Re: vs DAN protocol

July 23, 2002

Hi GCC.

I believe that I can answer this with some confidence since we are just

about to abandon our DAN doctor for Dr. G. The DAN protocol is aggressive

and alternative and deals mostly with the metabolism. Chelation, Secretin

and EPD (Enzyme Potentiated Desensitization - which is in a nut shell a very

drastic, controversial form of allergy shots) are part of the protocol and

encouraged very early in the treatment. A protocol that ALOT of parents

have done or are considering because we feel there are no alternatives and

desperately want to help our kids. Dr. Goldberg is against chelation and

secretin, I am not sure how he feels about EPD. He has stated that he

will not treat patients that have been chelated. When I approached our DAN

doctor about following Dr. G's protocol, which is based on the immune

system and not metabolism, he kind of laughed and said that it would take

too long to get the kids back. There is alot of information to digest and

sort through when we are trying to make the very best decisions for our

kids. It is a long, emotional journey to say the least! I can't stress

enough about researching and educating yourself so that you can advocate and

make the decisions that YOU know are right for your child. For us it wasn't

that difficult. Dr Goldberg practices traditional medicine and there is

ALOT of research to back it up. Nothing makes me feel scared or uneasy.

Most importantly for me, each child is treated individually depending on

their specific problems. is not about a mass treatment that is used

for each child regardless of their symptoms or problems. Fortunately, I

think that is where DAN lost us. We have yet to see Dr. Goldberg and start

his protocol, but as an educated mother, I can tell you that it already

feels right in my heart.

I wish you all the best in your own journey. I think that you are doing the

right thing by reaching out and asking questions. Good luck to you.

Lori

vs DAN protocol

Thank you so much to those who answered my e-mail on pediatricians in

Fairfax

Va (Washington DC Area) I found a Doctor in Virginia who follows the DAN

Protocol. I am not sure how receptive he will be with the protocol.

I

just find that describes my sons conditions so accurately, I wish

there

were more doctors following Dr Golberg's work. Does anyone know if there

are

conflicts between and the DAN protocol.

I have an appointment tomorrow any input would be great.

Thanks

GCC

July 23, 2002

Lori's note is very informative ... and correct.

One other area where DAN and DIDS differ is supplements. Our DAN

doctor put our son on Nuthera (a megadose vitamin supplement) and

fish oils.

Dr. Goldberg told us to stop both of those immediately. He said that

although many children may be defficient in some vitamins etc ... it

is dangerous to megadose because they can then back up in their

systems.

Our son's bloodwork showed sky-high levels for the things for which

he was taking supplements.

I know some parents who sware that Nuthera and Fish Oils have helped

their children tremendously. But when we took them away from our son,

we didn't notice any negative affect.

Hope this helps.

> Thank you so much to those who answered my e-mail on pediatricians

in Fairfax

> Va (Washington DC Area) I found a Doctor in Virginia who follows

the DAN

> Protocol. I am not sure how receptive he will be with the

protocol. I

> just find that describes my sons conditions so accurately, I

wish there

> were more doctors following Dr Golberg's work. Does anyone know if

there are

> conflicts between and the DAN protocol.

>

> I have an appointment tomorrow any input would be great.

>

> Thanks

>

> GCC

July 23, 2002

Hi,

Just wanted to add about cod liver oil.

Dr.G allowed us to keep it (though he does not like it much, that is true), but

be sure to use good brand and do not overdose with vit A. So, we use Kirkman lab

multivitamins without A and D and cod liver oil. Kirkman vitamins (regular ones,

not megadoses) are very good, they tastless, you can open the capsul and add to

food or drink.

Regina

kevbaby99 <dnaylor99@...> wrote:

Lori's note is very informative ... and correct.

One other area where DAN and DIDS differ is supplements. Our DAN

doctor put our son on Nuthera (a megadose vitamin supplement) and

fish oils.

