Guest guest Posted March 16, 2002 Report Share Posted March 16, 2002 My 6 yr old son became a patient of Dr G's about 2 yrs ago. He had been diagnosed with autism/PDD. We always suspected an immune connection since Daddy had Guillian Barre Syndrome when was 6 mths old (GBS is a neuro immune related syndrome where the myelin is stripped; causes paralysis; was caused by either EBV or CMV). Heard about Dr G at a local ABA support grp meeting. Hemry was a speaker that night. Thank you ! (and sharrill!!) Dr G was visiting Bethesda, MD roughly every 3 mths. We were so lucky then. had had most of the blood tests done by a local DAN Dr. (who could only interpret 1/2 of the results). was on a GFCF diet; mega doses of supplements.... Yet his Lymph count continued to be very high; his eyes were dark; and the stimms continued. Dr G first started out on Valtrex.. We saw some nice changes within a few weeks. Yes, we did have the crankiness and irritability. The herpes viruses hiding out in my son didn't like the valtrex..... they were making the host very uncomfortable. But the symptoms subsided after a few weeks. Dr G didn't put on an SSRI until almost a year later. From what I understand, the body has to be 'prepped' first - hadn't been ready for the SSRI. We tried the first SSRI (can't remember the name). bounced. Then we tried Paxil. Peeled him off the ceiling. Then celexa. Ahhh a perfect fit! SSRIs are like shoes - you have to try a few before you find the one that fits. It would be helpful if the medical researchers would conduct a few trials to figure out why one works over the others .... We recently upped his dosage of celexa to 1/2 tablet a day. We've been trying to do this for over a year. We started kutapressin injections in Sept and Dr G believes this is the reason why. The kutapressin has worked with the valtrex to modulate the immune system, allowing the celexa to do its job. We have BCBS federal and they pay for 75% (after deductable - except for the telephone consults of which they pay 0%). We work with 's Pediatrician on the bloodwork and monitoring his condition. Monthly costs: $145 (tele consult) // $10-30 for bloodwork // $100-150 for prescriptions. We were able to deduct the costs of flying out to see Dr G on our taxes. Neurospect was paid for by BCBS and provided us with information on what is going on inside of 's head (why stimms are present). We're also working with a local allergist on 's seasonal allergies. land is a nasty place to live if you're allergic to pollen or mold. We've also started to implement the Feingold diet. Something was still 'setting' off; causing some inattentiveness. It had to be a food item. We've noticed a decreased upon removing apples, green peppers and tomatoes from his diet. We'll take out the remaining food items soon, wait 3 wks, then reintroduce each item - one per week and take note of any reactions. The damage done to is slowly unraveling. Like an onion, you have to take each layer one at a time. But the difference in just 2 yrs has been amazing. The eyes are dark less and less. He's is much more aware of his surroundings. His speech has improved. We've actually caught him appropriately playing with cars and toys. He's expressed a slight interest in the cats (much to their annoyance). And his abilities on the computer continue to grow by leaps ... Thanks for the notes on the reason behind the increase in illnesses. never got sick. I can't say that anymore ) We've had 2 viruses in the last month and a half. From what I've been reading, this is a good thing.... ) I'm hoping to get a local support group going in our area (land). I have a location - now that everyone is well I can get moving on setting up a date to meet. Easter: why worry about sweets? is getting an outdoor basketball hoop. We'll probably buy some small toys (reinforcers for ABA program) and place them in eggs. He loves the Easter bunny I bought 2 yrs ago that plays 2 Easter songs .... Buy a few books .... we'll take him to the park that day and have a nice family outing.. doris sville MD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 The link didn't work for me. Is this a problem on my end, or are others having difficulty? Success Story http://plantcity2.tbo.com/content/2008/mar/05/pc-approach-to-autism- works-for-family/ This is an article about one of Dr. Goldberg's patients. All the best, Robyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 http://plantcity2.tbo.com/content/2008/mar/05/pc-approach-to-autism-works-for-fa\ mily/ Try this. The last part of the link wasn't highlighted. Robyn Robins <susan.robins@...> wrote: The link didn't work for me. Is this a problem on my end, or are others having difficulty? Success Story http://plantcity2.tbo.com/content/2008/mar/05/pc-approach-to-autism- works-for-family/ This is an article about one of Dr. Goldberg's patients. All the best, Robyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 Hi All, Just had to add that we were in Dr. G's today when an email regarding the article came in along with a call from a new patient. Dr. G said " oh, well " and had this smile on his face. Not smug, or conceited, almost surprised. It was just kind of neat to see the modesty in a man who has so much passion for our kids. Anyways, don't know if this helps anyone, I simply wanted to share. > The link didn't work for me. Is this a problem on my end, or are others having difficulty? > > Success Story > > http://plantcity2.tbo.com/content/2008/mar/05/pc-approach-to-autism- > works-for-family/ > > This is an article about one of Dr. Goldberg's patients. > > All the best, > > Robyn > > Quote Link to comment Share on other sites More sharing options...
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