Guest guest Posted December 14, 2003 Report Share Posted December 14, 2003 hi all..well for those of you that know me, I just wanted to give everyone update. As you know, my wife has had RA for the past 12 months. Shes 29 and started taking remicade in March. The Remicade was helping a lot with a combination with Methotrexate and Folic Acid. She received her last infusion in Oct and at that time, she went in a week early because she was hurting and they also increased the dossage from 3mg/k to 5mg/k. 2 weeks after the infusion, she was still hurting and it looks like her body is building antibodies against the Remicade. Also, 3-4 months ago, she started getting rashes the size of a quarter on her back, behind the ears and now on the side of her face and chest. they said it was drug induced LUPUS and that all the other autoimmune drugs would cause the same rash. We have found that it's being caused my the Remicade and theres only like 8 cases of this reported and when its reported, they report it in dermatology reports not rheumtology reports. Now its back to the drawing boards because shes on increased amount of methotrexate, folic acid, and steriods - prendisone (20mg per day) If anyone has any ideas or thoughts, please let me know..i dont want her to take the 20mg of prendisone beacuse of the long term effects. Also, any ideas on other treatments would help. I've heard a lot about the food book, but cant get my wife to belive in it because she never hurts after eating any particular food. Any other alternative treatments..acupuncture..etc. Thanks Quote Link to comment Share on other sites More sharing options...
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