can always

cancel if you change your mind. Dr. G's office does have a cancellation

list, so you may be able to get in much sooner but you need to have an

appoinment date set before you can get on the cancellation list.

To find out about go to www.nids.net , I believe that it is the process

of an overhaul, but if you look everywhere on the site you will find out all

about . Make sure you also go to the neuroimmunedr link. That is Dr. G's

own site. If you go to the conference area at neuroimmunedr you can register

and then take a look at the " ask Dr. G " Q & A's, it's a very informative area.

For me the hypothesis was the most logical that I have heard to date on

the treatment of autism. I don't have a medical background so I can't

explain it very well, (I'm sure others on the list will) Dr. G believes that

the Autism, that we are seeing in epidemic proportions today is not the same

as the 1 in 10,000 twenty years ago. " epidemic can not be due to a

developemental or genetic disorder. the only possible cause for this type of

disorder/dysfunction has become immune and/or viral in function. "

My understanding (remember no medical background) is that many of these kids

that appear autistic have a virus that attacks specific areas of the brain

that are responsible for speech and social delays. The brain, in an attempt

to fight off the virus shut down blood flow to those areas.

The protocol uses antivirals to break down the virus and then adds

SSRI's (antidepressants) which when used in small doses restores the blood

flow to those areas of the brain. Many of these children also have yeast

issues, so, depending on their bloodwork may be given an antifungal.

And ultimately, if necessessary an immune modulator is prescribed, in an

attempt to regulate the immune system. Like I said I don't have a medical

background and this is a gross oversimplification so I would highly

recommend going to the site. Or maybe Kathy or Cheryl could help me out

here.

Dr.G has a whole panel of blood tests run on his patients, you will find

that on the website. We were lucky, in Canada bloodwork is covered. But I

believe it costs about $2500 ( that is getting it from any lab, Dr. G does

not make money on this)but I think many parents have been successful in

having their insurance carrier cover at least some of it.. The bloodwork can

be done at Dr.G's but we preferred to have it done in advance so we knew

right away what we were dealing with at our first appointment.

The initial appointment was $450, he spent over an hour with us. From there,

you book phone consultations with him every 4-6 weeks. They last about 10-15

minutes, and I'm sorry I can't remember how much it costs it's about

$100-$150. Each week you send a progress report to his office . The child

then has one vial of blood drawn every 4-6 weeks which is faxed to Dr. G's

office and once Dr.G has spoken with you and seen the bloodwork he will

adjust the meds accordingly and fax you the prescriptions that you need.

If you are interested I have a whole file of inspiring testimonials that I

and others have collected from the archives from parents whose children have

done so well on the protocol.

I don't think is cheap or easy, but I do believe its the answer, or at

least part of, for a very large group of

children and it's definately worth the trouble.

Best of Luck,

Re: Our trip to see Dr. G (loooong)

> Hi , I just read your story, and I have heard a lot recently about

DR. G

> and how wonderful he is with helping Autistic children. I am wondering,

what

> does he do exactly? Chelation? How do you go about getting an appointment

> with him?

> How many days would you need to be there? How much is the cost? Does he

take

> insurance for everything? I would really appreciate as much information as

> you can give me, my family lives out in Las Vegas, I am in New York, and I

am

> hoping if I can get an appt. to see Dr. G, that I can have my family drive

> there from Vegas with me and my son , who is five and high

functioning

> Autistic.

> I would appreciate your response,

> Vicki Lowery

>

> Responsibility for the content of this message lies strictly with

> the original author, and is not necessarily endorsed by or the

> opinion of the Research Institute.

>

May 14, 2002

thank you so much for your helpful information. I am so interested in

taking a trip, possibly early next year to see Dr. G, but my son only has

Medicaid insurance, and I would need to know if Dr. G accepts that? I will

call his office, and get as much information as possible. I hope they do,

because financially I will not be able to do this now. I want to do

everything and anything to help my son, but money holds me back, from doing

so much. I am a single parent. I get child support, but its not enough for

doctors and treatments, plus daily living!

Do you have Dr. Goldberg's number? I would appreciate it.

Thanks again so very much,

Vicki Lowery

May 14, 2002

Dr.Goldberg accepts BCBS PPO and Health United.

BCBS covered everything, we paid about $35 only, even bloodwork in Dr's

office

Regina

----Original Message-----

From: Doug McCreary [mailto:dmccreary@...]

Sent: Monday, May 13, 2002 4:09 PM

Subject: Re: Our trip to see Dr. G (loooong)