Guest guest Posted April 17, 2002 Report Share Posted April 17, 2002 hello! (history: 6 yr old son has been a patient of Dr G's for 3 yrs) I received some interesting information lately - thought I would share the misery of my analysis of the information and see if anyone out there might have addtl material on the matter. I do plan to speak with Dr G during our next telephone consult on this. I spoke with a 15 yr old with Aspergers the other weekend. Very nice young man - he told me something interesting that I can't seem to get out of my head. He told me " I'm starting to feel my fingers " . I didn't get a chance to query him more on this statement at the time but I do plan to corner him in the future ) ) When my husband had GBS 6 yrs ago, hands and feet were the first things to go numb because they belong to the extremities. It took almost a year for the thumb to 'come online'; his fingers and toes are fine now but they do 'talk to him' every now and then. He finds it uncomfortable to write (would rather type instead) but tolerates it if the pen is 'thick with a grip'. My son has been having problems with handwriting and is very 'sensory' driven when it comes to his hands and feet (flips pages of books; crushes up leaves; lets sand fall out of his hand; can walk on rocks without saying ouch ....) He had his first visit with a sensory therapist over the weekend and is 'starving' for sensory input. She said he's doing all the things above to try and get the message to his brain... He had a very good session with her... much less 'stimmy' for the day. But I thought - how much of his hands and feet can feel? I realize all of this is related to myelin and the nervous system. Steve's GBS caused the myelin to strip; 's is autism caused by a neurological immune dysfunction. My question is (after all of this) - can the protocol help this sensory issue? or will the mere fact of calming down the immune system and allowing the body to catch up be enough? We can't do a nerve conduction test on a 6 yr old. protocol did get rid of 's hearing sensitivity. Thanks! doris land Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2002 Report Share Posted April 18, 2002 Steve and Doris <sjsmith@e...> wrote: > hello! > (history: 6 yr old son has been a patient of Dr G's for 3 yrs) > > I received some interesting information lately - thought I would > share the misery of my analysis of the information and see > if anyone out there might have addtl material on the matter. > I do plan to speak with Dr G during our next telephone consult on this. > > I spoke with a 15 yr old with Aspergers the other weekend. > Very nice young man - he told me something interesting that I can't seem to get > out of my head. He told me " I'm starting to feel my fingers " . > I didn't get a chance to query him more on this statement at the time > but I do plan to corner him in the future ) ) > > When my husband had GBS 6 yrs ago, hands and feet were the first things > to go numb because they belong to the extremities. It took almost a year > for the thumb to 'come online'; his fingers and toes are fine now but they > do 'talk to him' every now and then. > He finds it uncomfortable to write (would rather type instead) but tolerates it > if the pen is 'thick with a grip'. > > My son has been having problems with handwriting and is very 'sensory' driven > when it comes to his hands and feet (flips pages of books; crushes up leaves; > lets sand fall out of his hand; can walk on rocks without saying ouch ....) > He had his first visit with a sensory therapist over the weekend and is 'starving' > for sensory input. She said he's doing all the things above to try and get the message > to his brain... He had a very good session with her... > much less 'stimmy' for the day. > But I thought - how much of his hands and feet can feel? > > I realize all of this is related to myelin and the nervous system. Steve's GBS caused the myelin > to strip; 's is autism caused by a neurological immune dysfunction. > > My question is (after all of this) - can the protocol help this sensory issue? > or will the mere fact of calming down the immune system and allowing the body > to catch up be enough? We have not been to Dr. G yet (still waiting for an appointment!) but I have an almost 3 year old son with Sensory Integration Disorder. His issues are mostly hypersensitive. It sounds like your son might be a bit hyposensitive when it comes to tactile stimuli. Have you considered talking to an occupational therapist? Quote Link to comment Share on other sites More sharing options...
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