Re: Reply to T. Binstock request

[Guest guest]

I am stepping in with a response to your question for Marc. Dr. Goldberg

treats he does not treat autism. His medical records are extremely

thorough and complete with data that proves improvement (which does indeed

vary proving the need for better agents) but again dealing with not

autism. Autism is a Psychiatric diagnosis and as Dr. Goldberg's does not have

a psychiatric practice that kind of documentation is not present. I read over

150 records and found enough descriptive comments from Dr. G and quotes from

parents to see that all of the charts that I read without exception showed

improvement in autistic symptoms but that is not publishable material. I

considered pulling a random sample then contacting parents to see if they

could provide me with pretreatment and current standardized testing results

and what I found was a random sample of charts represents a lot of states and

many countries. Estimating the amount of work that I would have to do without

any guarantees that I would find enough kids with pre and post testing that

would be standardized quickly put that out of my mind, however it is still a

possibility and we are looking into doing that. What we are doing in our

clinic here is collecting all pretreatment testing which in NYS is

standardized. All of the kids in NYS are tested yearly so by next spring I

will have test results to compare with my baselines and plan on having a

paper out by next summer. As a Health Care Provider whose background is in

Public Health I have done thirty years of research and would never have

planned a program without it but as a parent I have a very different view. I

started looking for a physician to treat my daughter's immune system when she

was 5. It took me 5 years to find Dr. Goldberg. I know how different her life

would have been had we found him earlier. Having seen children who are

better, having seen children who are so normal that I had to ask their

parents to describe them to me before treatment, having seen my own child

start speaking in sentences two years ago and now lose speech therapy because

her speech is normal I feel morally that I have no other choice but to spread

the word. We have a choice. We can thoroughly study this protocol, publish in

a few years, we can hope that others will replicate and publish and meet the

needs of the medical scientific community OR we can spread the word, activate

parents, get the money that we need for new drugs and meet the needs of the

children that are alive now not decades from now. By letting the word out now

we are giving parents a choice they would not otherwise have. My cousin died

two years ago this month. Eight months after her death a new cancer drug came

out that has absolutely phenomenal success in treating the kind of cancer

that killed her. Despite exhaustive searching we were never able to find out

anything about the trials for that drug. The drug is out now. My cousin

Barbara is still dead

[Guest guest]

Kathy:

Excellent note re: the need for speed, although some informal data would help

the marketing process...I will check the cost of the NY Times. Also very

happy to hear your daughter is starting to flourish again!!

[Guest guest]

Thanks! Kathy