Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 Does the fact that no one responded actually to the question in my last email regarding immunovir or ampligen mean the answer is " no " ? I had asked if Goldberg ever recommended or prescribed these as immune modulators. Trina, mom to four boys: Landon(8yr, autism), Chandler (7yr), Holden (3yr), Keller (1yr, expressive language delay) _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 Trina, I'm not sure why no one responded, but I'll respond the best I can. I haven't heard of Dr. G using or prescribing immunovir. The last I heard on ampligen, it's still in trials so is not available for prescribing. I was hearing some mixed results so there may be a certain subgroup who will benefit from it. I haven't really followed immunovir so really can't comment on it. Maybe someone else will know more and can respond better. Cheryl >From: " Trina Montgomery " <boymom_4@...> >Reply- > >Subject: new immune modulators >Date: Sun, 02 Jun 2002 20:53:57 -0500 > >Does the fact that no one responded actually to the question in my last >email regarding immunovir or ampligen mean the answer is " no " ? I had asked >if Goldberg ever recommended or prescribed these as immune modulators. > >Trina, mom to four boys: Landon(8yr, autism), Chandler (7yr), Holden (3yr), >Keller (1yr, expressive language delay) > >_________________________________________________________________ >Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. > > > >Responsibility for the content of this message lies strictly with >the original author, and is not necessarily endorsed by or the >opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 Trina, Those medications are currently available and are FDA approved. If these medications were going to help all patients, and I am using the diagnosis in reference to all patients with autism/PDD, ADD, ADHD, Chronic Fatigue Syndrome (CFS), Fibromyalgia, MS,etc.. etc.. etc.. The list goes on and on. We are faced with a very serious epidemic and will be losing many people if we do not get the NEW, improved immune modulators into existence. Unfortunately, Dr. Goldberg has not received 1 cent for his efforts of 17 years + of research, practicing, and corre- sponding with top-notch physicians and disease specialists around the world. If the immune modulators you mentioned were going to expedite recovery, Dr. Goldberg would be using them. Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 Hi Trina, I did not respond because I don't know. We are currently using Kutapressin. You could go to the " Ask Dr. Goldberg " on the conference section of his website and see what is there and/or post your own query. Trina Montgomery wrote: > Does the fact that no one responded actually to the question in my last > email regarding immunovir or ampligen mean the answer is " no " ? I had > asked > if Goldberg ever recommended or prescribed these as immune modulators. > > Trina, mom to four boys: Landon(8yr, autism), Chandler (7yr), Holden > (3yr), > Keller (1yr, expressive language delay) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 Possibly no one knows the answer. >From: " Trina Montgomery " <boymom_4@...> >Reply- > >Subject: new immune modulators >Date: Sun, 02 Jun 2002 20:53:57 -0500 > >Does the fact that no one responded actually to the question in my last >email regarding immunovir or ampligen mean the answer is " no " ? I had asked >if Goldberg ever recommended or prescribed these as immune modulators. > >Trina, mom to four boys: Landon(8yr, autism), Chandler (7yr), Holden (3yr), >Keller (1yr, expressive language delay) > >_________________________________________________________________ >Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. > > > >Responsibility for the content of this message lies strictly with >the original author, and is not necessarily endorsed by or the >opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 Michele, This is some of the most recent info posted on co-cure concerning Ampligen. The company was hoping to get approval in the near future. Did they finally get the FDA's approval? That could be helpful for some but IMHO the immune modulators will surpass anything else available now or in the near future. (I know I'm extremely biased, LOL) Cheryl Feb. 2002 Non-conventional Antiviral Agents Several preparations of various types have been assessed for their ability to suppress the replication of HHV-6 in cell culture. The potential for these agents to be used in the clinical setting remains unclear, and little or