Re: Digest Number 552

[Guest guest]

Hi a! Geoff Crenshaw here.

> Date: Tue, 07 Dec 1999 07:55:18 -0500

> From: a Carnes <paulajeanne@...>

> Subject: Re: dirty homeless

>

> We have got to open something to them. I think one of the major

problems

> is mental illness and drug addiction. We should be spending money on

> solving these problems and then most of the street people would no

longer

> live on the streets. My son lives in Santa Barbara, CA, one of the

richest

> areas of the US. It is also warm all the time. The street people

there are

> often mentally ill, talking to themselves and eating out of the

garbage

> cans. There has to be something we can do to help these poor people -

poor

> in spirit.

> a Carnes

This is an exceptionally difficult area. The mentally ill one would

consider people who cannot help themselves, very similar to one with

pneumonia. And it's worth mentioning and quite amazing at how much

mental illness we are now discovering is actually physiological.

On the other hand, self-induced problems of personal choice, such as

drug-addiction (speaking heroin here - still the most common, followed

by codeine and other opiates, and cocaine) are a different matter. These

are much harder to justify aid for - not that it isn't necessary, but

who do you help first? The one who is injured and cannot help

themselves, or the one who chooses to stay in jeopardy intentionally and

runs back there at every opportunity? One you can " treat " and help get

well, the other has to change within themselves... all you can do is

" lead " them to the water - but they must drink of it.

Regards,

Geoff Crenshaw, ACC -----------------------

Captain Cook's Cruise Center ** Usual Disclaimers **

-----------------------

Religion: Man's attempt to discover God

Christianity: God's offer to save mankind

[Guest guest]

About swallowing pills;

I wanted to share a tip that worked so well for my son.

He is ten years old and swallowed his first pill in August when we began

Chelation. We used TIC-TACs.

I had a container full of tic-tacs in full view for him and I let him chew up

a couple to desensitize him to swallowing them then when he was really

enjoying the eating the tic-tacs I swallowed one in front of him and was

heavily emphasizing the SWALLOW motion I was stroking my throat and repeating

swallow, swallow. I put his hand on my throat and had him feel the throat do

the swallow motion. I repeated this a few times then I threw a tic-tac in his

mouth and repeated the same things I had done on myself. He chewed it up.

This was okay because the point is to get his anxiety down and make the

chance of having something swallowed stay down. after about the third time of

tossing tic-tacs in the back of his and my throat he swallowed one!!!! we

continued; some he would swallow some he would chew. next I let him see I

was holding a pill and I threw it in the back he swished it around a bit I

was quickly, softly, stroking his throat and giving him drinks and saying

" swallow. " It worked great He takes about 10 pills a day now.

I cant remember what list member first posted the tic-tac idea, but I am

forever thankful for the suggestion.

Hope it helps,

Judy Braun

[Guest guest]

GROUP, I need some help, (what else is new:-)

Levi is scheduled Thursday to have his amalgams removed. I believe we have a

good mercury free dentist for the procedure. Rubber dam, vacuum, ventilation,

anesthesia. But, Dentist is not informed on the pre-removal treatment. So, In

order to get Levis body ready to handle any Metal exposure, I need your

suggestions.

I have several different opinions about the pre-removal protocol. Some say do

the intravenous Vitamin C; some say get a shot of DMPS; some say do both DMPS

and intravenous C. I really don't want to give Levi a DMPS injection for two

reasons, One He is soon after going to be sedated for amalgam removal; Two,

all of my camp seems to be in on the DMSA team. I just don't feel safe. I

have read the book " Its All In Your Head " the suggested procedure there is

not only " Over my Head " but out of our price range.

I have some DMSA-SR 200 mg. Plenty of them to begin chelation soon after the

removal. I am wondering if I should begin his DMSA chelation 24 hours before

his anesthesia for amalgam removal. Levi is currently taking Vitamin

C,E,B-complex, Zinc DMG Milk Thistle, selenium, Citrinmin2, magnesium malate

co-enzyeme Q-10.

Have any of you had to do this yet removal?

Please give me the minimum pre removal treatment protocol and THEN the " for

extra precaution "

I realize the final choice is all mine but your suggestions are greatly

needed as it is getting down to the wire.

Peace be with you all,

Judy Braun

[Guest guest]

Kathy, Can I also have Willis' paper?

Judy Braun

bronze3n1@...

[Guest guest]

Don't give any chelators while amalgams are still in place. And I

wouldn't go with IV DMPS, as I've heard some horror stories about it.

