Guest guest Posted April 20, 2000 Report Share Posted April 20, 2000 In a message dated 4/20/00 4:06:12 AM Central Daylight Time, bunnykinsfan@... writes: << Thanks again Romie, I Thought Before all this,How awful your Lupus sounded,and that was How I could Mention it to my GP,So! It Just goes to show--You Helped me even though you didn't know about it--I had read that Lupus could be the Primary illness for A Secondary Raynauds,and Noting what you had wrote Gave me some info to Fire at My Doctor! Thanks again Love Janet >> JANET I WILL MEET WITH MY LUPUS GROUP ON FRIDAY . I WILL ASK IF ANYONE HAS BEEN DX WITH SCLERODERMA TOO I KNOW A FEW HAVE RAYNAUDS DX ALONG WITH LUPUS ,, I JUST FIND IT SO STRANGE HOW TWO ILLNESS COULD BE SO SIMILAR BUT I HAVE BEEN TOLD THAT ALL AUTO IMMUNE SYSTEM DISEASE MIMIC EACH OTHER I HOPE I CAN BE OF SOME HELP ROMIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2000 Report Share Posted April 20, 2000 Romie, Thanks so Much for the link and words of comfort. i will go and check out those sites too--they may be differant to ones I looked at. Like I posted before-I am Not going to dwell on this and will await The Specialists Opinion .. I have found,from one link,where someone was diagnosed after going on the Atkins diet,that Protein And espescially animal Proteins aggrivate the illness(I don't like the word Disease! ) and Luckily,the Only Beef I Eat is when I do Bolognaise or Chilli,so That is A good thing,as we Don't eat It Often. another Site hi-lighted that Too---so! I will avoid That. At the Moment they are trialing Gynko-Something over here-but that is for The Raynauds,but I am sure if I delve deep enough,I may Find more Alternative Treatments for This too.. Thanks again Romie, I Thought Before all this,How awful your Lupus sounded,and that was How I could Mention it to my GP,So! It Just goes to show--You Helped me even though you didn't know about it--I had read that Lupus could be the Primary illness for A Secondary Raynauds,and Noting what you had wrote Gave me some info to Fire at My Doctor! Thanks again Love Janet In tae-bo_onegroups, FrchyFrey@a... wrote: > In a message dated 4/19/00 9:44:12 AM Central Daylight Time, > bunnykinsfan@d... writes: > > << said I had The 1st Stages of Scleroderma > I said-I am Going to get Red and Scabby? > I am sorry if Anyone has This-But I have only Ever seem Old People > with skin like this-and seen Photos on the web > He Couldn't tell me-How This May affect me,When it will flare up! > what > I can do to Prevent it as He says there are only about 3,000 People > diagnosed with it in the UK And so it is Quite Rare. > I am So Angry everyone-I quit Smoking,Came off the Contraceptive > Pill-even Gave up The St s Wort so that I only took in Food and > water --and Every now and then I take a Course Of Vitamnins > My diet Is GREAT-Even if I do say So myself..AND I exercise and do > Tae-bo,I suppose If I didn't do all this It could be worse and I may > Have lost Some Fingers By Now!? I don't know- > I even Told the Doctor I Felt- " pissed off " about It! > He has NEVER Heard me swear before-and I don't know what He Thought > I know My Problem Is NOTHING Compared to s-But I feel so > Annoyed! > i keep getting all weepy,But Have only had a Good Cry over it > once,Because I keep thinking-Oh! well! This is what I have,I have > toMake The Most Of My Life Now-and Work WITH It! > I don't know! > Maybe I am Feeling sorry for Myself-I Know so little of this > condition. > Maybe If I can Find out More I will feel Better--Like--Is it because > I > Moisterise Morning and Night that My Face isn't like the DOCTOR > Thought it Would be--dry and Scaly and Inflamed? > Anyway! At least It explains why I have been so VERY Weary and easily > tired in the last 2 months..Apparantly That is a Sympton(I Found One > site That is the Raynauds and Scleroderma Society in the UK) > Ok! I will finish Now > If ANYONE Has any Info on this I Would REALLY Appriciate Them letting > me Know. > Sorry to moan on so Much-God! I am so Full of self pity Hey? > Or is that My Mother Talking? > Thanks all > Janet >> > > JANET I HOPE THIS WILL HELP HAVINF LUPUS I KNOW IT IS DIFFICULT TO HEAR AND > ACCEPT A DX ON AN ILLNESS SCLERDERMA SOUNDS ALOT LIKE DISCOID LUPUS TO MY > AMAZMENT I WOULD OF THOUGHT YOU WERE DECRIBING LUPUS .... IF THERE IS > ANYTHING I CAN HELP WITH OR A QUESTION I MIGHT BE ABLE TO ANSERW OR GET AN > ANSERW FOR YOU PLEASE DONT HESITATE TO ASK AND BY ALL MEAN ASK QUESTIONS ITS > THE ONLY WAY TO UNDERSTAND I KNOW I LEARN NEW THINGS ABOUT LUPUS EVERYTIME I > HAVE A FLARE UP SO IT IS NEVER THE SAME ILLNESS JUST KINDA EVOLVES... IF YOU > CAN BELIEVE THAT > I HOPE YOU ARE ABLE TO GET TO THE LINKS IF NOT LET ME KNOW AND I WILL COPY > AND SEND TO YOU > <A HREF= " http://homestead.com/Scleroderma/Scleroderma.html " >Scleroderma</ A> > <A HREF= " http://www.sclero.org/index.html " >Scleroderma from A to Z: Welcome</ > A> <A HREF= " http://www.healthlinkusa.com/273feat.htm " >Scleroderma; > Treatment, Prevention, Cure</A> <A HREF= " http://www.sdworld.org/ " >Scleroderma > World</A> <A HREF= " http://www.sclerodermasupport.com/ " >Surviving > Scleroderma - Home Page</A> <A > HREF= " http://www.angelfire.com/sys/popup_source.shtml?Category= " >scler od2</A> > > ROMIE > MY EMAIL ADDIE IS : FRCHYFREY@a... Quote Link to comment Share on other sites More sharing options...
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