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Hi all. I hope you are doing well at the start of this week. Quick

question... I've been on methotrexate for over a year and added

plaquenil about 4 months ago. So far, good results so I have little

to complain about but I was wondering if anyone has periods of

extreme fatigue that you can't really connect with a flare up? The

past two weeks have been horrible as far as energy level and I guess

I'm looking for a reason beyond maybe just being lazy. My schedule

hasn't changed except for maybe getting a little less hectic so it's

a little frustrating to only want to sleep. Ideas?

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It seems to me the longer I have R.A. the more fatigued i am getting.

Cheers,

ette

At 18:56 19/04/04, you wrote:

>Hi all. I hope you are doing well at the start of this week. Quick

>question... I've been on methotrexate for over a year and added

>plaquenil about 4 months ago. So far, good results so I have little

>to complain about but I was wondering if anyone has periods of

>extreme fatigue that you can't really connect with a flare up? The

>past two weeks have been horrible as far as energy level and I guess

>I'm looking for a reason beyond maybe just being lazy. My schedule

>hasn't changed except for maybe getting a little less hectic so it's

>a little frustrating to only want to sleep. Ideas?

>

>

>

>

>

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It's just a guess but the body adjusts to a hectic schedule by some changes such as more adrenaline production or something else. When the schedule lets up, the body goes back to a "normal" mode and it takes a while to adjust to the differences, Also the body needs time to make up for the things it put off while adjusting for the hectic schedule. It might be similar (to a lesser degree) to post-traumatic stress syndrome. That's just my theory. God bless.

----- Original Message -----

From: Matthies

Rheumatoid Arthritis

Sent: Sunday, April 18, 2004 11:56 PM

Subject: fatigue

Hi all. I hope you are doing well at the start of this week. Quick question... I've been on methotrexate for over a year and added plaquenil about 4 months ago. So far, good results so I have little to complain about but I was wondering if anyone has periods of extreme fatigue that you can't really connect with a flare up? The past two weeks have been horrible as far as energy level and I guess I'm looking for a reason beyond maybe just being lazy. My schedule hasn't changed except for maybe getting a little less hectic so it's a little frustrating to only want to sleep. Ideas?

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Hi ,

I think for me that the fatigue is the most frustrating part of

dealing with RA. It isn't always attached to a flare, although it

can cause one. I had always been active and energetic prior to RA,

and accepting the fact that I need to rest more is tough.

I work full time and end up napping most weekends (if I nap after

work I can't sleep at night). Lately I've been fighting a flare,

and came to the realization that while increased prednisone may

help, what I really need to do is make some changes to my schedule

(I've been working 9 - 10 1/2 hour days regularly for the past 4 1/2

months). I now have a laptop from work and can access our corporate

network from home, so I've taken to going home mid-day at times,

taking a nap, and then working from home! I'm really fortunate to

have that flexibility and a manager who accepts the need for me to

do it. (Of course, I've told him the alternative is for me to be

out on partial or complete disability, and he doesn't want that to

happen.)

The bottom line is - listen to your body. Even if what it is

telling you doesn't make sense, or isn't what you want to hear, you

are better off following the messages it gives.

Beth

> Hi all. I hope you are doing well at the start of this week.

Quick

> question... I've been on methotrexate for over a year and added

> plaquenil about 4 months ago. So far, good results so I have

little

> to complain about but I was wondering if anyone has periods of

> extreme fatigue that you can't really connect with a flare up?

The

> past two weeks have been horrible as far as energy level and I

guess

> I'm looking for a reason beyond maybe just being lazy. My

schedule

> hasn't changed except for maybe getting a little less hectic so

it's

> a little frustrating to only want to sleep. Ideas?

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Hi ,

I agree with Beth. Sometimes I am ridiculously tired for no

apparent reason. Oftentimes I sleep 9-10 hours a night if

possible. Its just part of the disease. I have found that when I

need to rest, I slow everything down that I possibly can. Its just

not worth the pain that comes with pushing too much. Like Beth

too, I have found that if I push myself too much I'll flare also. Its

frustrating, but a sign that you need to slow down and let the

body recuperate. I also eat super healthy when I get tired, cut out

sugar and most empty carbs - I find it makes me feel better. And

believe it or not, I have found that light activity makes me feel

better sometimes too. Even if its just a short walk or a light

swim (feels the best when the joints ache).

Just some ideas...

blessings,

Daisy

> > Hi all. I hope you are doing well at the start of this week.

> Quick

> > question... I've been on methotrexate for over a year and

added

> > plaquenil about 4 months ago. So far, good results so I have

> little

> > to complain about but I was wondering if anyone has periods

of

> > extreme fatigue that you can't really connect with a flare up?

> The

> > past two weeks have been horrible as far as energy level

and I

> guess

> > I'm looking for a reason beyond maybe just being lazy. My

> schedule

> > hasn't changed except for maybe getting a little less hectic

so

> it's

> > a little frustrating to only want to sleep. Ideas?

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,

I have RA OA and Fibro. I have never heard dermagraphia.

Toni

In a message dated 4/20/04 2:49:52 PM Central Daylight Time, Rheumatoid Arthritis writes:

Date: Mon, 19 Apr 2004 20:56:31 -0000

From: "cindyluke0367" <emptynest@...>

Subject: Re: fatigue

Me too. Though I have not been on the MTX as long as some (1 month)

I am so happy to be able to walk again. I get very tired, but I

think I am jumping out doing too much too fast. From the tortoise to

the hare.

Should I be afraid of the sun? What will it do? Does anyone have

dermagraphia? Fibromyalgia with the RA?

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I'm sorry, I spelled it wrong. It is dermatographia.

> ,

>

> I have RA OA and Fibro. I have never heard dermagraphia.

>

> Toni

>

>

>

> In a message dated 4/20/04 2:49:52 PM Central Daylight Time,

> Rheumatoid Arthritis writes:

>

> > Date: Mon, 19 Apr 2004 20:56:31 -0000

> > From: " cindyluke0367 " <emptynest@s...>

> > Subject: Re: fatigue

> >

> > Me too. Though I have not been on the MTX as long as some (1

month)

> > I am so happy to be able to walk again. I get very tired, but I

> > think I am jumping out doing too much too fast. From the

tortoise to

> > the hare.

> >

> > Should I be afraid of the sun? What will it do? Does anyone have

> > dermagraphia? Fibromyalgia with the RA?

> >

> >

> >

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