Andy Cutler recommends IV C immediately after amalgam removal to

lessen the negative effects of mercury. His book also says

specifically not to take any chelator orally one day before or for 4

days after amalgam removal, because amalgam chips will inevitably be

swallowed and will still be in the digestive system for a few days.

Write him for more info-- AndyCutler@...

> GROUP, I need some help, (what else is new:-)

> Levi is scheduled Thursday to have his amalgams removed. I believe

we have a

> good mercury free dentist for the procedure. Rubber dam, vacuum,

ventilation,

> anesthesia. But, Dentist is not informed on the pre-removal

treatment. So, In

> order to get Levis body ready to handle any Metal exposure, I need

your

> suggestions.

> I have several different opinions about the pre-removal protocol.

Some say do

> the intravenous Vitamin C; some say get a shot of DMPS; some say do

both DMPS

> and intravenous C. I really don't want to give Levi a DMPS

injection for two

> reasons, One He is soon after going to be sedated for amalgam

removal; Two,

> all of my camp seems to be in on the DMSA team. I just don't feel

safe. I

> have read the book " Its All In Your Head " the suggested procedure

there is

> not only " Over my Head " but out of our price range.

> I have some DMSA-SR 200 mg. Plenty of them to begin chelation soon

after the

> removal. I am wondering if I should begin his DMSA chelation 24

hours before

> his anesthesia for amalgam removal. Levi is currently taking

Vitamin

> C,E,B-complex, Zinc DMG Milk Thistle, selenium, Citrinmin2,

magnesium malate

> co-enzyeme Q-10.

> Have any of you had to do this yet removal?

> Please give me the minimum pre removal treatment protocol and THEN

the " for

> extra precaution "

> I realize the final choice is all mine but your suggestions are

greatly

> needed as it is getting down to the wire.

> Peace be with you all,

> Judy Braun

[Guest guest]

In a message dated 6/2/01 8:10:34 AM !!!First Boot!!!,

writes:

<< My sister lives in Arizona and services (ABA) are free thru the state

under

the Dept. of Dissablities. Check into it! >>

Here is a link to find out more! <A HREF= " http://www.nau.edu/ihd/ddd/ " >

Arizona Division of Developmental Disabilities (DDD)</A>

I am living in AZ right now, and I work for 3 families. I am actually going

to look for one additional family, b/c I happen to have some free hours

opening up. You wouldn't believe how many hours some of these families get!

I have one little boy who gets 40 hrs a week of habilitation plus 15 hrs a

week of respite. Wouldn't it be great if EVERYONE could get that kind of

help!

Jayme

[Guest guest]

Re: Clinical Supervision

, the Brookfield (1987) quote can be found in

'Teaching & Assessing in Nursing Practice' (Nicklin

and Kenworthy, 1995). Thinking in terms of clinical

supervision relating to, and revealing, our practice in

Schon's 'swampy lowlands' has also been enormously

helpful. This is all from an excellent CPT course at UCN

(thanks, Anne Devlin) and yes, Tom, CPTs have ideal

(but not exclusive) skills for this (and for attempting to

evaluate effectiveness).

Ann, you were asking how we evaluated our Integrated

Nursing Team clinical supervision. We do not have an

overall tick list which may be something to develop

(through the SENATE medium? We would need to look

at what we are evaluating, how, why etc.). However here

are a couple of ways we evaluate: The format we complete

at the end of every session has, as the last section: 'How will

this affect my practice?'. After the start of changing

ways of thinking through talking, this is the next step. At the

next clinical supervision we can return to issues e.g. We had

one case where a DN was uncomfortable about a patient's

home conditions and behaviour. The dawning of realisation

that this was adult abuse was very hard to accept, but

energising to be a part of. The next session then returns to

the development of that situation. What I am trying to say,

I think, is that evaluation of cs should, first and foremost be

on what change there has been to practice and that credit

needs to given that that is a constantly changing process

within a constantly changing context (could happily get very

bogged down here on assessment of practice).

Another evaluation of cs is of it's benefit as a support mechanism.

We gauge this through attendance (we even got DNs coming in

from annual leave for sessions through one particularly horrible

time).

We have also found it valuable for identifying training needs and

as cs is carried out within our team, this is easily facilitated.

As said earlier, the main problem we have found is where to take

issues that arise when management seem to be paying lip-service

only - would really like to be evaluating change in service!

Best wishes, Maggie Lavin

Digest Number 552

[Guest guest]

Thanks Maggie.Ann.P.S. I am sorry to have to send all the original message

but my computer does not accept the Senate address that I type so I have to

use the reply route. Can anyone help with this problem?