Dr. Goldberg told us to stop both of those immediately. He said that

although many children may be defficient in some vitamins etc ... it

is dangerous to megadose because they can then back up in their

systems.

Our son's bloodwork showed sky-high levels for the things for which

he was taking supplements.

I know some parents who sware that Nuthera and Fish Oils have helped

their children tremendously. But when we took them away from our son,

we didn't notice any negative affect.

Hope this helps.

> Thank you so much to those who answered my e-mail on pediatricians

in Fairfax

> Va (Washington DC Area) I found a Doctor in Virginia who follows

the DAN

> Protocol. I am not sure how receptive he will be with the

protocol. I

> just find that describes my sons conditions so accurately, I

wish there

> were more doctors following Dr Golberg's work. Does anyone know if

there are

> conflicts between and the DAN protocol.

>

> I have an appointment tomorrow any input would be great.

>

> Thanks

>

> GCC

July 24, 2002

Hi Lori,

I wanted to comment on parts of your analysis of the DAN protocol -

at least among the families I know who see doctors who follow the

protocol. First, secretin is not used by anyone I know who follows

DAN (I am in Calif.). It was very highly espoused by Rimland for a

long time but to my knowledge is not anymore. It never lived up to

the hype, from what I can gather.

Chelation, while part of the DAN protocol, is not done early in the

treatment, in my experience. In many cases this is because their

doctor first wants to get the child's body healthy through diet and

supplementation. Many families I know don't practice chelation at

all. You are definitely right about this process taking a long time.

Take care,

vb

> Hi GCC.

>

> I believe that I can answer this with some confidence since we are

just

> about to abandon our DAN doctor for Dr. G. The DAN protocol is

aggressive

> and alternative and deals mostly with the metabolism. Chelation,

Secretin

> and EPD (Enzyme Potentiated Desensitization - which is in a nut

shell a very

> drastic, controversial form of allergy shots) are part of the

protocol and

> encouraged very early in the treatment. A protocol that ALOT of

parents

> have done or are considering because we feel there are no

alternatives and

> desperately want to help our kids. Dr. Goldberg is against

chelation and

> secretin, I am not sure how he feels about EPD. He has stated

that he

> will not treat patients that have been chelated. When I approached

our DAN

> doctor about following Dr. G's protocol, which is based on

the immune

> system and not metabolism, he kind of laughed and said that it

would take

> too long to get the kids back. There is alot of information to

digest and

> sort through when we are trying to make the very best decisions for

our

> kids. It is a long, emotional journey to say the least! I can't

stress

> enough about researching and educating yourself so that you can

advocate and

> make the decisions that YOU know are right for your child. For us

it wasn't

> that difficult. Dr Goldberg practices traditional medicine and

there is

> ALOT of research to back it up. Nothing makes me feel scared or

uneasy.

> Most importantly for me, each child is treated individually

depending on

> their specific problems. is not about a mass treatment that

is used

> for each child regardless of their symptoms or problems.

Fortunately, I

> think that is where DAN lost us. We have yet to see Dr. Goldberg

and start

> his protocol, but as an educated mother, I can tell you that it

already

> feels right in my heart.

>

> I wish you all the best in your own journey. I think that you are

doing the

> right thing by reaching out and asking questions. Good luck to you.

>

> Lori

July 24, 2002

Thanks vb for your input. Our DAN doctor, in Ontario showed me his

protocol, apparently from the Autism Research Institute and it clearly

indicates #11. Intravenous Secretin injections given between EPD

injections, when EPD should be started within 2 -2.5 months from first

visit. Chelation is 4th on the list, right after the Casein and Gluten

antibody test. It is the first treatment that they recommend, aside form

elimination of foods, and adding of supplements. Perhaps it depends on the

doctor, but that is the protocol and many I know are following it.

