Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 " During more than 20 years of evaluation and research, Dr. Goldberg has reduced or eliminated symptoms in numerous children throughout the United States and helped return cognitive function to normal and near normal states in many. " -- article, see below. Marc, I have long appreciated Goldberg's work with autistic children. At his conference in Bethesda several years ago I met some of the parents of children who made the complete recovery, as well as parents whose children had not progressed that far. For some parents, the child's age and/or delay in getting their child to Dr. Goldberg were factors parentally linked with " not progressed as far as some other kids. " In this context, and given what was conveyed in the article you posted, I find myself wondering, are summary data of treatment-efficacy outcomes available online? A comparison data-summary is available at http://www.up-to-date.com/dan2002/El-Dahr.htm That URL presents (in gif form) the powerpoint slides that Jane El-Dahr, M.D., offered at a recent DAN! conference. Two slides are particularly effective in describing treatment efficacy in a group of DSM-IV autistic children. Those two slides can be viewed by looking down the left-column's list of slides, then clicking first on: *Categories of Improvement* then clicking on the crucial data: *Improvements in 152 Patients with DSM IV Autism after at least 4 Months of LA/DMSA after DMSA* Importantly, consultations with physicians other than Goldberg indicate that at least some children for whom gut-healing and chelation have not induced major improvments are proving to be acyclovir responders. Clearly, we seem to have several subgroups of autistic children -- in regard to which treatments are helpful. Perhaps you can provide us with a treatment-efficacy summary (similar to Dr. El-Dahr's) for a fairly large cohort of DSM-IV children treated by Dr. Goldberg. Binstock Researcher in Developmental & Behavioral Neuroanatomy Marc Share wrote: > For Immediate Release > Contact: LeJane Carson/ Stoga > 847/884-0000 > > Neuro-Immune Diagnosis and Treatment Gives Hope To Children With > Autism, Attention Deficit Disorder and Other Diseases > > Children Once Thought of as Having “Untreatable” Developmental > or Behavioral Disorders In Reality Have a Medical Disease; > New Protocol Has Already Helped Many Patients > TARZANA, Calif. (July 8, 2002) – Doctors and researchers on the cutting edge of medical research are now bringing hope to many of the 500,000 children in the United States diagnosed with autism and many of the more than 2.5 million with attention deficit disorder (ADD), attention deficit/hyperactivity disorder (ADHD) or chronic fatigue syndrome (CFS). > By treating these and other diseases as neuro-immune dysfunction syndromes () and looking upon them as medical rather than developmental disorders, Goldberg, M.D., F.A.A.P, and his colleagues at the Neuro-Immune Dysfunction Syndromes Research Institute (-RI) have seen dramatic improvement and normalization in children previously deemed medically untreatable. During more than 20 years of evaluation and research, Dr. Goldberg has reduced or eliminated symptoms in numerous children throughout the United States and helped return cognitive function to normal and near normal states in many... <much delted from original post into t. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 > " During more than 20 years of evaluation and research, Dr. Goldberg has reduced or eliminated symptoms in numerous children throughout the United States and helped return cognitive function to normal and near normal states in many. " -- article, see below. > > Marc, > > I have long appreciated Goldberg's work with autistic children. At his conference in Bethesda several years ago I met some of the parents of children who made the complete recovery, as well as parents whose children had not progressed that far. For some parents, the child's age and/or delay in getting their child to Dr. Goldberg were factors parentally linked with " not progressed as far as some other kids. " In this context, and given what was conveyed in the article you posted, I find myself wondering, are summary data of treatment-efficacy outcomes available online? > > A comparison data-summary is available at http://www.up-to-date.com/dan2002/El-Dahr.htm > That URL presents (in gif form) the powerpoint slides that Jane El-Dahr, M.D., offered at a recent DAN! conference. Two slides are particularly effective in describing treatment efficacy in a group of DSM-IV autistic children. Those two slides can be viewed by looking down the left-column's list of slides, then clicking first on: > *Categories of Improvement* > then clicking on the crucial data: > *Improvements in 152 Patients with DSM IV Autism after at least 4 Months of LA/DMSA after DMSA* > > Importantly, consultations with physicians other than Goldberg indicate that at least some children for whom gut-healing and chelation have not induced major improvments are proving to be acyclovir responders. Clearly, we seem to have several subgroups of autistic children -- in regard to which treatments are helpful. Perhaps you can provide us with a treatment-efficacy summary (similar to Dr. El-Dahr's) for a fairly large cohort of DSM-IV children treated by Dr. Goldberg. > > Binstock > Researcher in Developmental & Behavioral Neuroanatomy > > Marc Share wrote: > > > For Immediate Release > > Contact: LeJane Carson/ Stoga > > 847/884-0000 > > > > Neuro-Immune Diagnosis and Treatment Gives Hope To Children With > > Autism, Attention Deficit Disorder and Other Diseases > > > > Children Once Thought of as Having “Untreatable” Developmental > > or Behavioral Disorders In Reality Have a Medical Disease; > > New Protocol Has Already Helped Many Patients > > TARZANA, Calif. (July 8, 2002) – Doctors and researchers on the cutting edge of medical research are now bringing hope to many of the 500,000 children in the United States diagnosed with autism and many of the more than 2.5 million with attention deficit disorder (ADD), attention deficit/hyperactivity disorder (ADHD) or chronic fatigue syndrome (CFS). > > By treating these and other diseases as neuro-immune dysfunction syndromes () and looking upon them as medical rather than developmental disorders, Goldberg, M.D., F.A.A.P, and his colleagues at the Neuro-Immune Dysfunction Syndromes Research Institute (-RI) have seen dramatic improvement and normalization in children previously deemed medically untreatable. During more than 20 years of evaluation and research, Dr. Goldberg has reduced or eliminated symptoms in numerous children throughout the United States and helped return cognitive function to normal and near normal states in many... > > <much delted from original post into t. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2002 Report Share Posted July 26, 2002 I belive in the idea that a certain percentage of kids may have a herpes virrus which responds to acyclovir. That is something Sid Baker and others have been looking into for a long time. I know of a number of autistic children who were tried on acyclovir between ages 3-5 including my own son with no particular response. This suggests subgroups of kids and that may help some but not others. Chelation may help some but not others. It is important that parents try everything reasonable but not develop the idea that one person or treatment is going to be the savior because for most it isn't. When it is, as Jeff Bradstreet or Jerry Kartzinel say, " It is a miracle. " Ken Sokolski Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.