>From: " Maggie Lavin " <maggie.lavin@...>

>Reply-

>< >

>Subject: Re: Digest Number 552

>Date: Sun, 3 Mar 2002 12:11:18 -0000

>

>Re: Clinical Supervision

>, the Brookfield (1987) quote can be found in

>'Teaching & Assessing in Nursing Practice' (Nicklin

>and Kenworthy, 1995). Thinking in terms of clinical

>supervision relating to, and revealing, our practice in

>Schon's 'swampy lowlands' has also been enormously

>helpful. This is all from an excellent CPT course at UCN

>(thanks, Anne Devlin) and yes, Tom, CPTs have ideal

>(but not exclusive) skills for this (and for attempting to

>evaluate effectiveness).

>Ann, you were asking how we evaluated our Integrated

>Nursing Team clinical supervision. We do not have an

>overall tick list which may be something to develop

>(through the SENATE medium? We would need to look

>at what we are evaluating, how, why etc.). However here

>are a couple of ways we evaluate: The format we complete

>at the end of every session has, as the last section: 'How will

>this affect my practice?'. After the start of changing

>ways of thinking through talking, this is the next step. At the

>next clinical supervision we can return to issues e.g. We had

>one case where a DN was uncomfortable about a patient's

>home conditions and behaviour. The dawning of realisation

>that this was adult abuse was very hard to accept, but

>energising to be a part of. The next session then returns to

>the development of that situation. What I am trying to say,

>I think, is that evaluation of cs should, first and foremost be

>on what change there has been to practice and that credit

>needs to given that that is a constantly changing process

>within a constantly changing context (could happily get very

>bogged down here on assessment of practice).

>Another evaluation of cs is of it's benefit as a support mechanism.

>We gauge this through attendance (we even got DNs coming in

>from annual leave for sessions through one particularly horrible

>time).

>We have also found it valuable for identifying training needs and

>as cs is carried out within our team, this is easily facilitated.

>As said earlier, the main problem we have found is where to take

>issues that arise when management seem to be paying lip-service

>only - would really like to be evaluating change in service!

>Best wishes, Maggie Lavin

>

> Digest Number 552

>

>

>

[Guest guest]

Hey lisa..

Im really happy to know ure doing better after the surgery. My husband Arun, is scheduled for one June 18th at the University of Washington medical center. This is with Dr. Pellegrini. I was reading the ratings for best hospitals ( digestive disorders) and UW only came in 33rd! I am kind of concered since we just met the surgeon once and he dint make too many promises. The next time we meet is for surgery. Even though he seems pretty experianced can you ask your Dr. Rice about him? Just so I can feel more comfortable trusting his experiance. Arun had a botox injection once with absolutely no effect. And a couple of weeks back had kidney stones and was in the ER for a day!

Thanks for your time

Anusha

achalasia wrote:

[Guest guest]

Anusha,

Dr. Pelligrini did my surgery two years ago and the results have been great! I would recommend him very highly, and he came highly recommended to my by my gastroenterologist. I live in Texas and traveled to Seattle specifically so that Dr. Pelligrini could do my surgery. He also has published a lot on achalasia. I think that your husband will be in good hands.

-----Original Message-----From: Anusha Arun [mailto:anusha_arun@...]Sent: Monday, May 13, 2002 11:37 PMachalasia Subject: Re: Digest Number 552

Hey lisa.. Im really happy to know ure doing better after the surgery. My husband Arun, is scheduled for one June 18th at the University of Washington medical center. This is with Dr. Pellegrini. I was reading the ratings for best hospitals ( digestive disorders) and UW only came in 33rd! I am kind of concered since we just met the surgeon once and he dint make too many promises. The next time we meet is for surgery. Even though he seems pretty experianced can you ask your Dr. Rice about him? Just so I can feel more comfortable trusting his experiance. Arun had a botox injection once with absolutely no effect. And a couple of weeks back had kidney stones and was in the ER for a day! Thanks for your time Anusha achalasia wrote:

[Guest guest]

Can anybody tell me why it takes my posts four to six days to show up when at least some folks are obviously able to exchange messages instantaneously through this group? Am I doing something wrong, or what?

Frustrated,

-----Original Message-----From: , Sent: Friday, May 17, 2002 9:27 AMachalasia Subject: RE: Digest Number 552

Anusha,

Dr. Pelligrini did my surgery two years ago and the results have been great! I would recommend him very highly, and he came highly recommended to my by my gastroenterologist. I live in Texas and traveled to Seattle specifically so that Dr. Pelligrini could do my surgery. He also has published a lot on achalasia. I think that your husband will be in good hands.