Lori

Re: vs DAN protocol

Hi Lori,

I wanted to comment on parts of your analysis of the DAN protocol -

at least among the families I know who see doctors who follow the

protocol. First, secretin is not used by anyone I know who follows

DAN (I am in Calif.). It was very highly espoused by Rimland for a

long time but to my knowledge is not anymore. It never lived up to

the hype, from what I can gather.

Chelation, while part of the DAN protocol, is not done early in the

treatment, in my experience. In many cases this is because their

doctor first wants to get the child's body healthy through diet and

supplementation. Many families I know don't practice chelation at

all. You are definitely right about this process taking a long time.

Take care,

vb

> Hi GCC.

>

> I believe that I can answer this with some confidence since we are

just

> about to abandon our DAN doctor for Dr. G. The DAN protocol is

aggressive

> and alternative and deals mostly with the metabolism. Chelation,

Secretin

> and EPD (Enzyme Potentiated Desensitization - which is in a nut

shell a very

> drastic, controversial form of allergy shots) are part of the

protocol and

> encouraged very early in the treatment. A protocol that ALOT of

parents

> have done or are considering because we feel there are no

alternatives and

> desperately want to help our kids. Dr. Goldberg is against

chelation and

> secretin, I am not sure how he feels about EPD. He has stated

that he

> will not treat patients that have been chelated. When I approached

our DAN

> doctor about following Dr. G's protocol, which is based on

the immune

> system and not metabolism, he kind of laughed and said that it

would take

> too long to get the kids back. There is alot of information to

digest and

> sort through when we are trying to make the very best decisions for

our

> kids. It is a long, emotional journey to say the least! I can't

stress

> enough about researching and educating yourself so that you can

advocate and

> make the decisions that YOU know are right for your child. For us

it wasn't

> that difficult. Dr Goldberg practices traditional medicine and

there is

> ALOT of research to back it up. Nothing makes me feel scared or

uneasy.

> Most importantly for me, each child is treated individually

depending on

> their specific problems. is not about a mass treatment that

is used

> for each child regardless of their symptoms or problems.

Fortunately, I

> think that is where DAN lost us. We have yet to see Dr. Goldberg

and start

> his protocol, but as an educated mother, I can tell you that it

already

> feels right in my heart.

>

> I wish you all the best in your own journey. I think that you are

doing the

> right thing by reaching out and asking questions. Good luck to you.

>

> Lori

July 24, 2002

Lori,

Were you at the workshop in Oakville last Saturday? I was there,

but I didn't see you.

Roxanne

*********************************

Lori wrote:

> Thanks vb for your input. Our DAN doctor, in Ontario showed me his

> protocol, apparently from the Autism Research Institute and it clearly

>

> indicates #11. Intravenous Secretin injections given between EPD

> injections, when EPD should be started within 2 -2.5 months from first

>

> visit. Chelation is 4th on the list, right after the Casein and

> Gluten

> antibody test. It is the first treatment that they recommend, aside

> form

> elimination of foods, and adding of supplements. Perhaps it depends on

> the

> doctor, but that is the protocol and many I know are following it.

>

> Lori

>

> Re: vs DAN protocol

>

> Hi Lori,

>

> I wanted to comment on parts of your analysis of the DAN protocol -

> at least among the families I know who see doctors who follow the

> protocol. First, secretin is not used by anyone I know who follows

> DAN (I am in Calif.). It was very highly espoused by Rimland for a

> long time but to my knowledge is not anymore. It never lived up to

> the hype, from what I can gather.

>

> Chelation, while part of the DAN protocol, is not done early in the

> treatment, in my experience. In many cases this is because their

> doctor first wants to get the child's body healthy through diet and

> supplementation. Many families I know don't practice chelation at

> all. You are definitely right about this process taking a long time.

>

> Take care,

> vb

>

> > Hi GCC.

