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hello!

(history: 6 yr old son has been a patient of Dr G's for 3 yrs)

I received some interesting information lately - thought I would

share the misery of my analysis of the information and see

if anyone out there might have addtl material on the matter.

I do plan to speak with Dr G during our next telephone consult on this.

I spoke with a 15 yr old with Aspergers the other weekend.

Very nice young man - he told me something interesting that I can't seem to get

out of my head. He told me " I'm starting to feel my fingers " .

I didn't get a chance to query him more on this statement at the time

but I do plan to corner him in the future :o) :o)

When my husband had GBS 6 yrs ago, hands and feet were the first things

to go numb because they belong to the extremities. It took almost a year

for the thumb to 'come online'; his fingers and toes are fine now but they

do 'talk to him' every now and then.

He finds it uncomfortable to write (would rather type instead) but tolerates it

if the pen is 'thick with a grip'.

My son has been having problems with handwriting and is very 'sensory'

driven

when it comes to his hands and feet (flips pages of books; crushes up leaves;

lets sand fall out of his hand; can walk on rocks without saying ouch ....)

He had his first visit with a sensory therapist over the weekend and is

'starving'

for sensory input. She said he's doing all the things above to try and get the

message

to his brain... He had a very good session with her...

much less 'stimmy' for the day.

But I thought - how much of his hands and feet can feel?

I realize all of this is related to myelin and the nervous system. Steve's GBS

caused the myelin

to strip; 's is autism caused by a neurological immune dysfunction.

My question is (after all of this) - can the protocol help this sensory

issue?

or will the mere fact of calming down the immune system and allowing the body

to catch up be enough?

We can't do a nerve conduction test on a 6 yr old.

protocol did get rid of 's hearing sensitivity.

Thanks!

doris

land

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Steve and Doris <sjsmith@e...> wrote:

> hello!

> (history: 6 yr old son has been a patient of Dr G's for 3 yrs)

>

> I received some interesting information lately - thought I would

> share the misery of my analysis of the information and see

> if anyone out there might have addtl material on the matter.

> I do plan to speak with Dr G during our next telephone consult on

this.

>

> I spoke with a 15 yr old with Aspergers the other weekend.

> Very nice young man - he told me something interesting that I can't

seem to get

> out of my head. He told me " I'm starting to feel my fingers " .

> I didn't get a chance to query him more on this statement at the

time

> but I do plan to corner him in the future :o) :o)

>

> When my husband had GBS 6 yrs ago, hands and feet were the first

things

> to go numb because they belong to the extremities. It took almost

a year

> for the thumb to 'come online'; his fingers and toes are fine now

but they

> do 'talk to him' every now and then.

> He finds it uncomfortable to write (would rather type instead) but

tolerates it

> if the pen is 'thick with a grip'.

>

> My son has been having problems with handwriting and is

very 'sensory' driven

> when it comes to his hands and feet (flips pages of books; crushes

up leaves;

> lets sand fall out of his hand; can walk on rocks without saying

ouch ....)

> He had his first visit with a sensory therapist over the weekend

and is 'starving'

> for sensory input. She said he's doing all the things above to try

and get the message

> to his brain... He had a very good session with her...

> much less 'stimmy' for the day.

> But I thought - how much of his hands and feet can feel?

>

> I realize all of this is related to myelin and the nervous system.

Steve's GBS caused the myelin

> to strip; 's is autism caused by a neurological immune

dysfunction.

>

> My question is (after all of this) - can the protocol help

this sensory issue?

> or will the mere fact of calming down the immune system and

allowing the body

> to catch up be enough?

We have not been to Dr. G yet (still waiting for an appointment!) but

I have an almost 3 year old son with Sensory Integration Disorder.

His issues are mostly hypersensitive. It sounds like your son might

be a bit hyposensitive when it comes to tactile stimuli. Have you

considered talking to an occupational therapist?

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