-----Original Message-----From: Anusha Arun [mailto:anusha_arun@...]Sent: Monday, May 13, 2002 11:37 PMachalasia Subject: Re: Digest Number 552

Hey lisa.. Im really happy to know ure doing better after the surgery. My husband Arun, is scheduled for one June 18th at the University of Washington medical center. This is with Dr. Pellegrini. I was reading the ratings for best hospitals ( digestive disorders) and UW only came in 33rd! I am kind of concered since we just met the surgeon once and he dint make too many promises. The next time we meet is for surgery. Even though he seems pretty experianced can you ask your Dr. Rice about him? Just so I can feel more comfortable trusting his experiance. Arun had a botox injection once with absolutely no effect. And a couple of weeks back had kidney stones and was in the ER for a day! Thanks for your time Anusha achalasia wrote:

[Guest guest]

Hi,

I don't have the answer but I have been experiencing the same thing.

Ed

RE: Digest Number 552

Can anybody tell me why it takes my posts four to six days to show up when at least some folks are obviously able to exchange messages instantaneously through this group? Am I doing something wrong, or what?

Frustrated,

-----Original Message-----From: , Sent: Friday, May 17, 2002 9:27 AMachalasia Subject: RE: Digest Number 552

Anusha,

Dr. Pelligrini did my surgery two years ago and the results have been great! I would recommend him very highly, and he came highly recommended to my by my gastroenterologist. I live in Texas and traveled to Seattle specifically so that Dr. Pelligrini could do my surgery. He also has published a lot on achalasia. I think that your husband will be in good hands.

-----Original Message-----From: Anusha Arun [mailto:anusha_arun@...]Sent: Monday, May 13, 2002 11:37 PMachalasia Subject: Re: Digest Number 552

Hey lisa.. Im really happy to know ure doing better after the surgery. My husband Arun, is scheduled for one June 18th at the University of Washington medical center. This is with Dr. Pellegrini. I was reading the ratings for best hospitals ( digestive disorders) and UW only came in 33rd! I am kind of concered since we just met the surgeon once and he dint make too many promises. The next time we meet is for surgery. Even though he seems pretty experianced can you ask your Dr. Rice about him? Just so I can feel more comfortable trusting his experiance. Arun had a botox injection once with absolutely no effect. And a couple of weeks back had kidney stones and was in the ER for a day! Thanks for your time Anusha achalasia wrote:

[Guest guest]

It may have to do with your preferences selected. I post directly on

the board on the internet not through my personal e-mail so I think

the screening and posting process is faster. (my guess, others may

know better)

Liz

> > Hi, My name is janers, and I too suffer from the " dreaded "

> > achalasia. I say dreaded because for many years the doc

treated me

> > for heartburn with meds that did not do crap...

> > I was diagnosed with MCTD (mixed connective tissue

disease) and

> have

> > LUPUS. It was found in the I had esophageal dysmotility

when

> getting

> > some help for the lupus. OK, long story and try to make

this short.

> > I finally got the GI doc to do ph monitoring and

esophageal

> motility

> > testing (the nice tests LOL) after 3 trips to the ER for

chest

> pain.

> > And heart was fine but the pain just kept getting worse.

Sure

> enough

> > Achalasia from hell was diagnosed.

> > In Jan. 2001 I finally had my dialation done for the very

first

> > time. I was awake and screaming with pain when he

dialated. He

> told

> > me I was out, but I know when I am out or not, and he

will never

> live

> > that one down. Pain was God aweful especially after the

dilation

> for

> > over a week. Since my lupus reacted it made it more so.

Finally

> it

> > let up and I could eat pretty well, with use of still

lots of water

> > and chewing gum after meals. I was also put in Imdur

> > (nitroglycerine) to help relax the esophagus.

> > It worked until fall of 2001, and I could tell it was a

coming

> back.

> > Again he dialated May 29th, and I ended up in ER 5 days

after that

> > with severe pain and heaviness, irregular heart rate, and

high bp.

> > All heart tests were GOOD> so heart doc says it is the

esoph. I

> am

> > upset here. Now the GI doc is talking about doing another

test in

> 4

> > weeks, could not understand what test it could be. I had

all the

> > tests to confirm this crap. Anyone know??

> > I will read the the posts here but I would like to know

first hand

> > from any of you WHO has had the Heller Myotomy and did

they tell

> you

> > that IF you have it the side effects are severe GERD and

or esoph

> CA??

> >

> > Help would be appreciated. and anything you tell me will

be MUCH

> > needed for me to handle this.

