Guest guest Posted February 2, 2002 Report Share Posted February 2, 2002 We put EMLA cream on the spot (Doesn't need a lot - try it on your own skin to see!) at bed time and administer the shot about an hour after he goes to sleep. He doesn't budge. >Kutapressin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2002 Report Share Posted June 12, 2002 Couldn't be without it, my daughter and i. helps keep her well and brought me out of very chronic illness Tina M. Hendrix Cure2000@... Vice-President, California Coalition Neuro-Immune Dysfunction Syndromes Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2002 Report Share Posted June 17, 2002 Thanks so much! McCain 2020 Gallante Dr. Carrollton, TX 75007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2002 Report Share Posted June 17, 2002 Sorry, that last post was meant to be sent privately. I'm tired! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2002 Report Share Posted June 18, 2002 Hi , I thought I could answer a little of your question even though it wasn't addressed to me. We are also giving Kutapressin injections to my 3 yr.old son. We thought long and hard before we actually decided to follow Dr. G's advice and try Kutapressin. He's been getting them for about 6 wks. now. He started out with an injection every night before bed. After 30 days, it became every other night, which is what we're doing now. It was horrible when we first started. We had a friend, who's a nurse teach me how to give the injection (my husband is too chicken to try), and I was very nervous at first, because not only do you not want to hurt your child with a needle, you also have to feel very comfortable that you are doing the right thing. My son cries when he gets the shot, but usually only for a couple of seconds. I think he is more afraid of the anticipation once he sees the needle, than that it actually hurts. So far, I see more relatedness with my son and better eye contact, which is also noted by other people who work with him. I haven't seen anything major yet, but we're hoping for more, so we keep going. Good luck to you. KathyP Re: KUTAPRESSIN what was it like giving injections? Did you see a difference right away? That is probubly the next step fo rus and my husband does not want to do it. Just thought you could elaborate on it.... --- cwither43@... wrote: > Kutapressin was the best medication my son ever > took. We still think it was > the reason he recovered. > > > ===== Bell __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2002 Report Share Posted June 18, 2002 It was creepy at first. But within 5 days my son (8 yrs) was sitting still and letting us stick him. It was a great relief when we no longer had to hold him down. claims they do not hurt, but he still wants the control of telling me when he is ready, and at first he did not want anyone else to witness him getting his shot. It took only 4 or 5 days to get accustomed to the ritual of filling the syringe- making sure not to miss any steps. I get the most freaked out when I hit a vein (it has happened twice)- it just unnerves me. We do not go into the butt, but the thigh since the nurse who trained us said she preferred the thigh muscle to the hip, but I think it is a personal preference. We do not use the Emla cream, as we found was allergic to it. We've only been at it for 30 days, but we have seen small changes. Kutapressin is reported to be very safe. The biggest problem has been having " attached at the hip " since I am the only one who gives his shots (no leaving him at Grandma's for a week or so). If Dr. G is recommending it, I would say it is worth the try. Sincerely, Bell wrote: > what was it like giving injections? Did you see a > difference right away? > That is probubly the next step fo rus and my husband > does not want to do it. > Just thought you could elaborate on it.... > > > > ===== > Bell > > __________________________________________________ > > <> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2002 Report Share Posted June 18, 2002 The injections are much harder for the parent than the child. My son had no problems with it-we gave it in his thigh and switched thighs each time. It took about 2-3 months to notice any changes. This is definitely worth trying-best thing we ever did Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2002 Report Share Posted June 19, 2002 regarding the slight pain of the injection, has anyone tried emyla (sp?) cream? it will numb the area. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2002 Report Share Posted June 25, 2002 The Koegels have a web site. I'm sure you can get it by doing a search for them. They are at Univ. of California at santa Barbara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2002 Report Share Posted June 25, 2002 thank you so much!!! Re: KUTAPRESSIN We did ABA for about 1 year, about 30 hours a week, and were never really happy with it (I don't want to get into an ABA debate again). We then used floor time, as well as the approach used by the Koegel's in Santa Barbara. We stayed with that for 1 1/2 to 2 years. We had much better success with those therapies because we explored the emotional and interactive side of our son, which taught him skills he could then use to learn on his own, which he began to do. That is what the Koegel's teach. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2002 Report Share Posted June 25, 2002 Dr Lynn Koegel, Autism Research Center Graduate School of Education University of California Santa Barbara, CA, 93106-9490 ph: 1 805 893 3825/893 2176 e'mail: lynnk@... you can also try Symon, on of the post graduate clinicians on 1 805 893 2049 e'mail: jsymon@... The centre runs a parent/caregiver week long workshop with you and your child to demonstrate and show you how to implement their techniques. We brought our son over and did it - it is very good and a lot of fun too! They have a number of papers and books published. Look into it regards, Re: KUTAPRESSIN How do I get in touch with the Koegel's? Can you tell me more about their approach? My son gets floortime, which has been excellent, but I'd like to explore additional therapies. Thanks! Donna Re: KUTAPRESSIN We did ABA for about 1 year, about 30 hours a week, and were never really happy with it (I don't want to get into an ABA debate again). We then used floor time, as well as the approach used by the Koegel's in Santa Barbara. We stayed with that for 1 1/2 to 2 years. We had much better success with those therapies because we explored the emotional and interactive side of our son, which taught him skills he could then use to learn on his own, which he began to do. That is what the Koegel's teach. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2002 Report Share Posted June 28, 2002 2-3 months charles Quote Link to comment Share on other sites More sharing options...
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