> >

> > I believe that I can answer this with some confidence since we are

>

> just

> > about to abandon our DAN doctor for Dr. G. The DAN protocol is

> aggressive

> > and alternative and deals mostly with the metabolism. Chelation,

> Secretin

> > and EPD (Enzyme Potentiated Desensitization - which is in a nut

> shell a very

> > drastic, controversial form of allergy shots) are part of the

> protocol and

> > encouraged very early in the treatment. A protocol that ALOT of

> parents

> > have done or are considering because we feel there are no

> alternatives and

> > desperately want to help our kids. Dr. Goldberg is against

> chelation and

> > secretin, I am not sure how he feels about EPD. He has stated

> that he

> > will not treat patients that have been chelated. When I

> approached

> our DAN

> > doctor about following Dr. G's protocol, which is based on

> the immune

> > system and not metabolism, he kind of laughed and said that it

> would take

> > too long to get the kids back. There is alot of information to

> digest and

> > sort through when we are trying to make the very best decisions

> for

> our

> > kids. It is a long, emotional journey to say the least! I can't

> stress

> > enough about researching and educating yourself so that you can

> advocate and

> > make the decisions that YOU know are right for your child. For us

>

> it wasn't

> > that difficult. Dr Goldberg practices traditional medicine and

> there is

> > ALOT of research to back it up. Nothing makes me feel scared or

> uneasy.

> > Most importantly for me, each child is treated individually

> depending on

> > their specific problems. is not about a mass treatment that

> is used

> > for each child regardless of their symptoms or problems.

> Fortunately, I

> > think that is where DAN lost us. We have yet to see Dr. Goldberg

> and start

> > his protocol, but as an educated mother, I can tell you that it

> already

> > feels right in my heart.

> >

> > I wish you all the best in your own journey. I think that you are

> doing the

> > right thing by reaching out and asking questions. Good luck to

> you.

> >

> > Lori

>

July 27, 2002

Be very careful w/ the DAN doctors. They never use science, logic, or

intelligence when it comes to our children. I would be skeptical! Also,

just a suggestion, you may want to show any doctor, in your area the media

kit, which is available online at .net.

Michele

July 27, 2002

That's a really broad, blanket statement. I think it would be more accurate

to say that being a DAN! doctor can mean everything and nothing. A DAN!

doctor can be a highly regarded doctor with as many committed and convinced

parents as Dr. Goldberg or an inexperienced doctor who has simply attended

one DAN! conference.

On other lists, there are parents who report their child did not progress

(at least to their satisfaction) under the care of Dr. Goldberg and have

sought the help of DAN! doctors. That does not mean that Dr. Goldberg is not

scientific, logical or intelligent. It means that there are very complex

etiologies behind these children's problems and that there isn't just one

approach that works for every child.

I think parents should be very careful with all doctors. They know their

child best and should do their research to be sure the protocol fits their

child. I wish it were as easy to say that one doctor had the answer for all

of our children.

Lynne

> Be very careful w/ the DAN doctors. They never use science, logic, or

> intelligence when it comes to our children. I would be skeptical! Also,

> just a suggestion, you may want to show any doctor, in your area the media

> kit, which is available online at .net.

>

> Michele

July 27, 2002

Very well said. We need to respect and acknowledge that not " one size fits

all " . At the same time one should be aware of the differences between any

two medical approaches.

Respectfully,

Doug McCreary

Re: vs DAN protocol

> That's a really broad, blanket statement. I think it would be more

accurate

> to say that being a DAN! doctor can mean everything and nothing. A DAN!

> doctor can be a highly regarded doctor with as many committed and

convinced

> parents as Dr. Goldberg or an inexperienced doctor who has simply attended

> one DAN! conference.

>

> On other lists, there are parents who report their child did not progress

> (at least to their satisfaction) under the care of Dr. Goldberg and have

> sought the help of DAN! doctors. That does not mean that Dr. Goldberg is

not

> scientific, logical or intelligent. It means that there are very complex

> etiologies behind these children's problems and that there isn't just one

> approach that works for every child.