nothing is known concerning their pharmokinetics or the plasma levels they can achieve. One of these is Ampligen, approved for use in Canada and Belgium, but not in the U.S. The Ampligen web site states that results of trials in the U.S. and Belgium " suggest that Ampligen may be an effective treatment for a certain subset of Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) patients, namely those with severe debilitation. " The structure of this drug is similar to a known interferon inducer and this strongly suggests that any suppressive effect Ampligen may have on HHV-6 replication is mediated by interferon. Ampligen is a synthetic, mismatched, double-stranded RNA, and a single report of its ability to inhibit HHV-6 replication has been published. Recent reports from some patients are conflicting, and the value of Ampligen in the treatment of CFS remains to be determined. http://listserv.nodak.edu/scripts/wa.exe?A2=ind0205D & L=co-cure & P=R92 (My comment-This is what the company said in an interview 6 or 7 months ago) I've copied just a few paragraphs from it Eleven years after beginning the development of Ampligen and its family of RNA therapies, including a series of oral treatments called Oragens, HEB holds one of the largest patent portfolios in history and has reached the brink of commercialization. FDA has granted Ampligen orphan drug status, and it is in clinical trials throughout North America, Europe, Australia, New Zealand, and South Africa. Its therapeutic targets include cancer, hepatitis, HIV, and chronic fatigue syndrome (CFS). Also known as myalgic encephalomyelitis (ME) in Europe, CFS had been surrounded by a storm of controversy and social stigma. SNIP>>>>>> Patients are already clamoring to be accepted into one of its cost-recovery programs in which treatment is sold on a case-by-case basis -before official approval and without re-imbursement- to its clinical trial participants. SNIP>>>>>>> PE: When is Ampligen expected to hit the market ? : We are winding down our phase III tests now. We've announced a near-full enrollment of our study, we're on the cusp of doing data analysis, and we're in discussions with regulatory agencies worldwide. So it's certainly not years away. I can't comment on whether it might be this year or early next year. Right now, we think it will be marketed for CFS first, but we might be surprised, because regulatory agencies worldwide have shown an unusual ability to fast track new AIDS drugs, especially when there's a major problem. It looks like 60-80 percent of people with HIV are resistant to the available drugs, so they need something now. We are in discussions with the FDA about obtaining fast-track status for CFS and AIDS. http://listserv.nodak.edu/scripts/wa.exe?A2=ind0111A & L=co-cure & P=R232 >From: isoaa@... >Reply- > >Subject: Re: new immune modulators >Date: Mon, 3 Jun 2002 12:19:11 EDT > > >Trina, > >Those medications are currently available and >are FDA approved. If these medications were >going to help all patients, and I am using >the diagnosis in reference to all patients >with autism/PDD, ADD, ADHD, Chronic Fatigue >Syndrome (CFS), Fibromyalgia, MS,etc.. etc.. >etc.. The list goes on and on. We are faced >with a very serious epidemic and will be losing >many people if we do not get the NEW, improved >immune modulators into existence. Unfortunately, >Dr. Goldberg has not received 1 cent for his efforts >of 17 years + of research, practicing, and corre- >sponding with top-notch physicians and disease >specialists around the world. If the immune >modulators you mentioned were going to expedite >recovery, Dr. Goldberg would be using them. > >Michele > _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Hi Trina, Sorry for ther delayed reply. Don't know the answer to this but am forwarding to Dr. G. also, the Tues nite chat (accessable from his website www.neuroimmunedr.com) is a good place to ask that. > Does the fact that no one responded actually to the question in my last > email regarding immunovir or ampligen mean the answer is " no " ? I had asked > > if Goldberg ever recommended or prescribed these as immune modulators. > > Trina, mom to four boys: Landon(8yr, autism), Chandler (7yr), Holden (3yr), > > Keller (1yr, expressive language delay) > > Tina M. Hendrix Cure2000@... Vice-President, California Coalition Neuro-Immune Dysfunction Syndromes Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS, etc. Quote Link to comment Share on other sites More sharing options...
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