> >

> > thanks

>

>

>

>

______________________________________________________________________

__

>

______________________________________________________________________

__

>

> Message: 3

> Date: Sat, 11 May 2002 09:16:29 -0400

> From: " Janers "

> Subject: Re: new to this group. need advice(Janers)

>

>

>

> Thank you so much for your reply. Only one so far, but I

will be patient

> LOL.

>

> I am from Ohio and would like to find Any doctor from here

or from any state

> near. I will drive if I have to for good care. I have been

to the

> Cleveland clinic for my Lupus so if anyone knows of any

doctors there, that

> might be an option.

>

> thanks again, and this disease can cause a lot of

frustration.

>

> janers

>

>

> [This message contained attachments]

>

>

>

>

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[Guest guest]

My replies post immediately and I post directly on the board, using

the reply button, there doesn't seem to be any screening. I just

noticed that 's posting is through his digest and maybe that is

the difference. I just read the messages when I want directly from

the website and click on the reply button if I think I have to say

something. It shows up immediately. Maybe if you reply via the

digest the moderator has to read it because it is being sent as an

email?

And Ed, everytime I read your postings my heart goes out to you. My

problem is currently easily managed and I do not have much of an

enlarged esophagus so I count my blessings. Yours sounds like one of

the most advanced cases, yet you remain optimistic.

Sandy

> > Hi,

> > I don't have the answer but I have been experiencing the same

thing.

> > Ed

> > RE: Digest Number 552

> >

> >

> > Can anybody tell me why it takes my posts four to six days to

> show up when at least some folks are obviously able to exchange

> messages instantaneously through this group? Am I doing something

> wrong, or what?

> >

> > Frustrated,

> >

[Guest guest]

Thanks for the reply, and also to Liz and Ed for theirs. Apparently, according to the moderator (see May 25 post), the reason that some people post instantaneously and others don't is based on how the moderator has you classified. Posts from "new members" are moderated and don't get posted until the post is screened; posts from old members are not screened and get posted in real-time.

L.

-----Original Message-----From: toomuchclutter [mailto:sandycarroll@...]Sent: Tuesday, May 28, 2002 2:55 PMachalasia Subject: Re: Digest Number 552My replies post immediately and I post directly on the board, using the reply button, there doesn't seem to be any screening. I just noticed that 's posting is through his digest and maybe that is the difference. I just read the messages when I want directly from the website and click on the reply button if I think I have to say something. It shows up immediately. Maybe if you reply via the digest the moderator has to read it because it is being sent as an email?And Ed, everytime I read your postings my heart goes out to you. My problem is currently easily managed and I do not have much of an enlarged esophagus so I count my blessings. Yours sounds like one of the most advanced cases, yet you remain optimistic. Sandy> > Hi, > > I don't have the answer but I have been experiencing the same thing.> > Ed> > RE: Digest Number 552> > > > > > Can anybody tell me why it takes my posts four to six days to > show up when at least some folks are obviously able to exchange > messages instantaneously through this group? Am I doing something > wrong, or what? > > > > Frustrated,> >

[Guest guest]

In a message dated 02/10/2003 7:51:08 AM Eastern Standard Time, cholesteatoma writes:

I'm assuming this means I don't yet have any nerve or bone

damage, or I wouldn't be able to hear close to normal when I can equalize for a

few seconds. Is that true?

Hello Mike. Unfortunately, that's not true. The cholesteatoma itself can (note: CAN, that doesn't mean it has!) act as a sound conductor, so whether or not you can still hear is not a good indicator of whether or not your bones are being/have been destroyed. You need to see a doctor, preferably an otologist. Michele has posted some good suggestions in the past for the uninsured, I think one was contacting your nearest teaching hospital but maybe she'll post something more specific. Until they have some sort of breakthrough, surgery is the only solution - again, unfortunately.

Someone had a duration of surgery question (sorry, I get the "digest" version & it's hard to keep the post-ers straight). Mine ranged from 3 - 6 hours each time, with 6 being the most complicated. All were scheduled for about 3 hours, 2 went into overtime. The 1st 3 were outpatient, the 4th was short stay (overnight) & that was because I live over 2 hours & across a 17 mile bridge-tunnel over the Chesapeake Bay from the hospital & he wanted me closer than that in case of complications. Most of the time it is done out-patient altho not always.

Aw, Phil, yuk! Hopefully they cut away your face in such a way that they can put it back pretty much the way they found it. Hopefully it is also one of those things that sounds way worse than it ever feels (not that it'll feel good or anything, but maybe not quite so "Silence of the Lambs"-ish in practice as it is in theory). Keep us posted on your travel & surgery plans, you really are a "pillar of our community".

[Guest guest]

: I live in Lake Forest Park -- I will take you home after support

group on 10/6