>

> I think parents should be very careful with all doctors. They know their

> child best and should do their research to be sure the protocol fits their

> child. I wish it were as easy to say that one doctor had the answer for

all

> of our children.

>

> Lynne

>

> > Be very careful w/ the DAN doctors. They never use science, logic, or

> > intelligence when it comes to our children. I would be skeptical!

Also,

> > just a suggestion, you may want to show any doctor, in your area the

media

> > kit, which is available online at .net.

> >

> > Michele

>

> Responsibility for the content of this message lies strictly with

> the original author, and is not necessarily endorsed by or the

> opinion of the Research Institute.

>

July 28, 2002

My suggestion to all of you considering the protocol is to read the most

recent article " The Myth Of Autism " . I know as much as the next parent how

confusing this can be with regards to protocols for our children diagnosed w/

Autism Spectrum. But the only scientific logic I have come across is testing

specifically for virus titers, anemia, basically a complete blood test, as

any person should complete when getting a physical. Dr. Goldberg and the

Medical Doctors use science, facts, and use the results per individual

and treats child individually... there is so much to say. The DAN doctors

load our children up with supplements, which is unhealthy for anyone,

particularly our children who are ill. It makes no sense, and has no

scientific facts backing medical practice. The protocol treats the sick

child ! There are plenty of patients now in regular classrooms. Read

the .net website and/or the neuroimmunedr.com website.

Good Luck,

Michele Davies

July 28, 2002

Is the Position that DAN is not a legitimate option? if so Should I

conclude the Same of ? or might both be some thing to explore? depending

on the child.

I have one that is responding VERY well to the DAN protocol and one that I

think the protocol might be better for.

Pat in Salem OR

Mom of

Dan 15 HFA, GFCF & Feingold

Becca 12 Stealth positive, Feingold

8, GFCF & Feingold, soy, peanut, tomato, corn, grape, & apple free

Re: vs DAN protocol

| Be very careful w/ the DAN doctors. They never use science, logic, or

| intelligence when it comes to our children. I would be skeptical! Also,

| just a suggestion, you may want to show any doctor, in your area the media

| kit, which is available online at .net.

|

| Michele

|

July 28, 2002

We just saw Dr. Goldberg on Monday, and I didn't get the impression that he

thinks DAN is not a legitimate option. He disagrees in some things in the

protocol, but he would be the first to tell you that each child is different and

each case of has a different genesis. One thing I know that Dr. Goldberg

objects to is that many (possibly all; I don't know) DAN doctors advocate

chelation (for mercury), and Dr. Goldberg is very much against that; says it's

dangerous and unnecessary unless the child tests positive for mercury poisoning.

I did hear Dr. Jacquelyn McCandless speak on the DAN protocol recently, and I

must admit, her description of chelation scared the bejesus out of me (she

chelates her patients and has all of them on GFCF). The other thing Dr.

Goldberg mentioned is that the DAN doctors focus on the " leaky gut " as the

primary cause of " acquired " or " regressive " autism, whereas Dr. Goldberg's

opinion is that the " leaky gut " is merely a component, a symptom, if you will,

of the larger issue of immune dysfunction. This makes more sense to me, at

least in my son's case.

Donna

Re: vs DAN protocol

| Be very careful w/ the DAN doctors. They never use science, logic, or

| intelligence when it comes to our children. I would be skeptical! Also,

| just a suggestion, you may want to show any doctor, in your area the media

| kit, which is available online at .net.

|

| Michele

|

July 28, 2002

Hi, I am new here and have been lurking on the list for a few weeks to find out

more about . My son is currently seeing a DAN doctor, but I want to explore

all avenues of treatment for him. How have people determined which protocol is

right for their child? What we have done so far seems to be helping my son, but

nothing has had made a huge, night vs. day difference. I already know my son's

immune system is skewed from testing done by the DAN doctor. How are these

kids acquiring these immune dysfunctions?

Thanks for any help you can provide.