Re: Immunovir (Inosine), Ampligen?

[Guest guest]

Hello Trina

very intertested in your story as i am seeing Dr G for

the first time next month and feel very disulutioned

now thinking it wont work.

was your sons bloodwork normal or abnormal.

I am now very worried as i will be travelling from the

UK.

please answer or if any one else has positive stories

to tell?

Rifat

--- Trina Montgomery <boymom_4@...> wrote: >

Hey everyone,

>

> Has Dr. Goldberg been prescribing either Immunovir

> or Ampligen as immune

> modulators recently? My son, Landon, is a former

> patient of his, but after

> four years of not making much progress (he referred

> to him as one of the

> difficult ones), we decided to try some other

> things. However, I never want

> to close the door to Goldberg, as I respect and

> admire him, and he kept

> promising that the new immunemodulators would be

> approved soon. Has that

> happened yet?

>

> Trina, mom to four boys: Landon(8yr, autism),

> Chandler (7yr), Holden (3yr),

> Keller (1yr, expressive language delay)

>

>

_________________________________________________________________

> Join the world’s largest e-mail service with MSN

> Hotmail.

> http://www.hotmail.com

>

>

>

[Guest guest]

Rifat,

Don't get despondent before you get there - the long wait often causes

doubts - especially as you look at everything going on around you and what

other people do. People do move on for a variety of reasons - this is a very

difficult and often very tricky process right now using currently available

medicines, and made even more tricky because every child is different. Dr

Goldberg's blood work-up is the most comprehensive, and what might not seem

too off range at first, will later become more apparent with subsequent

bloodwork - it changes and reveals a healthier system as time goes on -

allergy levels should drop, titres for viruses reduce and even go to

negative - my son's autoimmune result (ANA) tested negative only 2 weeks

ago - this is great news - even the local Pathologist at our lab here caught

this as well - I rang to double check the result! The Neurospect is so

important, and in my son's case revealed why in some patients it can be more

tricky - under perfusion and over perfusion in some areas - very careful

adjustment of SSRI's and others meds like Wellbutrin needed. The

rehabilitative education needed is also vital, and his needs change as he

gets healthier, and changes. We as parents are continually learning - trying

to keep ahead of our son. He is currently achieving new heights in attention

and focus, sociability, cheekiness, and just being a 6 yo!

I'm glad Trina has re-contacted the group - for all of us with kids, no

matter what route we ultimately follow, the exchange and sharing of what we

are pioneering here is the most important,

Hang in there- you've waited months and months - only one to go!

All the best and good luck on that trip!

Re: Immunovir (Inosine), Ampligen?

Hello Trina

very intertested in your story as i am seeing Dr G for

the first time next month and feel very disulutioned

now thinking it wont work.

was your sons bloodwork normal or abnormal.

I am now very worried as i will be travelling from the

UK.

please answer or if any one else has positive stories

to tell?

Rifat

--- Trina Montgomery <boymom_4@...> wrote: >

Hey everyone,

>

> Has Dr. Goldberg been prescribing either Immunovir

> or Ampligen as immune

> modulators recently? My son, Landon, is a former

> patient of his, but after

> four years of not making much progress (he referred

> to him as one of the

> difficult ones), we decided to try some other

> things. However, I never want

> to close the door to Goldberg, as I respect and

> admire him, and he kept

> promising that the new immunemodulators would be

> approved soon. Has that

> happened yet?

>

> Trina, mom to four boys: Landon(8yr, autism),

> Chandler (7yr), Holden (3yr),

> Keller (1yr, expressive language delay)

>

>

_________________________________________________________________

> Join the world’s largest e-mail service with MSN

> Hotmail.

> http://www.hotmail.com

>

>

>

[Guest guest]

Ri,

While I can't put things nearly as eloquently as has I can tell you

that the vast majority of Dr. G's practice have made huge gains.

I'm very much a " glass half empty " kind of person, and even though I have

dozens of " success stories " on file and have met some of these wonderful

kids in person and seen for myself how well they are doing, I still get

bummed by stories of children who have not done well with the protocol.But I

have to remind myself those stories are few and far between and that there

are always some people with illnesses who do not repond to treatment. In

Trina's sons case it may be that he is one of the ones who needs more

effective immune modulators that are not yet available to our children. That

is why it so important for us all to continue to promote for greater

awareness and to raise the funds desperately needed to get these improved

immune modulators into trials.

PS Trina, I believe I once asked Dr. G about Ampligen in the " ask Dr. G

section " , I can't remember his reponse. I'll look it up and get back to you.

Re: Immunovir (Inosine), Ampligen?

>

>

> Hello Trina

>

> very intertested in your story as i am seeing Dr G for

> the first time next month and feel very disulutioned

> now thinking it wont work.

>

> was your sons bloodwork normal or abnormal.

>

> I am now very worried as i will be travelling from the

> UK.

>

> please answer or if any one else has positive stories

> to tell?

>

> Rifat

>

>

> --- Trina Montgomery <boymom_4@...> wrote: >

> Hey everyone,

> >

> > Has Dr. Goldberg been prescribing either Immunovir

> > or Ampligen as immune

> > modulators recently? My son, Landon, is a former

> > patient of his, but after

> > four years of not making much progress (he referred

> > to him as one of the

> > difficult ones), we decided to try some other

> > things. However, I never want

> > to close the door to Goldberg, as I respect and

> > admire him, and he kept

> > promising that the new immunemodulators would be

> > approved soon. Has that

> > happened yet?

> >

> > Trina, mom to four boys: Landon(8yr, autism),

> > Chandler (7yr), Holden (3yr),

> > Keller (1yr, expressive language delay)

> >

> >

> _________________________________________________________________

> > Join the world's largest e-mail service with MSN

> > Hotmail.

> > http://www.hotmail.com

> >

> >

> >

[Guest guest]

> Rifat,

Please don't cancel your appointment. it is rare that his patients don't

make significant progress!

tina

>

>

>

Tina M. Hendrix

Cure2000@...

Vice-President, California Coalition

Neuro-Immune Dysfunction Syndromes

Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS,

etc.